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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,237 topics in this forum

  1. TammyK
    • 5 replies
    • 2.1k views
  2. Caeryn23
    Ursa Major
    • 1 reply
    • 1.1k views
  3. pewpewlasers
    GlutenGalAZ
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  5. drjsparker
    • 10 replies
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  6. mhb
    GFinDC
    • 12 replies
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  7. Saladin
    white ridges
    • 4 replies
    • 1.2k views
  8. delicatefade
    jerseyangel
    • 7 replies
    • 1.7k views
  9. Fiddle-Faddle
    ravenwoodglass
    • 2 replies
    • 1.1k views
  10. rainbowgoddess
    ravenwoodglass
    • 5 replies
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  12. sleepybeauty
    ShayFL
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  13. ohsotired
    • 14 replies
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  14. Tyefromnj
    • 7 replies
    • 2k views
  15. Myrna
    • 8 replies
    • 1.4k views
  16. teke
    ShayFL
    • 1 reply
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  17. fnord
    veggienft
    • 10 replies
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  18. ginnym
    • 7 replies
    • 2.7k views
  19. leadmeastray88
    Sweetfudge
    • 6 replies
    • 2k views
  20. Gerri
    splash
    • 47 replies
    • 8.1k views
  21. ppeterin
    • 4 replies
    • 1.5k views
  22. ohsotired
    jewlesD
    • 8 replies
    • 3.8k views
  23. canuckchick
    GFinDC
    • 5 replies
    • 3.9k views
  24. marie06
    tipnpat
    • 5 replies
    • 3.2k views
  25. mirabella
    • 0 replies
    • 1.2k views
  26. TammyK
    lovegrov
    • 12 replies
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  27. tipnpat
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  • Posts

    • Scott Adams
      Thanks for sharing this info! Frustrating to see companies who haven't used wheat as an ingredient start to do so! https://blistex.com/product/five-star-lip-protection/
    • Emily P.
      As of July 2025, Blistex is no longer gluten free for their five star protection lip balm The last ingredient is WHEAT! From Blistex' website, ingredient list for 5 Star Protection;: "Inactive Ingredients: bis-diglyceryl polyacyladipate-2, bis-stearyl dimethicone, butyloctyl salicylate, C12-15 alkyl benzoate, calendula officinalis extract, caprylic/capric triglyceride, carthamus tinctorius (safflower) seed oil, cetyl dimethicone, citric acid, euphorbia cerifera (candelilla) wax, flavor, microcrystalline wax, myristyl myristate, octyldodecanol, oryzanol, ozokerite, panthenol, phenoxyethanol, sorbic acid, stearyl behenate, sucralose, tetrahexyldecyl ascorbate, tocopheryl acetate, triticum vulgare (wheat) germ oil"
    • knitty kitty
      I followed the Autoimmune Protocol Diet to get my symptoms calmed down and my nutrients up.   I know what a struggle it is.  You're why I'm here. Smoothing out some rough parts of your journey makes my journey worthwhile. Here's the tests you can get for Celiac antibodies...  
    • knitty kitty
      @Ginger38, I'm with you!   I could not take Metformin.  I got so sick, constant diarrhea, abdominal cramps, extreme highs and lows, no energy, weight loss, muscle wasting.  Just horrible.   Metformin is known to block thiamine absorption.  Talk to your doctor about thiamine deficiency.  It's called Gastrointestinal Beriberi.  My doctor didn't recognize thiamine deficiency outside of alcoholism.  So I took over the counter Thiamine in the form Tetrahydrofurfuryl Disulfide and felt health improvement within an hour.  Magical!   I followed the Autoimmune Protocol diet to get my stomach calmed down and control my blood glucose levels without medication. Being diabetic, we lose more thiamine through our kidneys, and the Metformin on top of it and malabsorption from Celiac.  Talk to your doctor soon!
    • Jmartes71
      Thankyou I will be seeing my new primary this coming Monday and will ask.I did ask about some other blood test to look for that I saw on this website.I pushed the second ANA panel two months ago thinking it would show but found out it doesn't.I don't have lupus which seems what the ANA panel seems to only look for.I have come to the conclusion that doctors are like hair people meaning all hair places know how to cut hair and style but not all know how to grow hair.I was given tramadel for nearly 20 years to push through. I literally can't no more and stopped taking tramadel since I was swelling slowly in the belly.I will diffently show new primary this website and hopefully he will help.Its so hard because im falling apart with my eye, skin and read every label and stay away from what Im not supposed to.I had SIBO test done and it died on me and didn't complete all 8 breathes just the 5.I spoke to np and was finally validated by word of mouth.Cone to find out I have to repeat again.I went to a reputable hospital to be let down.I have to redo breath test but want to do at hospital instead of at home so no issues.Its not pleasant drinking that glucose stuff and not getting a direct answer. I live in Northern Cali.What recommended gi would know about celiac  disease, really know because I thought I found one but didn't. I don't want to digest any wheat, dairy, peanuts, rye, barely, eggs,garlic, walnuts because I get sick.When i showed the reputable hospital my past food allergies i was told that test is old.My thoughts were i was made in 1971 and its still avtive with diagestive issues. 
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