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Parents, Friends and Loved Ones of Celiacs
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Recent Activity
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- trents replied to Sarah Grace's topic in Related Issues & Disorders20Headaches / Migraines and Hypoglycaemia
My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan... -
- Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications1Tamale ingredients
These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/ -
- Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6GI DX celiac despite neg serology and no biopsy
Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes... -
- Wheatwacked commented on Scott Adams's article in Latest Research2
Understanding the Link Between Blood Pressure Medications and Celiac Disease Complications (+Video)
Good article. Losartan after my carotid artery surgery had me feeling like I was glutened and I was getting sicker. Doctor said keep taking Losartan, but two weeks later I could not get up from the floor. Many symptoms similar to before I started gluten free. It was crippling my hips, brain fog, no appetite, etc. I stopped AMA and all the symptoms...- 1
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- Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders20Headaches / Migraines and Hypoglycaemia
Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing. To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago. I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia. I also mentioned that I...
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My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
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By Scott Adams · Posted
These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/ -
By Wheatwacked · Posted
Just a gluten free diet is not enough. Now you have to identify and replenish your malnutrition. Celiac disease is co-morbid with malabsorption syndrome. Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely. It takes time to heal and you need to focus on vitamins and minerals. Gluten free foods are not fortified like regular processed foods. -
By Sarah Grace · Posted
Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing. To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago. I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia. I also mentioned that I had issues with insomnia, vertigo and brain fog. It's now one year since I started on the Benfotiamine 600 mg/day. I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful. In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!! So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off. If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden. Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards, -
By knitty kitty · Posted
@rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort. SIBO can cause digestive symptoms. SIBO can prevent vitamins from being absorbed by the intestines. Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation). Thiamine is the B vitamin that runs out first because it can only be stored for two weeks. We need more thiamine when we're sick or under emotional stress. Gastric Beriberi is under recognised by doctors. An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement. Don't take Thiamine Mononitrate because the body can't utilize it well. Try Benfotiamine. Thiamine is water soluble, nontoxic and safe even at high doses. I thought it was crazy, too, but simple vitamins and minerals are important. The eight B vitamins work together, so a B Complex, Benfotiamine, magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet. Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
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