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Celiac Disease Pre-Diagnosis, Testing & Symptoms
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Recent Activity
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- cristiana replied to hjayne19's topic in Traveling with Celiac Disease1Mallorca Guide
Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems... -
- trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6Insomnia help
One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess.- 1
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- cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
Insomnia help
Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety. I had awful anxiety at diagnosis, and that feeling of doom that you describe. My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me. I then got a phobia... -
- hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6Insomnia help
Hi @trents thanks so much for the insights this helps alot. These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep... -
- trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
Insomnia help
When you say "vitamin B" was normal? Which vitamin B are you referring to? Typically, physicians will only check for B12 deficiency because it can connect to iron deficiency via something called "pernicious anemia". But all the B vitamins work together in a synergistic fashion. That's why we recommend a high potency B-complex. And D3 is turning out to be...
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Hi Jayne Great choice for a gluten-free cycling holiday, I know the island well. The words you need to look for are 'sin gluten' when you are out and about. I think you will be amazed at how many packets and canned goods are clearly labelled 'sin gluten' in the supermarkets - many more than one sees here - often in quite large type. There seems to be a thought in the UK that if you label something gluten free it will affect flavour etc and will put people off buying it! However, in the case of Spain, it is almost as if the the Spanish see it as an endorsement of quality and flavour! There is a supermarket called Mercadona and they label their produce very clearly. Paella should be gluten free so long as the chef use the right stock such as Knorr or a gluten-free homemade stock - you can check. Most Mallorquins in catering speak English but if not, ask, "Contiene gluten?" Tumbet is a wonderful dish if you like peppers, tomato, aubergines, garlic and olive oil! A sort of variation on ratatouille. Slow roast lamb shank should be safe, and there are endless fish dishes to choose from and salads. Flan is made with eggs, sugar and caramel, and should be gluten-free. Lots of gluten-free ice cream and sorbets, they should be clearly labelled. If you want specific restaurant recommendations, feel free to PM me. Cristiana
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One thing to keep in mind is that it's pretty safe to take a B-complex since B vitamins are water soluble. You just pee out any excess.
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Hi @hjayne19 It sounds as if your insomnia is closely linked to your anxiety. I had awful anxiety at diagnosis, and that feeling of doom that you describe. My other symptoms were racing thoughts, and a tangible sensation of a weight bearing down on my shoulders, even if I was feeling perfectly well and happy - it would just hit me. I then got a phobia to make things worse, linked to the fact that I had was suffering hypnopompic hallucinations (brief hallucinations on waking). That was weird but I later learned they aren't all that uncommon, especially with people who suffer from aura migraines. In fact I felt so unwell that I didn't even recognise it as 'anxiety'. I remember googling my various symptoms and it was only that that made me realise I was suffering from anxiety, which was nothing like 'feeling a bit nervous before taking an exam' or , say, making a speech. This was a whole new ball game. As I came off gluten and healed, the anxiety started to get less and less. It is not uncommon for coeliacs to have anxiety on diagnosis, so I hope that is reassuring to you. And deficiencies can make it worse, or cause it, so are definitely worth investigating in further depth if you can. There is certainly a big difference between 'normal' levels and 'optimum', as @trents says, and this excerpt from a British website and explains how with B12,, for example, a normal level in one person can represent a deficiency in another: In the UK, normal B12 levels vary slightly by lab but generally, above 200 ng/L is considered sufficient, 100-145 ng/L indicates possible deficiency, and below 100 ng/L suggests likely deficiency, though levels between 146-200 ng/L may still warrant treatment if symptoms are present, as per North Bristol NHS Trust and NICE guidelines In fact, I understand levels are set much higher in other countries, such as Japan. When I started to supplement B12 with high dose sublinguals I began to feel better, even though at diagnosis my levels were considered 'low normal'. I too had a lot of muscle twitching which was likely due to deficiencies, but of course if someone has a lot of adrenaline in their system it will only make twitching worse. I remember reading on this forum one should take magnesium tablets, and it did really help. As a sportsperson you might like to try throwing a good handful of Epsom salts into a lukewarm bath, and have a soak for 20 mins, as it can be absorbed through the skin. But be careful as you leave the bath, it can make you woozy! Lastly, to address the anxiety, I found Dr Steve Llardi's book, albeit on Depression, incredibly helpful. The Depression Cure: The Six Step Programme to Beat Depression Without Drugs. Dr Llardi outlines a step-by-step plan for recovery from depression, which focuses on six key lifestyle elements that have largely disappeared in healthy doses from modern life: physical exercise, omega-3 fatty acids, natural sunlight exposure, restorative sleep, social connectedness, and meaningful, engaging activity. The other book (and there is a website) which helped me understand anxiety and recover is Paul David's, At Last a Life, written by a one-time sufferer. I live in the UK and if I could award a knighthood to anyone in this country, it would be to Paul. I am so grateful that these books crossed my path. Anyway, sorry for the length of this post. I hope something might be of help. Cristiana
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Hi @trents thanks so much for the insights this helps alot. These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels.
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When you say "vitamin B" was normal? Which vitamin B are you referring to? Typically, physicians will only check for B12 deficiency because it can connect to iron deficiency via something called "pernicious anemia". But all the B vitamins work together in a synergistic fashion. That's why we recommend a high potency B-complex. And D3 is turning out to be much more important than we ever realized. In many ways, it is a "master vitamin". And in the modern world where we spend much more time indoors than our ancestors did, we often don't get enough of it, especially if we live in northern latitudes. And it's also true that "normal" levels may not be the same as optimum levels. Ferritin is an iron storage protein. The body can rob from storage in order to maintain immediate blood levels of iron so, yes, ferritin can take longer to rebuild than hemoglobin counts. Your ferritin levels are low end of normal.
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