Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,302 topics in this forum

  1. Nikko
    cyclinglady
    • 3 replies
    • 2.6k views
  2. DMarie1017
    cyclinglady
    • 6 replies
    • 5k views
  3. ironictruth
    • 0 replies
    • 975 views

  4. Celiac.com Sponsor (A8):
    Celiac.com Sponsor (A8):



    Celiac.com Sponsor (A8-M):



  5. yesilovecats
    cyclinglady
    • 1 reply
    • 1.6k views
  6. Kim12
    cyclinglady
    • 1 reply
    • 912 views
  7. chrisde1997
    ironictruth
    • 2 replies
    • 1.1k views
  8. Rosemilyd
    cyclinglady
    • 2 replies
    • 955 views
  9. Fibromom
    frieze
    • 5 replies
    • 1.9k views
  10. Guelphgluten91
    Jmg
    • 6 replies
    • 1.3k views

  11. Celiac.com Sponsor (A10):
    Celiac.com Sponsor (A10):

  12. at1992
    Jmg
    • 6 replies
    • 1.8k views
  13. Casy
    • 6 replies
    • 2.1k views
  14. ironictruth
    • 28 replies
    • 10.6k views
  15. Fbmb
    alioubba
    • 13 replies
    • 2k views
  16. Michaeldp
    • 3 replies
    • 2k views
  17. Tracy210t
    • 9 replies
    • 2.5k views
  18. dalek100
    Victoria1234
    • 29 replies
    • 5.9k views
  19. Peta
    Victoria1234
    • 25 replies
    • 25.2k views
  20. foobag
    cyclinglady
    • 3 replies
    • 2.6k views
  21. silvermoth
    Victoria1234
    • 3 replies
    • 5.4k views
  22. NHMom1016
    alioubba
    • 10 replies
    • 4.4k views
  23. Christory77
    tessa25
    • 10 replies
    • 2.3k views
  24. Rosemilyd
    Pocah
    • 12 replies
    • 3.2k views
  25. Divergent
    cyclinglady
    • 6 replies
    • 2k views
  26. Carlinag123
    ironictruth
    • 1 reply
    • 1.3k views
  27. mikehall117
    JaneTX2
    • 7 replies
    • 2.8k views
  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,480
    • Most Online (within 30 mins)
      7,748

    Elpho
    Newest Member
    Elpho
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Michelin tire company, since 1900, has published a guide to restaurants that is very well respected: https://guide.michelin.com/us/en/restaurants For info: https://en.wikipedia.org/wiki/Michelin_Guide
    • trents
    • cristiana
      Hi Colin I share your frustration. My coeliac disease was diagnosed in 2013 and it took some years for my  TTG levels to settle to normal levels in  blood tests.  I had to make a few significant changes at home to make sure our house was as gluten free as possible (I share a house with gluten eaters) but time and time again I found I was glutened (or nearly glutened whilst eating out  - like regular bread being served with a gluten-free meal ).  Even eating in chains that Coeliac UK were recommending as safe for coeliacs.  So I gave up eating in restaurants for a while.  My blood tests normalised.  But here's the thing:  the lowest my TTG readings ever got to were 4.5 (10  and under being my local lab's normal levels) and now that I am eating out again more regularly, they've gone up to 10 again.  I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset.  My next coeliac blood review is in September and I mean to give up eating out a few months before to see if that helps my blood results get back on track. It seems to me that there are few restaurants which really 'get it' - and a lot of restaurants that don't 'get it' at all.  I've found one restaurant in Somerset and a hotel in East Sussex where they really know what they are doing.    The restaurant in Somerset hardly uses flour in any of their dishes; the hotel in East Sussex takes in trainees from the local college, so they are teaching best standards.   But it has taken a lot of searching and trial and effort on my part to find these two places.  There are certainly others in the UK, but it seems to me the only real way to find them is trial and error, or perhaps from the personal recommendation of other strict coeliacs (Incidentally, my coeliac hairdresser tells me that if a Michelin star restaurant has to have a separate food preparation so she has never been glutened in one - I can't say I've ever eaten in one!) For the rest, I think we just have to accept that gluten may be in the air in kitchens, if not on the surfaces, and there will always be some level of risk wherever one dines, unless the restaurant cooks exclusively gluten free dishes. Cristiana  
    • RMJ
      Hopefully @cristiana will see this question, as she also lives in the UK.
    • knitty kitty
      @Theresa2407, My Non-Alcoholic Fatty Liver Disease (NAFD), now called Metabolic Dysfunction-Associated Steatotic Liver Disease (MASLD), cleared up, resolved, after supplementing with Thiamine B1 and Riboflavin B2.  "Specifically, higher intakes of vitamin B1 and vitamin B2 were negatively associated with the risk of NAFLD. Consequently, providing adequate levels of Vitamin B1 and Vitamin B2 in the daily diets of postmenopausal women could potentially serve as a preventive measure against NAFLD." Association between dietary intakes of B vitamins and nonalcoholic fatty liver disease in postmenopausal women: a cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC10621796/ High-dose vitamin B1 therapy prevents the development of experimental fatty liver driven by overnutrition https://pmc.ncbi.nlm.nih.gov/articles/PMC7988776/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.