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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. jen2be2
    Juliet
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  2. jen2be2
    Canadian Karen
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  3. sarahelizabeth
    jen2be2
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  5. janelyb
    Lisa
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  6. ptkds
    squili
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  7. momof2sn
    Kassie

    Muffins

    • 12 replies
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  8. Guest maddiesmom
    Lisa

    Loaf Of Bread

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  9. sarahelizabeth
    JennyC
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  10. Amanda Thomas
    Pacer
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  12. janelyb
    Nantzie
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  13. Guest GrimTribe
    jen2be2

    Bood Test Results

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  14. momof2sn
    • 6 replies
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  15. Pacer
    Jodele
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  16. pedro
    Q1821
    • 3 replies
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  17. ptkds
    • 0 replies
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  18. Guest lorlyn
    Juliet

    Getting Overheated

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  19. wolfie
    JennyC
    • 22 replies
    • 4.1k views
  20. sclark9602
    Juliet
    • 4 replies
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  21. Pacer
    edgeyveggie
    • 17 replies
    • 3.6k views
  22. cdfiance
    CarlaB
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  23. familyfirst
    mcsteffi
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  24. sillyactsue
    Nikki2003
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  25. momof2sn
    dally099
    • 1 reply
    • 933 views
  26. janelyb
    FeedIndy
    • 5 replies
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  27. Guest maddiesmom
    Juliet

    Hot Dog/hamburger Buns

    • 2 replies
    • 1.3k views
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    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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      What's your daily meals? Protein bars?

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    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
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