Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New At This.

GlutenStinks15

Recommended Posts

GlutenStinks15 Explorer
GlutenStinks15
Posted

I was diagnosed a month ago and am still somewhat reeling. I have always been a label reader, now I'm just looking for gluten/wheat/barley/rye/farina/etc in addition to everything I was looking for prior to this.

 

I purchased this book: Open Original Shared Link to use as a guide. If something's in this book, then I look to purchase it but still check the label because I know that companies change ingredients and processing equipment/procedures at the drop of a dime.

 

I have found that Outback Steakhouse and Pizzeria Uno's have good gluten free menus and Outback even has a flourless brownie (and it's yummy.)

 

Trader Joe's was always someplace I shopped, now I'm there more often.

 

My symptoms are getting better, but I'm not sure how long it will be before they are gone.

 

Finding this site and the forums has been a great help. Until now I was just a voyeur, reading posts and getting information, but today I wanted to introduce myself, say hello, and say thank you to all of you because your posts are helping me every day.

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dani nero Community Regular
dani nero
Posted

Welcome, nice to meet you, and congratulations on starting your journey of healing :-)

IrishHeart Veteran
IrishHeart
Posted

Welcome to the family! :)

 

May I direct you to: 

 

(1) this thread for newbies

 

https://www.celiac.com/forums/topic/91878-newbie-info-101/

 

 

 

and  

(2)   I recommend:

 

"Find Me Gluten Free"  for dining out

 

and

 

(3) I also recommend this must-read book:

 

Real Life with Celiac Disease

by Melinda Dennis and Daniel Leffler

 

Best wishes to you! we're here for you!

1desperateladysaved Proficient
1desperateladysaved
Posted

Greetings Glutey,

 

I hope all continues going well for you!

 

Diana

mickey1975 Newbie
mickey1975
Posted

Hi guys, my name is Michael I'm 38 years old and i've known for certain I have had celiac disease for about a year. However I do not know how long I've been living with this disease nor do I know the extent of the damage done. I have been avoiding things with gluten for the better part of a year but as of recent i've gotten serious about avoiding all things with wheat. My question is; does early or moderate stages of villious atrophy reverse its self over time if strict adherance to the proper diet is maintained?

 

psawyer Proficient
psawyer
Posted

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

mamaw Community Regular
mamaw
Posted

Hello & Welcome....you  have found  a  great  place  ......

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anti-soprano Apprentice
anti-soprano
Posted

Hello Gluten Stinks (great name!) and Michael!  I wish both of you luck on your gluten-free journey.  

 

Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat.  Maybe I'm missing something? It certainly wouldn't be the first time!  :)  But your statement makes me believe you haven't excluded all gluten. Please correct me sternly if need be!  I would encourage being strict about your diet earlier rather than later.  Believe you me, you don't want years and years of damage (and if you're eating gluten in any amount- there will be damage given your diagnosis).  Let us know if we can help.  

 

Shellie

cyclinglady Grand Master
cyclinglady
Posted

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

Wow!  That's what I want to hear from my doctor in five years!!!!!  I have complete confidence that I will adhere strictly to the gluten-free diet, since I've been taking care of my gluten-free hubby for the past 12 years and I've never glutened him (restaurants have though.....)  I have been worried about healing based on the research I've seen, so it's great to find a someone who is well!  

 

Thanks!

GlutenStinks15 Explorer
GlutenStinks15
Posted
  • Author

Hello Gluten Stinks (great name!) and Michael!  I wish both of you luck on your gluten-free journey.  

 

Michael, I'm a bit confused about how you've been avoiding gluten, but just now have gotten serious about avoiding wheat... cause gluten is in wheat.  Maybe I'm missing something? It certainly wouldn't be the first time!  :)  But your statement makes me believe you haven't excluded all gluten. Please correct me sternly if need be!  I would encourage being strict about your diet earlier rather than later.  Believe you me, you don't want years and years of damage (and if you're eating gluten in any amount- there will be damage given your diagnosis).  Let us know if we can help.  

 

Shellie

Thank you all for your replies :)

When I first got diagnosed I felt really lost until I found this forum.

 

Michael, the first thing I did was research, research, research. The more you know about gluten, and especially what ingredients it is hiding in, the better armed you are to keep it out of your stomach! I went to see a nutritionist twice, and am constantly emailing companies for information.

IrishHeart Veteran
IrishHeart
Posted

 I have been worried about healing based on the research I've seen, so it's great to find a someone who is well!  

 

There are many of us on here who can tell you they are well and healing. Some of us came back from the "walking dead" even.

 

Hang in there. Time and patience. These two things are essential. :)  

w8in4dave Community Regular
w8in4dave
Posted

I love the newbie thread !! I am also new at this!! Cannot w8 to learn more!! And more and more!! 

eers03 Explorer
eers03
Posted

Welcome, Michael,

 

Yes, the vast majority of people do heal after time on a strict gluten-free diet. I had significant damage at the time of my diagnosis. A follow-up examination five years later found no evidence at all of celiac disease in my intestines.

Thanks for sharing this.  VERY encouraging!

notme Experienced
notme
Posted

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....  ;)

 

welcome to the best club you never wanted to join lolz 

GlutenStinks15 Explorer
GlutenStinks15
Posted
  • Author

Agreed. This place really did save me. I was ready for despair, and found you all and my outlook changed almost immediately.

 

Thank you AGAIN!!!!   :D

IrishHeart Veteran
IrishHeart
Posted

I love the newbie thread !! I am also new at this!! Cannot w8 to learn more!! And more and more!! 

 

Yaay!! Your positive attitude will help your recovery and adaptation to this "new normal" more than anything else!! :)

IrishHeart Veteran
IrishHeart
Posted

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....   ;)

 

welcome to the best club you never wanted to join lolz 

 

yes, we DO know you  :lol:  and yes, "the best club you never wanted to join" --classic!!!

 

Agreed. This place really did save me. I was ready for despair, and found you all and my outlook changed almost immediately.

 

Thank you AGAIN!!!!   :D

 

Yaay!!  :lol: hang in there, hon--it gets better and better!

HarryCat Newbie
HarryCat
Posted

HI Gluten Stinks and The Rest,

 

I too am a recent entrant into the Coeliac mind field. I was diagnosed with no symptoms (during a routine check up) and since then things have taken a turn for the worse! Now that I am trying to keep gluten out of my diet I am finding myself reacting to it if I accidentely eat it. Tonsilitis set in not too long after the diagnosis for two months closely followed by the office cold/flu that is going around.

 

I am very much looking forward to the day that things start to improve. Heading to the toilet 6-7 times a day and feeling constantly constipated is starting to take its toll. As is no exercise and just being constantly exhausted.

 

However, this site and these forums give me hope that things will improve and hopefully I can stop being such a wind bag (in more ways then one!).

 

Thanks for all the info - it's very much appreciated.

 

Cheers

HC

GlutenStinks15 Explorer
GlutenStinks15
Posted
  • Author

HI Gluten Stinks and The Rest,

 

I too am a recent entrant into the Coeliac mind field. I was diagnosed with no symptoms (during a routine check up) and since then things have taken a turn for the worse! Now that I am trying to keep gluten out of my diet I am finding myself reacting to it if I accidentely eat it. Tonsilitis set in not too long after the diagnosis for two months closely followed by the office cold/flu that is going around.

 

I am very much looking forward to the day that things start to improve. Heading to the toilet 6-7 times a day and feeling constantly constipated is starting to take its toll. As is no exercise and just being constantly exhausted.

 

However, this site and these forums give me hope that things will improve and hopefully I can stop being such a wind bag (in more ways then one!).

 

Thanks for all the info - it's very much appreciated.

 

Cheers

HC

HC,

Things really will improve. In a little over four weeks my symptoms are reduced. It can take many months for them to completely go away (I am told) but you will see and feel the change.

My stomach cramping went away rather quickly, and that was the most painful symptom for me. Sometimes I'd be doubled over...

Hang in there!!

eers03 Explorer
eers03
Posted

when i was a newb, this place saved my life.  i would say "sanity" but y'all know me....   ;)

 

welcome to the best club you never wanted to join lolz 

Well said.  I'm kinda feeling the same way.  It helps me a lot.

GottaSki Mentor
GottaSki
Posted

Welcome!!! 

 

I'm stealing from Notme....

 

The most awesome club you never wanted to join!!!  or something like that ;)

 

We've all been thru it...so hang out and keep laughing -- it really does make everything better.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,661
    • Most Online (within 30 mins)
      7,748
    Diver Belle
    Newest Member
    Diver Belle
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Julie 911
      Medication

      By Julie 911 · Posted

      I finally got rhe answer and Tylenol is ok. Thanks everyone 
    • dublin555
      Medication

      By dublin555 · Posted

      Hey Julie! I was in a similar situation before my biopsy and my gastro said Tylenol was fine. Just avoid ibuprofen or anything anti-inflammatory until you're cleared. Hope your surgery goes smoothly!
    • trents
      Medication

      By trents · Posted

      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      Medication

      By knitty kitty · Posted

      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.