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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,294 topics in this forum

  1. sarahelizabeth
    tiffjake

    Overweight... Could It Still Be Celiac?

    By sarahelizabeth, Last action:
    • 17 replies
    • 4.5k views
    • tiffjake
    • tiffjake
  2. Cheli
    Ursa Major

    Just Got Back Celiac Panel Results Back

    By Cheli, Last action:
    • 11 replies
    • 1.9k views
    • Ursa Major
    • Ursa Major
  3. dog lover

    Which Lab Is Best For Testing

    By dog lover, Last action:
    • 4 replies
    • 2.1k views
    • dog lover
    • dog lover
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  4. venice-boy
    penguin

    I'm From Venice(italy),i Have A Important Question

    By venice-boy, Last action:
    • 7 replies
    • 2.1k views
    • penguin
    • penguin
  5. Ursa Major

    Answer To Inquiry From Enterolab

    By Ursa Major, Last action:
    • 11 replies
    • 2.4k views
    • Ursa Major
    • Ursa Major
  6. MattUK
    Ursa Major

    Need Your Advice

    By MattUK, Last action:
    • 11 replies
    • 1.9k views
    • Ursa Major
    • Ursa Major
  7. mamatide
    key

    So Why Am I Having Symptoms Now?

    By mamatide, Last action:
    • 7 replies
    • 2.1k views
    • key
    • key
  8. JerryK
    penguin

    Getting A Little Scared Now...

    By JerryK, Last action:
    • 9 replies
    • 1.8k views
    • penguin
    • penguin
  9. eden-arteaga
    chrissy

    Should I Be Tested For Celiac's?

    By eden-arteaga, Last action:
    • 3 replies
    • 1.8k views
    • chrissy
    • chrissy
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  11. CarrieBoo
    Felidae

    Need To Vent

    By CarrieBoo, Last action:
    • 7 replies
    • 1.9k views
    • Felidae
    • Felidae
  12. Guest AutumnE
    indyceliac

    New With Questions Not Diagnosed Yet

    By Guest AutumnE, Last action:
    • 9 replies
    • 2k views
    • indyceliac
    • indyceliac
  13. CarlaB
    mouse

    Daughter's Enterolab Results

    By CarlaB, Last action:
    • 6 replies
    • 2.3k views
    • mouse
    • mouse
  14. Chako
    NSG

    Craving What Hurts You?

    By Chako, Last action:
    • 10 replies
    • 2.9k views
    • NSG
    • NSG
  15. blaze615
    lonewolf

    Help! I Dont't Know If I'm A Celiac/gluten Sensative

    By blaze615, Last action:
    • 6 replies
    • 6k views
    • lonewolf
    • lonewolf
  16. Chako
    ravenwoodglass

    What Do You Feed A Kid For A Gluten Free Trial

    By Chako, Last action:
    • 4 replies
    • 1.6k views
    • ravenwoodglass
    • ravenwoodglass
  17. PirateGen
    Nancym

    How Do I Deal With This?

    By PirateGen, Last action:
    • 11 replies
    • 2.2k views
    • Nancym
    • Nancym
  18. wolfie
    Guest

    Ds Ttg Was Very High...ped Just Called With Results

    By wolfie, Last action:
    • 10 replies
    • 2k views
    • Guest
    • Guest
  19. JerryK
    brendygirl

    Check Out These Pictures Of My Teeth

    By JerryK, Last action:
    • 12 replies
    • 7.1k views
    • brendygirl
    • brendygirl
  20. JerryK
    brendygirl

    Results Of My Mini Gluten Challenge

    By JerryK, Last action:
    • 10 replies
    • 1.8k views
    • brendygirl
    • brendygirl
  21. CTMechE
    brendygirl

    Looking To Talk To My Doctor Next Week

    By CTMechE, Last action:
    • 5 replies
    • 1.9k views
    • brendygirl
    • brendygirl
  22. SuperBeck
    floridanative

    Please Help Interpret Blood Test Results

    By SuperBeck, Last action:
    • 2 replies
    • 2.8k views
    • floridanative
    • floridanative
  23. barilla
    dlp252

    Endoscopy

    By barilla, Last action:
    • 2 replies
    • 1.4k views
    • dlp252
    • dlp252
  24. JerryK
    lindalee

    Hmmmm, Different Problems Now...

    By JerryK, Last action:
    • 6 replies
    • 1.4k views
    • lindalee
    • lindalee
  25. I'm Hungry
    Ursa Major

    Help...i'm New

    By I'm Hungry, Last action:
    • 3 replies
    • 1.8k views
    • Ursa Major
    • Ursa Major
  26. rachellek
    Willow5

    Blood Testing

    By rachellek, Last action:
    • 3 replies
    • 1.6k views
    • Willow5
    • Willow5

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  • Recent Activity

    1. trents
      - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal...
    2. trents
      - trents replied to mike101020's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      EMA Result

      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated...
    3. Scott Adams
      0

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. Wheatwacked
      - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Have I got coeliac disease

      Vitamin D status in the UK is even worse than the US. vitamin D is essential for fighting bone loss and dental health and resistance to infection. Mental health and depression can also be affected by vitamin D deficiency. Perhaps low D is the reason that some suffer from multiple autoimmune diseases. In studies, low D is a factor in almost all of the...
    5. islaPorty
      - islaPorty replied to Jillian83's topic in Coping with Celiac Disease
      9

      Celiac and dermatitis herpetiformis has taken Me from Me

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  • Posts

    • trents
      EMA Result

      By trents · Posted

      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
    • trents
      EMA Result

      By trents · Posted

      Welcome to the celiac.com community, @mike101020! First, what was the reference range for the ttg-iga blood test? Can't tell much from the raw score you gave because different labs use different reference ranges. Second, there are some non celiac medical conditions, some medications and even some non-gluten food proteins that can cause elevated celiac blood antibodies in some individuals. The most likely explanation is celiac disease but it is not quite a slam dunk. The endoscopy/biopsy is considered the gold standard for celiac disease diagnosis and serves as confirmation of elevated blood antibody levels from the blood testing.
    • Wheatwacked
      Have I got coeliac disease

      By Wheatwacked · Posted

      Vitamin D status in the UK is even worse than the US.  vitamin D is essential for fighting bone loss and dental health and resistance to infection.  Mental health and depression can also be affected by vitamin D deficiency.  Perhaps low D is the reason that some suffer from multiple autoimmune diseases.  In studies, low D is a factor in almost all of the autoimmune diseases that it has been studied in. Even while searching for your diagnosis, testing your 25(OH)D status and improving it my help your general wellness. Vitamin D Deficiency Affects 60% in Britain: How to Fix It?    
    • islaPorty
      Celiac and dermatitis herpetiformis has taken Me from Me

      By islaPorty · Posted

    • mike101020
      EMA Result

      By mike101020 · Posted

      Hi, I recently was informed by my doctor that I had scored 9.8 on my ttgl blood test and a follow up EMA test was positive.   I am no waiting for a biopsy but have read online that if your EMA is positive then that pretty much confirms celiac. However is this actually true because if it it is what is the point of the biopsy?   Thanks for any help 
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