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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.

7,184 topics in this forum

  1. jen2be2
    Juliet

    1st Trip To The Dentist

    By jen2be2, Last action:
    • 6 replies
    • 1.7k views
    • Juliet
    • Juliet
  2. jen2be2
    Canadian Karen

    Need A Reply Quick...

    By jen2be2, Last action:
    • 2 replies
    • 2.4k views
    • Canadian Karen
    • Canadian Karen
  3. sarahelizabeth
    jen2be2

    Genetic Testing Question?

    By sarahelizabeth, Last action:
    • 15 replies
    • 2.7k views
    • jen2be2
    • jen2be2
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  4. janelyb
    Lisa

    When You Went gluten-free, How Soon Did Dairy Become A Problem?

    By janelyb, Last action:
    • 12 replies
    • 1.8k views
    • Lisa
    • Lisa
  5. ptkds
    squili

    Found New gluten-free Product!

    By ptkds, Last action:
    • 7 replies
    • 1.7k views
    • squili
    • squili
  6. momof2sn
    Kassie

    Muffins

    By momof2sn, Last action:
    • 12 replies
    • 3.2k views
    • Kassie
    • Kassie
  7. Guest maddiesmom
    Lisa

    Loaf Of Bread

    By Guest maddiesmom, Last action:
    • 1 reply
    • 1.1k views
    • Lisa
    • Lisa
  8. sarahelizabeth
    JennyC

    Which Will Show Up First?

    By sarahelizabeth, Last action:
    • 5 replies
    • 1.8k views
    • JennyC
    • JennyC
  9. Amanda Thomas
    Pacer

    I Think I Found A Good Snack

    By Amanda Thomas, Last action:
    • 8 replies
    • 2.1k views
    • Pacer
    • Pacer
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  11. janelyb
    Nantzie

    How Much Is Genetic Testing And Where To Get It?

    By janelyb, Last action:
    • 10 replies
    • 2.6k views
    • Nantzie
    • Nantzie
  12. Guest GrimTribe
    jen2be2

    Bood Test Results

    By Guest GrimTribe, Last action:
    • 4 replies
    • 2k views
    • jen2be2
    • jen2be2
  13. momof2sn

    Positive Blood Work

    By momof2sn, Last action:
    • 6 replies
    • 1.7k views
    • momof2sn
    • momof2sn
  14. Pacer
    Jodele

    How Did You Tell Your Kid They Were Celiac?

    By Pacer, Last action:
    • 19 replies
    • 3.3k views
    • Jodele
    • Jodele
  15. pedro
    Q1821

    Constipation

    By pedro, Last action:
    • 3 replies
    • 1.3k views
    • Q1821
    • Q1821
  16. ptkds

    White Lines On Dd's Fingernails

    By ptkds, Last action:
    • 0 replies
    • 1.3k views
    • ptkds
    • ptkds
  17. Guest lorlyn
    Juliet

    Getting Overheated

    By Guest lorlyn, Last action:
    • 4 replies
    • 1.7k views
    • Juliet
    • Juliet
  18. wolfie
    JennyC

    Starting Daughter On A Gluten-free Diet Today....

    By wolfie, Last action:
    • 22 replies
    • 4.2k views
    • JennyC
    • JennyC
  19. sclark9602
    Juliet

    Dd And Ds Have Celiac

    By sclark9602, Last action:
    • 4 replies
    • 1.8k views
    • Juliet
    • Juliet
  20. Pacer
    edgeyveggie

    Vegetarian Celiac Familes?

    By Pacer, Last action:
    • 17 replies
    • 3.6k views
    • edgeyveggie
    • edgeyveggie
  21. cdfiance
    CarlaB

    Follow Up Endoscopy?

    By cdfiance, Last action:
    • 9 replies
    • 3.6k views
    • CarlaB
    • CarlaB
  22. familyfirst
    mcsteffi

    Ready, Set, Go...

    By familyfirst, Last action:
    • 5 replies
    • 1.5k views
    • mcsteffi
    • mcsteffi
  23. sillyactsue
    Nikki2003

    Butterfly Rash

    By sillyactsue, Last action:
    • 3 replies
    • 2.7k views
    • Nikki2003
    • Nikki2003
  24. momof2sn
    dally099

    No Poop

    By momof2sn, Last action:
    • 1 reply
    • 959 views
    • dally099
    • dally099
  25. janelyb
    FeedIndy

    Conflicting Doctor Opinions?

    By janelyb, Last action:
    • 5 replies
    • 2.1k views
    • FeedIndy
    • FeedIndy
  26. Guest maddiesmom
    Juliet

    Hot Dog/hamburger Buns

    By Guest maddiesmom, Last action:
    • 2 replies
    • 1.3k views
    • Juliet
    • Juliet

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  • Recent Activity

    1. trents
      - trents replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    2. KeriRae
      - KeriRae replied to dani nero's topic in Dermatitis Herpetiformis
      191

      DH Photo Bank

      I've had this same rash on my back on and off for the last year or two. I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash.
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      It should be noted that Gluten Free Watchdog has voiced concerns about the methodology used by MomsAcrossAmerica's lab for their gluten testing. I don't have access behind their paywall, but here are 2 relevant public posts from them on this topic. (tldr: GFWD seems to believe that MAM's lab could have gotten false positives and they explain why they believe...
    4. Russ H
      - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    5. GFhappygirl
      - GFhappygirl commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

      I recently purchased Simple Mills crunchy almond flour chocolate chip cookies and chocolate chocolate chip cookies and had reactions to both. I learned of my gluten sensitivity 3 1/2 months ago and struggled with finding gluten-free foods but, with my husbands help, I have felt better than I have in many years. After eating these cookies my symptoms returned...
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  • Posts

    • trents
      DH Photo Bank

      By trents · Posted

      @KeriRae, have you been diagnosed with celiac disease or with dermatitis herpetiformis?
    • KeriRae
      DH Photo Bank

      By KeriRae · Posted

      I've had this same rash on my back on and off for the last year or two.  I was taking LDN to help with other issues but quit awhile back. I'm wondering if LDN would help with this rash. 
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  There’s been no mention of her adrenal glands as far as I know
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