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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Jmartes71 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Frustrated
Im not being heard by my previous doctor I had for 25 years. I switched in May of this year.I was half told of my celiac disease in 1994 and to stay away from wheat and Ill be just fine.Im not.Was on tramadel from I think 2006 til 2023.In 2007 still gluten-free had blood test and showed other food allergies. I have been avoiding and reading labels so I don... -
- Mrs Wolfe replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease2Cartilage and rib pain.
Thank you. I’ll be sure to look into those. -
- N00dnutt commented on Scott Adams's article in Diagnosis, Testing & Treatment16Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
@trents True. But! in my mind; they both have the same negative impact on lifestyle and certain gastronomic freedoms. Cheers.- alternative
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- trents commented on Scott Adams's article in Diagnosis, Testing & Treatment16Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
@N00dnutt, I don't think it is correct to place celiac disease and Crohn's in the category of endocrine disorders. They are autoimmune disorders. Endocrine disorders affect organs that are glandular in nature and secrete hormones such as the pancreas and the thyroid. It is certainly true, however, that many endocrine disorders also have an autoimmune base...- alternative
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- N00dnutt commented on Scott Adams's article in Diagnosis, Testing & Treatment16
Emerging Celiac Disease Treatments: Will Any Allow Gluten Consumption Again? (+Video)
@Lotte18 G'day. Ironically, we're fairly lucky in Australia. Given the high prevelance of gluten-free and, other Endocrine disorders (Crohn's for instance), labeling laws and awareness is high, so it makes it somewhat easier to identify accessible foods. We actually have a pub that is 100% gluten-free, including the beer on-tap. The annual gluten-free...- alternative
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Posts
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Im not being heard by my previous doctor I had for 25 years. I switched in May of this year.I was half told of my celiac disease in 1994 and to stay away from wheat and Ill be just fine.Im not.Was on tramadel from I think 2006 til 2023.In 2007 still gluten-free had blood test and showed other food allergies. I have been avoiding and reading labels so I don't get sick.Im 54 years old, my right eye feels as if pressure ( seeing eye specialist) saw dermatologist and had skin graph was told ulcers but since I was disregarded of my celiac disease and it was previous doctor who sent me to dermatologist, its now " undetermined ".I pushed for the first and second ANA panel and negative. I had my 5th colonoscopy July 9 this year and colon looks great, BECAUSE IM gluten-free for 31 YEARS.Waiting on biopsy.My only celiac proof on medical was 2014 that i physically have, i don't have original. How do I get my new doctor to understand the severity of pain Im dealing with, daily flare ups.Exhausted and allergic to everything. Menopause has intensified, i feel but then again I had my 3rd covid in March 2023 and I can't bounce back.Pain down left leg always in the bathroom when I barely eat.Its affecting my life and frustrated with doctors not knowing.To be far my new doctor is having me see two specialist but how do I get him to understand its my false negative celiac disease????
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I was diagnosed with microscopic colitis and celiac a couple of years ago. The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off. After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission. Since I am also diabetic, I was started on metformin and Jardiance. Metformin by itself helped moderately. I added Jardiance and I was much better. I stopped the metformin and relapsed and when I added it back, I regained remission. I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut. Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines. Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance. Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term. There is a Facebook group that can be very informative and helpful. Look for "Microscopic Colitis and Lymphocytic Colitis Support Group. You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
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By knitty kitty · Posted
Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers. I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6. Together these vitamins have an analgesic effect. I think it works better than OTC pain relievers. I also like "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" . It's all three vitamins together in one pill. Works wonderfully! -
By knitty kitty · Posted
It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels. The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies. Thiamine Vitamin B1 helps the thyroid function. I like Benfotiamine and TTFD Thiamax.
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