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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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  • Recent Activity

    1. - TheDHhurts replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Prana Organics no longer GFCO-certified

    2. - TheDHhurts replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      need help understanding testing result for Naked Nutrition Creatine please

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      Insomnia help

    4. - Peace lily replied to AristotlesCat's topic in Super Sensitive People
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      Gluten Free Coffee

    5. - Peace lily commented on Scott Adams's article in Winter 2026 Issue
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      Can You Really Trust Gluten-Free Menus? What Every Celiac Needs to Know Before Eating Out

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    • TheDHhurts
      Updating to note that it has been over a month since I initially wrote Prana and they haven't provided a response to my question about what testing limits (ppm) they use now. I've sent them a couple reminder emails but nothing. Booo.
    • TheDHhurts
      I wrote them back seeking clarification on their testing. The response was that they test to ensure the product is 5 ppm or under. So far no trouble with the product but I hate to see these companies drop the outside certification.  
    • knitty kitty
      Yes, @hjayne19, This is what I was saying in my post on January 15th and suggested the low histamine Autoimmune Protocol Diet which eliminates high histamine foods and histamine releasing foods.    
    • Peace lily
      Well this is what happen to me . I was still having a little problem with constapation and stomach problems and I’m the only one in the kitchen . I started looking into coffees and it seem like the flavors were the ones to avoid I use k pods.well that wasn’t it I just used breakest blend . Then I found out it was the caramel syrup I was using in my coffee.torino . I never thought that but you have to look at everything. peace lily
    • hjayne19
      Hi @knitty kitty just covering back to this topic. I appreciate everyone’s help. Dairy was definitely adding to some of my issues but I wanted to ask about histamine. When I was working with my dietician I mentioned I got a stuffy nose when I was eating strawberries which I had just noticed one day in particular. Once I looked more into this I realized that histamine peaks at night and can cause insomnia exactly as I had been describing before. Working with her I realized while I wasn’t eating a lot of high histamine foods, I was eating a lot of histamine triggering or releasing like bananas (I was having several a day) and strawberries. Also some nights are worse than others but I also discovered meat sitting out even for a day can increase in histamines especially salmon which I eat quite a lot of even though I thought I was getting it fresh. Just wanted to know your thoughts and I’m just curious how this ties into celiac and leaky gut. 
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