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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Known1 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications31Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1 -
- Jmartes71 replied to Kayla S's topic in Dermatitis Herpetiformis3Need advice for some relief!
Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers -
- trents replied to MoniqueCham's topic in Related Issues & Disorders1Celiac Disease, Lymphocytic colitis and Bowel rupture
Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel. -
- Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications31Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
I am monitored for this value of Vit D. I kept going down so the Vit D had to be increased. -
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I am curious: What was your initial level at? How many daily IUs were you taking via supplements and for how long? What did your level drop to? How many daily IUs are you taking now via supplements? Regards, Known1
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Ive been dealing with skin issues and been told it was staph because I was employed as a bus driver during that horrid time that im still actively healing from currently years later. Biopsies they don't want to say its inconclusive they say.Their creams don't work.I do notice Yarrow Pom from Doterra works but of course thats expensive.Prayers
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Welcome to the celiac.com community @MoniqueCham! Celiac disease damages the villous lining of the small bowel but, as far as I know, doesn't affect the underlying smooth muscle tissue of the bowel.
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I am monitored for this value of Vit D. I kept going down so the Vit D had to be increased.
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By MoniqueCham · Posted
I was diagnosed with celiac disease 40 years ago and lymphocytic colitis 20 years ago along with refractory celiac disease affecting mid jejunum to mid ileum (diagnosed using a capsule endoscopy). My antibodies to tissue transglutaminase were normal on a strict gluten free diet. Both the lymphocytic colitis and the refractory celiac disease responded well to entocort. I have a number of autoimmune conditions including systemic granuloma annulaire (a skin condition) which was treated with methotrexate. I was on a low dose of methotrexate (15 mg once a week with folic acid every day when not taking methotrexate). In 5 months my sigmoid colon ruptured. Pathology reports show that I had significant necrosis of my sigmoid bowel due to no known cause and a large hole in the bowel. My surgeons felt that the methotrexate may have caused the damage and rupture to my bowel (1 in a million chance). My question is has anyone experienced similar issues with methotrexate given that the integrity of our intestines may be compromised in celiac disease?
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