Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Gs Really In Our Heads?

ChefV

By ChefV
in Coping with Celiac Disease

Recommended Posts

ChefV Newbie
ChefV
Posted

I'm not sure if he wrote this article for the fun of it or what? what are you thoughts about it? is it really all in our head?

 

Open Original Shared Link

cleardot.gif

V

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Alan Levinovitz is an assistant professor of Chinese philosophy and religion at James Madison University.

 

 

Don't think that makes him an expert on Celiac Disease or NCGI.  I usually don't seek my medical advice from Assistant professors of philosophy.  Would guess he was just hoping to get some attention.  Looks like it worked.

notme Experienced
notme
Posted

my damaged intestines are not in my head........  dude needs an anatomy lesson lolz

kareng Grand Master
kareng
Posted

my damaged intestines are not in my head........  dude needs an anatomy lesson lolz

 

 

Open Original Shared Link

nvsmom Community Regular
nvsmom
Posted

LOL at Arlene! :D

I suppose that could be true for a few people but it took me 38 years to figure it out and I barely believed it at first. It is mostly bunk IMO.

ravenwoodglass Mentor
ravenwoodglass
Posted

Well for me it was at least partially in my head.....I have the MRI scans showing brain lesions to prove it. :wacko:

IrishHeart Veteran
IrishHeart
Posted

"At this point, scientists simply don’t have a good explanation for the mechanism and prevalence of gluten intolerance............ Maybe people have always been gluten intolerant and were going undiagnosed—as is true with celiac disease." 

 

well, at least those two sentences have some thought behind them.

 

The rest? meh. Another person with an opinion. 

 

(and here is what I have learned...everyone has an opinion. Does not make it solid gold truth.)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


notme Experienced
notme
Posted

Well for me it was at least partially in my head.....I have the MRI scans showing brain lesions to prove it. :wacko:

 

right - like you're conjuring up brain lesions in your imagination....  (..nation....nation....nation...........)

 

i know everybody's got an opinion, but, damb:  didn't alot of us have to combat that 'you just feel bad because you want to' syndrome??  and here it is again, from some other (REALLY??   Alan Levinovitz is an assistant professor of Chinese philosophy and religion at James Madison University. that's his creds??)  idiot.  yayyy  :(

Monklady123 Collaborator
Monklady123
Posted

I'll be sure to ask my GI doc to teach me some Chinese philosophy next time I'm there. I'm sure he can do as good a job as this JMU professor. :rolleyes:

Adalaide Mentor
Adalaide
Posted

Well you know what they say about opinions right? Not something I think I can (or maybe more accurately should) repeat here.  :lol:

notme Experienced
notme
Posted

I'll be sure to ask my GI doc to teach me some Chinese philosophy next time I'm there. I'm sure he can do as good a job as this JMU professor. :rolleyes:

lolz!   :lol:  

surviormom Rookie
surviormom
Posted

No the proof is in my gut.  Its too messed up for this to all be in my head, and what about the polka dots???  Anyone that has ever had the rash, that is not in your head.

1desperateladysaved Proficient
1desperateladysaved
Posted

No.

dilettantesteph Collaborator
dilettantesteph
Posted

We have enough problems being taken seriously without uneducated people thinking that they know more about our medical condition than our doctors and writing about it.  Why did Slate give this guy a platform?

alesusy Explorer
alesusy
Posted

I don't know why they gave him a platform. The article seems to me both biased and ignorant, philosophically not medically speaking. I personally believe that mind and body are not separate entities: our mind IS in our bodies, made of nerves and neuroconnections. So of course what we think influences our sicknesses, and the reverse is true as well. Bu destroyed villis are destroyed villis, and what matters is that if I stop eating gluten, they grow back.

 

I think however that he has a point when he says nobody knows how gluten intolerance works. Or for that matter, let's say that we have only theories and a not very long clinical experience on the border between gluten intolerance and gluten sensitivity. The first is supposed to be an auto immune illness but is it possible that sensitivity is just a stage towards intolerance? and if so, might it get reversed? and can gluten intolerance get reversed or at least someone who has become healthy again can have some gluten from time to time with no adverse effects? I know, I know, it's a very dangerous thought and most of us have no intention of trying. But becoming a celiac at 47 after a life of eating gluten with no adverse effects, I wonder (symptoms appeared maybe 4/5 years before DX). A French baker working with "ancient grains" I met told me the problem lies in the modern wheat, selected for industrial use with giant gluten molecules, "like having a huge piece of rubber instead of many small ones", and thus less digestible. Sounds sensible even if I did not watch wheat molecules under a microscope.

 

One things is certain though: America being in the throes of gluten scare because Americans like to diet, that's idiotic. I'm Italian and in Italy we eat pasta and bread and pizza ALL the time and we've been brainwashed on how the Mediterranean dier is good for you - but we still have the highest percentage of celiac people in the world I believe, about 1 in 80 people. Go tell the guy.

BZBee Apprentice
BZBee
Posted

I'll send in my biopsy reports and vitamin deficiency panel for concrete evidence. He can put that in his head.

w8in4dave Community Regular
w8in4dave
Posted

Can someone tell my Colon it is all in my head? I had symptoms and searched and searched!! It was my daughter that told me to look up Celiac, (I didn't see it and have the symptoms) then I had the blood work done and low and behold!! Lol it isn't in my head, I am not going crazy!! I say let him have the symptoms and then see what he thinks!!

Pegleg84 Collaborator
Pegleg84
Posted

Short answer: NO!!

 

slightly more complicated answer: sometimes symptoms will seem worse if I worry about them (usually neuro stuff, not gastro stuff), but the actual cause of them is legit.

 

Yes, there are hypochondriacs out there who will have "symptoms" of conditions they don't actually have, but doing it "just to fit in?"... oy! I am amused that he likened the discipline of the gluten-free diet to some sort of religion. That's all very interesting from a sociological point of view, but when you're living it, it's just what you have to do.

 

Conclusion: NO.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.