Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sauerkraut-Very Bad Reaction.


Gin52

Recommended Posts

Gin52 Newbie

I am not officially dignosed yet but have been trying to stick to as much gluten-free as possible. Less painful.

Anyway, I had labeled gluten free beef hot dogs and saukerkraut last night. No bread. Never had a problem with either before. But last night, about an hour after eating. I have such horrible bloating, cramps and gas pains like I never had in my life. Thought saukerkraut was ok.

I couldn't pass gas either but felt like I needed to or go to the bathroom.

Tried some yoga positions that I found on the Internet to try to move gas. After about 2 hrs of this, I was able to go the bathroom and it was not stool-like at all but very watery and I could actually see pieces of mushrooms that I had for dinner the night before. This happened several times.

This morning's was basically nothing and still have some minor bloating and pains.

What happened? This is all new to me.

Thanks

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Hard to know.  Could be what you ate yesterday.  Could be a touch of food poisioning.  Could be a stomach virus.  Etc.  

nvsmom Community Regular

Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

frieze Community Regular

what in heaven are they  PUTTING anything but salt and cabbage in a sauerkraut jar?

Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

Gin52 Newbie

It was a can of store brands

Ingredients are

 

prepared cabbage

water

salt

 

That's it. Pretty sure not food posioning because hubby ate the same.

It is normal to have undigested food in "bowel movement" about 36 hrs later?

kareng Grand Master

It was a can of store brands

Ingredients are

 

prepared cabbage

water

salt

 

That's it. Pretty sure not food posioning because hubby ate the same.

It is normal to have undigested food in "bowel movement" about 36 hrs later?

Yes. Damaged intestines will do that.

One thing we should point out is - you must be eating gluten to get positive blood tests and endoscopy.

Lisa Mentor

Most jarred saurkraut sold in stores has gluten in it - or at least I remember being really disappointed 9 months ago when I had to get rid of mine because it had gluten, and then being even more disappointed when I couldn't find a safe brand... I haven't rechecked that though. 

 

Red cabbage is often contaminated too - I have a jar of Kiihne red cabbage in the fridge for hubby that has glucose-fructose from wheat (according to the label)... no idea if that's safe but I chose safer rather than sorry.

 

Hope you feel better

I have never seen jarred sauerkraut that contained gluten. Generally, it's just cabbage, water, salt, juniper berries and carraway seeds.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

some manufacturers use vinegar.  i have skipped buying some brands (pickles, too) because it just says "vinegar" - not distilled vinegar, so better safe than sorry?  it doesn't matter anymore; i just grow cabbage and make my own (salt.  cabbage.  the end.)  :)

jhol Enthusiast

hi dont know if this helps or not,
 
i dont have any gastro problems at all - but i had the most horrible symptoms one night after a meal at my friends house. this was before i went on the gluten and dairy free diet.i retried everything i ate that night - it was the coleslaw!!! ive put it down to either the cabbage or the vinegar.

ive not tried any of them since because it totally freaked me out - thought i was dying, hot,cold, shivvery, sat on the toilet- no need to say any more lol. then i heard this gurgling groan sound ( the sort of thing you hear when watching a horror movie lol)i actually looked behind me to see where it had come from!!! then i realised it was from my stomach!!!

 

well like i said- dont know if it helps but maybe your intestines just get to a point where they cant cope any more. ive not had any problems since - touch wood!!!   you could try eating a bit of each and see which one actually caused the problem! as for undigested food it just means you are not absorbing your food properly - a symptom of damaged intestines.maybe you have reached the point where you have to change your diet in some way.hope you get the diagnosis you need - even if you dont - like me - i was negative for celiac - you could find that the diet helps.

good luck anyways :)

Gin52 Newbie

Yes, I'm staying on gluten. I still eat my Thin Mint cookies. Gotta finish those girl scout cookies but 2 or 3 at a time. Pop-Tarts and do have bread, but just a bit. Just trying to not overdo it. That was actually a regular meal for us. He just happened to buy those hot dogs because they were on sale. Sabrets and it had a certified gluten-free symbol on the front.

I was getting the grugling, rumbling just about all the time. Mine is mostly on my right side after certain meals and I can pretty much trace it to breads, especially my favorite rye bread sandwiches. Yes, it's scary and annoying. Along with the stomach ache. That's the first time the bathroom trip results in that and gas has been that bad. I seen bits of food, like blueberries, once not to long ago before from blueberry pancakes but it didn't didn't seem to cause any problems.(non-gluten) That was new for me.

I'm going to try that.  A bit of each and see.

I love coleslaw, I hope I can eat that.

But I did learn some yoga moves, that was fun in the middle of the night-lol.

jhol Enthusiast

hi,

 just had another thought on the matter- i wonder if the manufacturer of the sausages has modified the recipe recently - maybe you could email them. sometimes its easy to get hung up on the gluten. even though they were gluten free they could of added a new herb or spice to the mix - its just a thought!

 

with my own experience with coleslaw  i tried 2 different types a value brand and a luxury brand - it was the value brand that caused the problem - it was the one that had more fillers, preservatives ect.   its still put me off coleslaw for life though lol

Pegleg84 Collaborator

If you're still eating gluten in preparation for your biopsy, then you could have your explanation right there. Even though the sauerkraut should have been perfectly safe, because your intestines are damaged (if you indeed do have Celiac) they decided: Nope, can't digest this stuff today! Sausages can also be hard on a damaged gut, even if they're perfectly gluten-free. 

Hopefully after your biopsy and some healing time you'll be able to handle it again.

  • 3 weeks later...
Brandiwine Contributor

I am not officially dignosed yet but have been trying to stick to as much gluten-free as possible. Less painful.

Anyway, I had labeled gluten free beef hot dogs and saukerkraut last night. No bread. Never had a problem with either before. But last night, about an hour after eating. I have such horrible bloating, cramps and gas pains like I never had in my life. Thought saukerkraut was ok.

I couldn't pass gas either but felt like I needed to or go to the bathroom.

Tried some yoga positions that I found on the Internet to try to move gas. After about 2 hrs of this, I was able to go the bathroom and it was not stool-like at all but very watery and I could actually see pieces of mushrooms that I had for dinner the night before. This happened several times.

This morning's was basically nothing and still have some minor bloating and pains.

What happened? This is all new to me.

Thanks

If you do have Celiac and you are still eating gluten foods than your digestive system can't begin to heal and is probably getting more damage, for a gluten free diet to work for Celiac you have to completely cut out the gluten. I understand you may want to get positive test results first but if you do have Celiac these symtoms make sense, if your intestine is damaged it won't properly digest foods and the cabbage could set off some discomfort because it is a very gassy food, I would stick to mild, simple foods until you have time to heal some and try the cabbage again then.

pricklypear1971 Community Regular

I agree, if you are sensitive to gluten and are eating it, all bets are off.

I have has reactions 24 hours after eating from cross contamination.

24 hours.

Now, in retrospect I NEVER could have connected my stomach upset with gluten, without going gluten-free for a long period (then experiencing a glutening). I mean, who in the hell gets sick from what they ate 24 hours later (unless its some sort of food poisoning)?

In short - until you go gluten-free and heal for a year or so...assume reactions are associated with intestinal damage caused by Celiac unless you notice an obvious pattern (like eating cheese always makes you sick).

Celiac damaged intestines are like 2 year old kids - completely unpredictable and guaranteed to be stubborn and throw a fit.

cahill Collaborator

I agree, if you are sensitive to gluten and are eating it, all bets are off.

I have has reactions 24 hours after eating from cross contamination.

24 hours.

Now, in retrospect I NEVER could have connected my stomach upset with gluten, without going gluten-free for a long period (then experiencing a glutening). I mean, who in the hell gets sick from what they ate 24 hours later (unless its some sort of food poisoning)?

.

My reaction to gluten is  26 hours later ,,, almost to the min.,,,, that was very helpful knowledge ( once I figured it out  :P  )

pricklypear1971 Community Regular

My reaction to gluten is 26 hours later ,,, almost to the min.,,,, that was very helpful knowledge ( once I figured it out :P )

Mine was right at 22 1/2 hours. Now I think it's gone to 5 minutes. Seriously. What kind of ride am I on???

cahill Collaborator

Mine was right at 22 1/2 hours. Now I think it's gone to 5 minutes. Seriously. What kind of ride am I on???

 The fun filled roller coaster ride that is celiacs ,,, all the ups,downs , twists and turns you never invisioned in your dreams ( or nightmares :P  )

 

The bad days do get further and further apart , the good days happen more and more often B)

 

 

** need to note *** I did have an immediate ( and I do mean immediate) reaction once. I bit in to a Twizzlers and immediately got a head rush. I knew something was wrong so I spit it out ,lol my coworkers must have thought I was nuts.  :lol:  I looked at the ingredient list and sure enough wheat was the first ingredient :ph34r: 

  • 3 years later...
Imissoreos Newbie

Homemade sauerkraut is gluten free.  I have had 3 reactions to MUSHROOMS , which is a fungus that grows on wheat, barley, and rye.  Amazing how many celiacs don't know this.  If the sauerkraut you ate had beer in it (which is common) of course it is not gluten free.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    3. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues

    5. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      23

      Headaches / Migraines and Hypoglycaemia


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,149
    • Most Online (within 30 mins)
      7,748

    dvyoung
    Newest Member
    dvyoung
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
    • knitty kitty
      Some people have difficulty processing tyrosine.  Cut out the nuts and cheese and see if there's any difference.  Everyone is different. This study shows that tyrosine can affect our brain with detrimental effects as we age. Neuro-Cognitive Effects of Acute Tyrosine Administration on Reactive and Proactive Response Inhibition in Healthy Older Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6084775/ "In conclusion, we show age-related effects of tyrosine administration especially on proactive, not reactive, response inhibition, accompanied by signal changes in dopamine-rich fronto-striatal brain regions. Specifically, we observed that tyrosine’s effect on brain and cognition became detrimental with increasing age, questioning the cognitive enhancing potential of tyrosine in healthy aging."
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.