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  • Posts

    • Scott Adams
      It's too bad they didn't diagnose her based on the positive tTg-IgA blood tests + family history. Marsh 3A does confirm celiac disease, but it’s great that the damage isn’t extensive! Even with moderate changes, symptoms can vary widely. Strict gluten-free eating should help heal the gut over time. 
    • Ronnie d
      Pablohoyasaxa, were you ever taking dapsone? it would have knocked your blisters out within a week.  
    • Betsy Crum
      Hello everyone I have been gluten free since 2007. I never had any testing done but all my symptoms ( headache, fatigue, diarrhea, brain fog etc..) disappeared when I stopped eating gluten. For the last 15 years or so, when I accidently eat gluten I get severe chest pains that last around 5 or 10 minutes sometimes I can barely breath. This is my only real symptom. The weird thing is that recently I have had this exact same chest pain without having any wheat ( I know I had no gluten). My whole world is getting tossed upside down with this. How can this pain be happening when I haven't had gluten? Was this never really a gluten symptom? Do I have a new intolerance? I'm so confused why I would have this pain without having gluten. Any thoughts?
    • joleenrae
      We had the follow up endoscopy 1 year out from the first one. We left that day and they said visually it looked good so he thought she'd be negative again. Results came back this week as celiac sprue present and level Marsh 3A. So she doesn't have much damage but she is now positive for celiacs... Just thought I'd post in case in takes anyone else a year to get a diagnosis.
    • Scott Adams
      @thejayland10, did you read this article?  
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