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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Sheila G. commented on Scott Adams's article in Diagnosis, Testing & Treatment3A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)
I got Celiac disease in 2023 when I had covid. Within a week, food was bothering my stomach. I started eating non gluten food but had a journey learning. I know do not go to restaurants or fast food, I was told I cant eat red meat. I have an appointment in May to get a question on why no red meat. I eat ground turkey or chicken, frozen vegetables instead...- celiac disease
- cell therapy
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- Mettedkny replied to hjayne19's topic in Traveling with Celiac Disease5Mallorca Guide
You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip. -
- cristiana replied to Charlie1946's topic in Related Issues & Disorders40Severe severe mouth pain
I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it. -
- knitty kitty replied to Charlie1946's topic in Related Issues & Disorders40Severe severe mouth pain
Do talk to your doctor about making changes to your medication. I'm not a medical doctor. I'm a microbiologist. I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.
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You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip.
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I agree. If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication). I have two friends with this. The PPI it does have side effects but they still have to take it.
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By knitty kitty · Posted
Do talk to your doctor about making changes to your medication. I'm not a medical doctor. I'm a microbiologist. I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor. -
By knitty kitty · Posted
@Jmartes71, Sorry you've been feeling so poorly. Are you taking any medication to treat the SIBO? Are you taking any Benfotiamine? Benfotiamine will help get control of the SIBO. Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks? Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening. Doctors have to check venous blood (not arterial) for carbon monoxide. Are other inhabitants sick, or just you? Do they leave the house and get fresh air which relieves their symptoms? -
By knitty kitty · Posted
European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States. In European countries, different cooking methods and longer fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat. Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product. I moved around quite a bit as a child in a military family. I had different reactions to gluten in different areas of the country every time we moved. I believe some wheat breeds and blends are able to provoke a worse immune response than others. Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products. A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test. Your whole wheat bread may only have a gram of gluten per slice, so be prepared...
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