Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. jen2be2
    Juliet
    • 6 replies
    • 1.7k views
  2. jen2be2
    Canadian Karen
    • 2 replies
    • 2.4k views
  3. sarahelizabeth
    jen2be2
    • 15 replies
    • 2.6k views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. janelyb
    Lisa
    • 12 replies
    • 1.8k views
  6. ptkds
    squili
    • 7 replies
    • 1.7k views
  7. momof2sn
    Kassie

    Muffins

    • 12 replies
    • 3.1k views
  8. Guest maddiesmom
    Lisa

    Loaf Of Bread

    • 1 reply
    • 1.1k views
  9. sarahelizabeth
    JennyC
    • 5 replies
    • 1.8k views
  10. Amanda Thomas
    Pacer
    • 8 replies
    • 2k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. janelyb
    Nantzie
    • 10 replies
    • 2.6k views
  13. Guest GrimTribe
    jen2be2

    Bood Test Results

    • 4 replies
    • 1.9k views
  14. momof2sn
    • 6 replies
    • 1.7k views
  15. Pacer
    Jodele
    • 19 replies
    • 3.2k views
  16. pedro
    Q1821
    • 3 replies
    • 1.3k views
  17. ptkds
    • 0 replies
    • 1.2k views
  18. Guest lorlyn
    Juliet

    Getting Overheated

    • 4 replies
    • 1.7k views
  19. wolfie
    JennyC
    • 22 replies
    • 4.1k views
  20. sclark9602
    Juliet
    • 4 replies
    • 1.7k views
  21. Pacer
    edgeyveggie
    • 17 replies
    • 3.6k views
  22. cdfiance
    CarlaB
    • 9 replies
    • 3.5k views
  23. familyfirst
    mcsteffi
    • 5 replies
    • 1.5k views
  24. sillyactsue
    Nikki2003
    • 3 replies
    • 2.7k views
  25. momof2sn
    dally099
    • 1 reply
    • 933 views
  26. janelyb
    FeedIndy
    • 5 replies
    • 2.1k views
  27. Guest maddiesmom
    Juliet

    Hot Dog/hamburger Buns

    • 2 replies
    • 1.3k views
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,163
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.