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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Wheatwacked replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms43results from 13 day gluten challenge - does this mean I can't have celiac?
Click on the image to make it larger. Maybe doesn't work on phone browser, That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause. Not trying to. But much of your rant includes refeferences that may indicate multiple nutritional deficiencies... -
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- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms43results from 13 day gluten challenge - does this mean I can't have celiac?
I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..? and some coffee? -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms43
results from 13 day gluten challenge - does this mean I can't have celiac?
fortunately you don't need to understand anything that doesn't directly affect you. 🤗 you earlier assumed I was deficient in nutrients and minerals due to celiac malabsorption but...... now it doesn't matter? because why? it might mess up your deficiency argument? if you don't know the difference between having actual celiac disease and NC... -
- Rejoicephd commented on Scott Adams's article in Origins of Celiac Disease1Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)
This is fascinating. I’m not sure how early my antibiotics started but I do know that I was given a lot of them at a very young age (under 5)- 1
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By Wheatwacked · Posted
Click on the image to make it larger. Maybe doesn't work on phone browser, That was from 2021. Absolutely, they should be tested, The point is you have symptoms that the doctors don't understand and malabsorption may be the cause. Not trying to. But much of your rant includes refeferences that may indicate multiple nutritional deficiencies. Some countries also have tax incentives and financial aid for Celiacs. Celiac disease is recognized as a disability under the ADA because it substantially limits major life activities like eating and digestive function. Protections require reasonable accommodations in public accommodations, including schools (504 plans), colleges, and hospitals. These often include providing safe, gluten-free food, though they do not force restaurants to provide it. As far as your recovery, eat gluten free. Get healthier now and worry about diagnosis later. Many here on the forum have gone ten or more years looking for a diagnosis, with many doctors and many misdiagnosis along the way. It really doesn't matter why, but you cannot eat gluten. That is what is important. With gluten out of the way, maybe the doctors can make sense of your remaining symptoms. If you need the ADA, then a medical diagnosis is the way to go. Meantime you are delaying your recovery from whichever celiac disease or NCGS and the inevitable step one of Gluten Free Diet. tWe come to share experiences and maybe it will help someone. In reality, I don't care. By the way I have stopped 6 medications Against Medical Advice because they did not do their job and the side effects were crippling. This is a lifelong fight for your life. Pick you battles carefully. Assume the worst, celiac disease, and deal with it. Denial is not just a river in Egypt. Pleased to meet you, too. -
I can't read any of this... the print is too small and it looks like all you eat is milk, cereal cookies and some fruit..? and some coffee?
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fortunately you don't need to understand anything that doesn't directly affect you. 🤗 you earlier assumed I was deficient in nutrients and minerals due to celiac malabsorption but...... now it doesn't matter? because why? it might mess up your deficiency argument? if you don't know the difference between having actual celiac disease and NCGS....!!!! correct me if I'm wrong but actual celiac disease causes actual physical damage to your body and increases your risk of certain cancers... just as a start. I have an identical twin sister- IF I have celiac disease, chances are she may too. I have a daughter and other first degree relatives... you also get ADA protections with an actual celiac diagnosis. but again, not your decision to make nor to understand. but to suggest that there is no valid reason to find out for sure is incomprehensible on a board dedicated to celiac disease. if you ask me but you didn't so- nevermind. don't worry though, another member has declared that in her expert opinion based on who knows what- that I don't have celiac!!! but instead I am "full of beans" and probably killing myself for eating such scary things, I don't know. if you think you can diagnose me off one single biomarker and a hunch of some sort...based on your history and some research study that you think is relevant- um, well, Glad to meet you, Dr McCoy aka Bones. 🫠 I did not know this was a place where strangers want to play doctor I am hoping to hear from other members who are not so quick to make judgements and... stuff, let's just leave it at that... perhaps there aren't any. time will tell I guess
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