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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,301 topics in this forum

  1. DMarie1017
    cyclinglady

    GLIADIN DEAMIDATED AB,IGG question

    By DMarie1017, Last action:
    • 6 replies
    • 5k views
    • cyclinglady
    • cyclinglady
  2. ironictruth

    prometheus gene question

    By ironictruth, Last action:
    • 0 replies
    • 975 views
    • ironictruth
    • ironictruth
  3. yesilovecats
    cyclinglady

    Likeliness of celiac?

    By yesilovecats, Last action:
    • 1 reply
    • 1.5k views
    • cyclinglady
    • cyclinglady
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  4. Kim12
    cyclinglady

    Blood test done now what are the next steps?

    By Kim12, Last action:
    • 1 reply
    • 912 views
    • cyclinglady
    • cyclinglady
  5. chrisde1997
    ironictruth

    Ms. Richardson

    By chrisde1997, Last action:
    • 2 replies
    • 1.1k views
    • ironictruth
    • ironictruth
  6. Rosemilyd
    cyclinglady

    Genetic testing

    By Rosemilyd, Last action:
    • 2 replies
    • 955 views
    • cyclinglady
    • cyclinglady
  7. Fibromom
    frieze

    I need help interpreting labs! I don't return to Dr. until end of June

    By Fibromom, Last action:
    • 5 replies
    • 1.9k views
    • frieze
    • frieze
  8. Guelphgluten91
    Jmg

    Gluten free stool related

    By Guelphgluten91, Last action:
    • 6 replies
    • 1.3k views
    • Jmg
    • Jmg
  9. at1992
    Jmg

    tongue inflammation, reflux, GI bleeding, depression

    By at1992, Last action:
    • 6 replies
    • 1.8k views
    • Jmg
    • Jmg
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  11. Casy

    Tests, tests, more tests and more questions!

    By Casy, Last action:
    • 6 replies
    • 2.1k views
    • Casy
    • Casy
  12. ironictruth

    positive dgp not celiac 1 2

    By ironictruth, Last action:
    • 28 replies
    • 10.5k views
    • ironictruth
    • ironictruth
  13. Fbmb
    alioubba

    Endo for child?

    By Fbmb, Last action:
    • 13 replies
    • 2k views
    • alioubba
    • alioubba
  14. Michaeldp

    Help! New to this

    By Michaeldp, Last action:
    • 3 replies
    • 2k views
    • Michaeldp
    • Michaeldp
  15. Tracy210t

    New here- chronically inflammed. At witts end.

    By Tracy210t, Last action:
    • 9 replies
    • 2.5k views
    • Tracy210t
    • Tracy210t
  16. dalek100
    Victoria1234

    Possible Celiac 1 2

    By dalek100, Last action:
    • 29 replies
    • 5.9k views
    • Victoria1234
    • Victoria1234
  17. Peta
    Victoria1234

    Ferritin Levels 1 2

    By Peta, Last action:
    • 25 replies
    • 25.1k views
    • Victoria1234
    • Victoria1234
  18. foobag
    cyclinglady

    anti-ttg results

    By foobag, Last action:
    • 3 replies
    • 2.6k views
    • cyclinglady
    • cyclinglady
  19. silvermoth
    Victoria1234

    Does Celiac Disease Affect The Kidneys?

    By silvermoth, Last action:
    • 3 replies
    • 5.4k views
    • Victoria1234
    • Victoria1234
  20. NHMom1016
    alioubba

    4 Year Old Celiac Panel Test Results - Help Understanding

    By NHMom1016, Last action:
    • 10 replies
    • 4.4k views
    • alioubba
    • alioubba
  21. Christory77
    tessa25

    Question about lab work

    By Christory77, Last action:
    • 10 replies
    • 2.3k views
    • tessa25
    • tessa25
  22. Rosemilyd
    Pocah

    Gluten issue OR ms??

    By Rosemilyd, Last action:
    • 12 replies
    • 3.2k views
    • Pocah
    • Pocah
  23. Divergent
    cyclinglady

    Waiting for the next step after blood work

    By Divergent, Last action:
    • 6 replies
    • 2k views
    • cyclinglady
    • cyclinglady
  24. Carlinag123
    ironictruth

    Celiac testing questions

    By Carlinag123, Last action:
    • 1 reply
    • 1.3k views
    • ironictruth
    • ironictruth
  25. mikehall117
    JaneTX2

    Desperately need help - symptoms baffling everybody

    By mikehall117, Last action:
    • 7 replies
    • 2.8k views
    • JaneTX2
    • JaneTX2
  26. JaneTX2

    Celiac Genetic Test Results - Still Clear as Mud

    By JaneTX2, Last action:
    • 0 replies
    • 1.1k views
    • JaneTX2
    • JaneTX2

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  • Recent Activity

    1. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
    2. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    3. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    4. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    5. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago. The gluten will be my 4th autoimmune disease. Thanks so much for all your input!!!
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  • Posts

    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

      By heart390 · Posted

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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