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Celiac Disease Pre-Diagnosis, Testing & Symptoms
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Recent Activity
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- trents replied to Charlie1946's topic in Related Issues & Disorders48Severe severe mouth pain
@Charlie1946There is a PM (Personal Message) tool built into the forum website that allows you to send a private message to other forum users. Just hover over their name with your mouse cursor and the menu containing that tool will pop up. This is useful if you want to communicate with an individual without everyone else involved in the thread seeing it.... -
- Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders48Severe severe mouth pain
Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous... -
- Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders48
Severe severe mouth pain
@trents thank you! I have only been taking 20mg 1x a day. Maybe I need to increase it. -
- Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders3New issue
Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...- 1
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- knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease44My journey is it gluten or fiber?
If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what...
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By Charlie1946 · Posted
Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! Hi everyone, I'm still trying to figure out how to each message individually. I saw one with some information on sebaceous hyperplasia but now I can't find it. I appreciate you all so much for all your responses and advice! God bless! -
By Charlie1946 · Posted
@trents thank you! I have only been taking 20mg 1x a day. Maybe I need to increase it. -
Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor.
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By knitty kitty · Posted
If you haven't noticed a difference yet, bump up your Thiamax. Add in another Thiamax with breakfast and lunch. Increase the NeuroMag as well. You can add in another Benfotiamine, too. Thiamine is safe and nontoxic even in high doses. Taking more is fine. I had to bump mine up several times when first starting. It's a matter of finding what works for you. Everyone is different. Stick with it. Some of the health improvements are very subtle and gradual. Keep going! You're doing great! -
By knitty kitty · Posted
Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all. Reacting to Casein is not the same as lactose intolerance nor a dairy allergy. Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy. When the villi grow back, the villi can resume making lactase again. I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine. Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness. Histamine release is what causes us to wake up in the morning. Unfortunately, excessive histamine can cause insomnia. Our bodies can make histamine, but foods we eat contain different amounts of histamine, too. Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems. I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne. Her book, The Paleo Approach, has been most helpful. The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract. After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet. It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables. I learned to recognize when I had consumed too much histamine from different combinations of foods. Everyone is different and can tolerate different amounts of histamine in their food. B Vitamins help us make enzymes that break down histamine. Vitamin D helps regulate and calm the immune system. Supplementing with Thiamine helps prevent mast cells from releasing histamine. Keeping a food-mood-poo'd journal helps identify problematic foods. I hope you will consider trying the AIP diet.
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