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Celiac Disease Pre-Diagnosis, Testing & Symptoms
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Recent Activity
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- Kathleen Mostek replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications26Desperately need a vitamin D supplement. I've reacted to most brands I've tried.
I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea! -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2dairy? gluten in chocolates?? calcium?
ack!! seriously??? just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt. good grief -
- catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
dairy? gluten in chocolates?? calcium?
oh I forgot I also had some Doritos (those are corn chips aren't they?) -
- catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
dairy? gluten in chocolates?? calcium?
I'm not yet diagnosed, seeing a GI March 4th I'm keeping a food diary and yesterday I went to play cards at a friends house and ate things I don't ordinarily eat- mainly a bunch of those mini chocolates that ppl typically give out at Halloween (hershey kisses, mr goodbar. milkway, snickers) I ate er... too many. also had a tiny bit of... -
- Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease15Related issues
No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because...
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By Kathleen Mostek · Posted
I have had low Vit D for years before my Celiac diagnosis. I recommend Nature Made, it’s everywhere. GET THE TABLET, not the oil based capsule. The soy oil in the capsules give me diarrhea! -
ack!! seriously??? just googled all the different things I ate Milky Way: Contains barley malt and is not gluten-free. Krackel: Contains barley malt. good grief
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oh I forgot I also had some Doritos (those are corn chips aren't they?)
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I'm not yet diagnosed, seeing a GI March 4th I'm keeping a food diary and yesterday I went to play cards at a friends house and ate things I don't ordinarily eat- mainly a bunch of those mini chocolates that ppl typically give out at Halloween (hershey kisses, mr goodbar. milkway, snickers) I ate er... too many. also had a tiny bit of some kind of creamy salad dressing on raw veggies. I had SOO much pain last night in my feet- burning, numbness and pain in my feet and ankles, and a bit less so in my knees. Lasted for hours, kept me up half the night at the same time, the trouble with constipation that I've had ever since being put on the chlorthalidone, has started to improve but then gets worse again...and I can't figure out what is making it worse and what is helping it it is like my entire digestive tract just shuts down. Before finding out that I may have a renal calcium leak, I did not use fortified plant milks and did not consume dairy. Since being told to consume 1000-1200 mgs of calcium from food per day- I switched to fortified soy and almond milk and added some non fat or low fat plain yogurt (It is very hard to get that much calcium from other sources without eating an enormous amt of food- I'm 70 and just can't eat that much. I'm already seeing my weight creep up which is disturbing) I am seeing that ppl with celiac can have issues with dairy- what would those issues be? Did I get glutened yesterday unknowingly or does chocolate or that tiny bit of salad dressing I had have gluten in it? My feet are fine this morning! thank goodness but the pain was excruciating last night. I don't know what to do. I am thinking that I should ditch the dairy (which I never really wanted to consume in the first place) and maybe anything with calcium carbonate in it (that is very constipating for me) not only has my GI system slowed down, my stools are strange- round and often float. This so so different from what used to be my normal (on the Bristol stool score it was in the ideal range) I will go several times a day - these meatball sized round floaters I don't know if I'm still dealing with the after affects of the chlorthalidone (which has a very long half life- my last dose of that was Feb 9th or 11th - I'll have to look that up but I think it's been almost a week. I just want all this pain and discomfort to stop. but I don't know where it's coming from. those 12 days on gluten have just wrecked my whole system it seems. any ideas what I might do to help things get back to normal?
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No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
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