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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,301 topics in this forum

  1. KathleenH
    plumbago

    Whats the endoscopy like?

    By KathleenH, Last action:
    • 11 replies
    • 3.3k views
    • plumbago
    • plumbago
  2. KathleenH
    ironictruth

    Testing and biopsy

    By KathleenH, Last action:
    • 18 replies
    • 4.5k views
    • ironictruth
    • ironictruth
  3. Kelloramma
    Awol cast iron stomach

    Just starting the process and would love to see if others are experiencing this

    By Kelloramma, Last action:
    • 5 replies
    • 1.5k views
    • Awol cast iron stomach
    • Awol cast iron stomach
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  4. MerZ
    ironictruth

    I know this is very common, but help with test results please?

    By MerZ, Last action:
    • 15 replies
    • 3.4k views
    • ironictruth
    • ironictruth
  5. hersheygirl9

    any south-indians diagnosed with celiacs?

    By hersheygirl9, Last action:
    • 3 replies
    • 3.5k views
    • hersheygirl9
    • hersheygirl9
  6. Ginger1012

    Extreme Hunger

    By Ginger1012, Last action:
    • 4 replies
    • 4k views
    • Ginger1012
    • Ginger1012
  7. Questioning
    ironictruth

    Deamidated Gliadin Abs: New or Old Test? Please help interpret results.

    By Questioning, Last action:
    • 5 replies
    • 1.8k views
    • ironictruth
    • ironictruth
  8. Robroc
    ravenwoodglass

    Celiac symptoms ?

    By Robroc, Last action:
    • 3 replies
    • 2.6k views
    • ravenwoodglass
    • ravenwoodglass
  9. Lakme

    Celiac Disease Suspected - I Hope So

    By Lakme, Last action:
    • 11 replies
    • 3.1k views
    • Lakme
    • Lakme
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  11. 5143Betty
    Lakme

    Anxiety

    By 5143Betty, Last action:
    • 8 replies
    • 2.7k views
    • Lakme
    • Lakme
  12. lbsteenwyk
    cyclinglady

    Elevated Iga

    By lbsteenwyk, Last action:
    • 14 replies
    • 35.6k views
    • cyclinglady
    • cyclinglady
  13. Nikkiann

    Fatigue - Where does it come from?

    By Nikkiann, Last action:
    • 5 replies
    • 1.7k views
    • Nikkiann
    • Nikkiann
  14. kitty4751
    cyclinglady

    still on this confusing journey

    By kitty4751, Last action:
    • 2 replies
    • 1.3k views
    • cyclinglady
    • cyclinglady
  15. mimiii
    GFinDC

    Interpreting test results

    By mimiii, Last action:
    • 5 replies
    • 3.7k views
    • GFinDC
    • GFinDC
  16. amyesnipes
    Gemini

    New to the gluten free life, please help!

    By amyesnipes, Last action:
    • 13 replies
    • 2.6k views
    • Gemini
    • Gemini
  17. hersheygirl9

    Tests came back negative but still feeling symptoms?

    By hersheygirl9, Last action:
    • 16 replies
    • 6.6k views
    • hersheygirl9
    • hersheygirl9
  18. Mermaid's Mom
    concernedlady

    Gluten Intolerant vs Celiac

    By Mermaid's Mom, Last action:
    • 18 replies
    • 2.5k views
    • concernedlady
    • concernedlady
  19. JM075

    Confused About Celiac Test Results, Help?

    By JM075, Last action:
    • 10 replies
    • 1.8k views
    • JM075
    • JM075
  20. Nikkiann

    Testing and Low BP

    By Nikkiann, Last action:
    • 6 replies
    • 2.5k views
    • Nikkiann
    • Nikkiann
  21. ShelbySumner
    NightSky

    Celiac testing concerns

    By ShelbySumner, Last action:
    • 5 replies
    • 1.5k views
    • NightSky
    • NightSky
  22. hersheygirl9
    Poppycat

    Celiac rash? What does it look like?

    By hersheygirl9, Last action:
    • 4 replies
    • 3.4k views
    • Poppycat
    • Poppycat
  23. Gmombutterfly
    ironictruth

    Need to understand geno test

    By Gmombutterfly, Last action:
    • 10 replies
    • 2.5k views
    • ironictruth
    • ironictruth
  24. peterjohn123
    pschwab

    Daughter's Test Results

    By peterjohn123, Last action:
    • 6 replies
    • 1.7k views
    • pschwab
    • pschwab
  25. Bizorra
    cyclinglady

    Blood test positive - long wait times for biopsy

    By Bizorra, Last action:
    • 13 replies
    • 4.6k views
    • cyclinglady
    • cyclinglady
  26. hersheygirl9

    What did you stool look like? In terms of color and texture?

    By hersheygirl9, Last action:
    • 2 replies
    • 6.3k views
    • hersheygirl9
    • hersheygirl9

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  • Recent Activity

    1. trents
      - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it. But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder...
    2. ainsleydale1700
      - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

      Thanks for the insight! It has been a whirlwind...very overwhelming and frustrating at times. But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion
    3. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      THANKS again!!!
    4. trents
      - trents replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    5. heart390
      - heart390 replied to heart390's topic in Introduce Yourself / Share Stuff
      6

      Why now?

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago. The gluten will be my 4th autoimmune disease. Thanks so much for all your input!!!
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  • Posts

    • trents
      Confused about HLA-DQ Celiac gene test result

      By trents · Posted

      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Confused about HLA-DQ Celiac gene test result

      By ainsleydale1700 · Posted

      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
    • heart390
      Why now?

      By heart390 · Posted

      THANKS again!!!
    • trents
      Why now?

      By trents · Posted

      Sorry for rambling on so much. It was not clear to me from you first post that, although you have known for several years that gluten had been causing you distress, that you had already eliminated it from your diet.
    • heart390
      Why now?

      By heart390 · Posted

      Because a close friend has had Celiac for years - I've eliminated gluten after the ER said all I had was a huge pocket of gas several years ago.  The gluten will be my 4th autoimmune disease.  Thanks so much for all your input!!!
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