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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,183 topics in this forum

  1. jen2be2
    Canadian Karen
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    jen2be2
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  5. ptkds
    squili
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  6. momof2sn
    Kassie

    Muffins

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  7. Guest maddiesmom
    Lisa

    Loaf Of Bread

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  8. sarahelizabeth
    JennyC
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  12. Guest GrimTribe
    jen2be2

    Bood Test Results

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  13. momof2sn
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  14. Pacer
    Jodele
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  15. pedro
    Q1821
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  16. ptkds
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  17. Guest lorlyn
    Juliet

    Getting Overheated

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  18. wolfie
    JennyC
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  19. sclark9602
    Juliet
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  20. Pacer
    edgeyveggie
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  21. cdfiance
    CarlaB
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  22. familyfirst
    mcsteffi
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  23. sillyactsue
    Nikki2003
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  24. momof2sn
    dally099
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  25. janelyb
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  26. Guest maddiesmom
    Juliet

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  • Recent Activity

    1. - trents replied to xxnonamexx's topic in Related Issues & Disorders
      4

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    2. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal

    3. - xxnonamexx replied to xxnonamexx's topic in Related Issues & Disorders
      4

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

    4. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal

    5. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      ttg iga high (646 mg/dl) other results are normal


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  • Posts

    • trents
      As ShariW explained, soy itself doesn't contain gluten but most soy sauces sold in stores and used in restaurants contain wheat as an ingredient so they are not gluten free. As I understand it, there are two traditional ways of making soy sauce. One way contains wheat and one doesn't. The most popular one found out there in the wild does contain wheat, however. Kikkoman offers a line of gluten-free soy sauce and Teriyaki products that are often sold by grocery store chains like Safeway. There are food allergy/food sensitivity tests available and your physician can order them or give you a referral. They fall into two categories, the skin prick kind and the blood test kind. One you might look into is called the ALCAT test which might be the most helpful for foods. However, the reliability of these things is questionable. The results can be helpful as a place to start but the results often don't match up with real life experience. There are reasons for this and you might do well to research food sensitivity testing reliability on the Internet. 
    • trents
      The IGA TTG (aka, TTG-IGA) is the centerpiece of celiac disease blood antibody testing. A high value in this test indicates probable celiac disease, though there are other reasons (some other diseases, some medications and in some cases, even some non-gluten foods that can cause it to be elevated. And it is not unusual at all for other celiac antibody tests to be normal when the TTG-IGA is high. Normally, when the TTG-IGA is elevated, the physician will order an upper GI with biopsy of the small bowel lining to check for the damage characteristic of celiac disease. The biopsy is then sent out for microscopic analysis. This is to confirm the results of the blood testing and is considered the gold standard diagnostic test. You should not begin a gluten free diet until the endoscopy/biopsy is complete. This is very important because otherwise the results will be invalidated.  This article on celiac disease blood antibody tests might be helpful to you while you are waiting for feedback from the physician:  
    • xxnonamexx
      Thanks that's what I didn't know about soy hidden with wheat. I know it's autoimmune but want sure about sensitivity to corn or eggs. There's no tests for these which are non gluten is there? I have had gluten free tortillas pastas made with corn and have had eggs so I don't think it bothers me but I was curious if there was a test that does sure sensitivities to these non gluten items for gluten-free people. Thanks
    • kpf
      And of course I get these results (the ttg iga marked high at 646 mg/dL) on a Friday in my portal, my doctor wasn't in, and now we are in the weekend—leaving me to have to try and figure things out on my own until sometime next week. None of the nurses at the office would talk to me. 
    • kpf
      peptide iga, peptide igg, and ttg igg were all marked normal with limits noted as <15.0
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