Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weirdly (And Dangerously) I Keep Forgetting....

Nikki2777

By Nikki2777
in Coping with Celiac Disease

Recommended Posts

Nikki2777 Community Regular
Nikki2777
Posted

It's strange - I guess I'm getting so used to being gluten free now (dx with Celiac in February) that a couple of times in the last few days, I've forgotten and almost eaten something I shouldn't.  

 

Never thought this would get so routine that it wasn't top of mind, but the other day my son didn't finish his sandwich and instead of wasting it, I said I'd finish it. 

 

He stared at me, and I said "what?".  

 

"Mom!  The bread."

 

I guess, in a weird way, this is a good sign, but I'm worried I'll eat something I shouldn't.  I posted the other day about forgetting and taking a piece of gum from a friend without checking it first.

 

Has this happened to anyone else?

 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LauraTX Rising Star
LauraTX
Posted

I can understand, after struggling for so long, being able to finally let your guard down, but then doing it too much.  It is hard to find a balance between oops that had gluten and total gluten nazi. :)  The one time I almost messed up, I was at a dinner at a place that I could eat gluten-free, with my crazy old aunt.  She was insisting I put the leftover rolls in my doggy bag so they wouldn't go to waste, so I habitually did what she said and then I was like, "Oh crap I can't eat that now," so I gave the leftovers to my husband.  I have also gone somewhere that I could eat gluten-free and my husband was not, and reached over to sneak a taste of something on his plate when he was like "Uhhhhhhh" and stopped me.  I am very glad he has my back. :) So I would say training your family and friends to look out for you as well, is a really good idea.  Definitely reward your son for having your back!

GF Lover Rising Star
GF Lover
Posted

NIkki, 

 

Scary eh?  This has happened to me twice and freaked me out.  Same scenario as you, once with my son and once with my Hubs.  The two times were relatively close together.  Like you, my son and Hubs looked at me and said "What?"

 

Has not happened to me since and I hope never again.  In the beginning of going gluten free I would catch myself all the time almost putting a noodle in my mouth to check for doneness. (My hubs and son are not gluten-free) That stopped after a few months but then the two biggies.  I do recall I was under additional stress and I think that may have contributed to my brain not kicking in at those moments.

 

All the best,

 

Colleen

kareng Grand Master
kareng
Posted

I think that has happened to everyone.

 

Colleen, we used to do the 2 different pastas.  I would make my son "tend" the gluten pasta.  Then it just go to be too big of a hassle trying to keep the spoons separate, etc.  Now we just all eat the same pasta and no one minds.

GF Lover Rising Star
GF Lover
Posted

Karen,

 

It got to be too much for me too.  All I make is gluten-free pasta now.  Son still makes his mac n cheese.  Hubs still makes his gluteny stuff but now I stay out of the kitchen if they are in there.  They came to realize that if I'm cooking it will be gluten free and they will like it.  Hehe.

kareng Grand Master
kareng
Posted

They came to realize that if I'm cooking it will be gluten free and they will like it.  Hehe.

 

My guys don't care if its gluten-free as long as Mom buys it and fixes it.  One of their friends ate pasta with us a couple of times - simple jarred salsa & cheese baked on top.  He wanted to know how I made it so really good.

 

 

Open Original Shared Link

GF Lover Rising Star
GF Lover
Posted

What they don't know won't hurt them.  (evil grin)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

I don't know how many times my youngest (now 10 and 9) have rescued me when my mind was absent!  It sure is hard to work on food that isn't safe for you.  I am mostly thinking of my rotational diet, but the same would apply to gluten.

 

D

nvsmom Community Regular
nvsmom
Posted

I read the label when I buy and before I open the package because I got myself last winter. Blah.

 

It's my husband who keeps slipping up. I think it's because I handle all the food - shopping, cooking, cleaning. He was better at first when it was all new, now he forgets.  Just a couple of weeks ago he was going to let my 10 year old try to get a swallow out of the bottom of his beer bottle. Picture a mom lurching over the counter saying "Noooo!".... Picture it in slow motion.... take 20 lbs off me while you're at it.  ;)

notme Experienced
notme
Posted

I read the label when I buy and before I open the package because I got myself last winter. Blah.

 

It's my husband who keeps slipping up. I think it's because I handle all the food - shopping, cooking, cleaning. He was better at first when it was all new, now he forgets.  Just a couple of weeks ago he was going to let my 10 year old try to get a swallow out of the bottom of his beer bottle. Picture a mom lurching over the counter saying "Noooo!".... Picture it in slow motion.... take 20 lbs off me while you're at it.  ;)

lolz - nicole, too funny!  i'm glad it's only 'me' i have to worry about......  and even then!  i did that last thanksgiving, putting away leftovers and licking the (gluten-free but glutened with wheat crackers for the wheateaters) ladle for the crab dip.  just as i was in mid-lick, my daughter is yelling MOM!  NO!  i'm like o sh!t.......... 

 

well, at least i knew what hit me - i think it sucks worse when it's a mystery  <_<

Nikki2777 Community Regular
Nikki2777
Posted
  • Author

Glad to know I'm not the only one.  I have to say, my kids are perfectly happy with my gluten-free pasta, so that's a help.  One meal for all.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    2. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    3. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
    4. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      2

      Gluten related ??

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much...
    5. Scott Adams
      0

      Häagen-Dazs Chocolate Dark Chocolate Mini Bars Recall Due to Undeclared Wheat and Gluten

  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,076
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.