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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- lalan45 replied to GlorietaKaro's topic in Super Sensitive People6Am I nuts?
You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious. -
- knitty kitty commented on Scott Adams's article in Ataxia, Nerve Disease, Neuropathy, Brain Damage and Celiac Disease2Could Gluten and Alzheimer’s Be Linked? New Research Uncovers Surprising Protein Parallels (+Video)
Thiamine deficiency has been found in the brains of people with amyloid-beta plaques. Benfotiamine, a form of Thiamine, has been shown to prevent the formation of and remove those amyloid-beta peptides and plaques! Benfotiamine improves cognitive impairment and reduces inflammation. Benfotiamine helps improve blood glucose utilization. Malabsorption...- alzheimer’s
- alzheimer’s disease
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- SamAlvi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0High TTG-IgG and Normal TTG-IgA
Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL -
- trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Small Bowel Resection 12 inches
You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve. -
- Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Small Bowel Resection 12 inches
I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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Posts
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You’re not crazy—some people have severe neurological and physical reactions to gluten, not just digestive issues. While testing can be tricky without eating gluten, documenting symptoms and seeing a specialist familiar with atypical celiac or gluten-related disorders can help. Your reactions are real, and it’s valid to be cautious.
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Anti TTG (IgA) 2.430 U/mL Anti TTG (IgG) 288.2 U/mL
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You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
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I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results. Thank you
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Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications. Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
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