Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughter Found This


w8in4dave

Recommended Posts

w8in4dave Community Regular

My daughter found this site that was very interesting , she did a search because she was having so many problems even after going gluten free. so I hope it is ok to post it here so I can get some opinions on it. 

 

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

Thanks for sharing this. 

This does remind me that I'm supposed to be starting a food diary so that I can note any additional intolerances or reactions I may have.

kareng Grand Master

This is just someone's blog.  There is no scientific evidence for this "cross-reactivity" in Celiac disease. 

 

Open Original Shared Link

"What’s with all the talk about certain types of food causing “cross-reactivity?”

There is not yet reliable data about cross-reactivity. As for the alleged possibility that many gluten-free foods or drinks (such as coffee, milk, orange juice, etc.) would trigger symptoms in celiac individuals due to hidden antigens mimicking gluten or cross-reacting with anti-gluten antibodies, it must be clearly stated that this is all false information, devoid of any scientific basis, and must be rejected as untrue."

 

 

This "laboratory" uses Social media, such as  FB and "blogs" to promote their products.

 

Open Original Shared Link

notme Experienced

something else to think about:  if your gut is healing, many of these things are irritants to damaged intestines.  yes - keep a food journal!  but keep in mind that you may be able to add these things back once you are healed enough (so that's good news - yay!)  w8n4, you might want to skip dairy for awhile until your villi heal because that's where the stuff (enzyme?) to digest lactose is produced - at the tips of your villi.  so, if it's still damaged, it can't produce the stuff you need right now but after you are healed, you can eat it - i know i can - love me some cheeeeeeeeeeese!  i know it sounds like alot, but it was surprisingly easy.  pretty soon i was at 6 months  no dairy and i started adding a little bit back, one at a time and journaling my response.  i still drink lactaid milk, but i CAN drink regular milk.  i just like it because i can put it into my tea in the morning and don't feel like i'm ambushing my guts lolz :)

IrishHeart Veteran

Someone's blog stating things as a fact to promote lab tests is not something I find very compelling.

 

We have discussed this supposed cross-reactivity issue many times on here, but I still find it highly doubtful (as does a  leading celiac center)

 

Not one celiac specialist has supported this theory or these labs tests or presented any research to substantiate these claims. Maybe when they do, I will read the research on it and see what the experts have to say about it.

 

Please read the information Karen has posted above.

 

If someone is having additional food intolerances, it could be because the gut is still healing.

It takes time to heal approx. 22 feet of intestines.

 

 

 

^_^ I find it very interesting that "Dr. Tom" has made this comment in her comment section. 

The evidence suggesting coffee is cross-reactive is for Instant coffee. There is no evidence this carries over to regular or espresso coffees.

Salax Contributor

While I am not a scientist, logical thought process in my mind reads that if the body’s immune system attacks gluten, creating antibodies and attacking health tissue (villi), it could seem probable that the immune system could also develop antibodies/attack healthy issue with other foods. Whether or not that has been discovered we don't know. But the likelihood of it happening, I think is there. More specifically though we being Celiac or having other food intolerances know that this had to stem from something, so could that be all interrelated? I don't know, but I think as time goes on we (people of the world) will see more and more intolerances to our food as the quality of the food decreases (cough Monsanto cough) and our bodies don't know what to do with it. But that’s another story. Interesting read though, makes you wonder what time will tell with a disease like Celiac and other intolerances as they seem to be getting worse and worse.

IrishHeart Veteran

Salax,

 

I do agree about the development of other intolerances --food, environmental, chemical (I have a few myself)-

 

but I do not buy the "cross-reactivity with gluten theory"  yet because no evidence from celiac experts exists as far as I can find.

 

If those foods specifically listed on that blog site were as dangerous to us as gluten, most of us would be dead by now.

 

IMHO, as always. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



w8in4dave Community Regular

I just wanted to hear everyones opinion , and see if your mind was open  ... Just wondering ... 

w8in4dave Community Regular

Ok yes Kareng is right. there is no science behind it. Mods can take it out ... Sorry

dilettantesteph Collaborator

I think that the cross reactivity theory may have come from cross contamination.  It is known that some celiacs react to lower levels of gluten than others.  It is known that some celiacs with ongoing symptoms heal when put on a cross contamination elimination diet.  This has been discussed in the super sensitive section.  It is my opinion and experience that the items that are supposed to cause cross reactivity are the ones which are often cross contaminated. 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,798
    • Most Online (within 30 mins)
      7,748

    Gracie B
    Newest Member
    Gracie B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.