Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Absolute Limit For Gluten?


C-Girl

Recommended Posts

C-Girl Contributor

Coming from a scientific background, I have an issue with this <20ppm "safe" limit for gluten. Has anyone come across a microgram/milligram limit for a meal? If you eat a bunch of stuff that is "safe" but contains just under the limit, can you get an immune reaction? Has anyone actually tested this? (not like any of us want to be the guinea pigs!)

 

My concern is this: I recently subscribed to the Gluten Free Watchdog, thanks to the whole Bart's cookies saga. I've found that some flours that I use for baking test in the 10-18 range. If I make a whole loaf of delicious bread with this flour, how much can I eat?

 

Luckily, I haven't had a reaction to the bread I've made using it. But I don't want to push it. I'd like to know that if a batch of flour is at 17ppm, and I use 90g of it in a loaf, how many slices can I eat?

 

It's like a grade school math problem all over again :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

This is the study on which the 20 ppm limit is based: Open Original Shared Link as far as I know.

Note that one participant had a full relapse on the lower amount tested.  Also, none of the participants given the higher amount tested had a relapse.  The amounts tolerated vary.

Adalaide Mentor

With the flours you use, I'm assuming it is particular brands? After they're used up could you just switch brands to something that doesn't ping that high for your peace of mind? I've seen that study before, and it really does help to put things in a bit of perspective.

 

I'm not sure how much bread other people eat, but for me I usually eat two slices at a time, but will eat bread maybe 4 or 5 times a month. So in the greater scheme of things it wouldn't be a lot for me, but if I were eating bread 4 or 5 times a week I might be a little concerned. But, if you're feeling good, not getting symptoms at all and you get follow up tests that are coming back either normal, or better than they were when you were diagnosed I'd say it's fine.

C-Girl Contributor

With the flours you use, I'm assuming it is particular brands? After they're used up could you just switch brands to something that doesn't ping that high for your peace of mind? I've seen that study before, and it really does help to put things in a bit of perspective.

 

I'm not sure how much bread other people eat, but for me I usually eat two slices at a time, but will eat bread maybe 4 or 5 times a month. So in the greater scheme of things it wouldn't be a lot for me, but if I were eating bread 4 or 5 times a week I might be a little concerned. But, if you're feeling good, not getting symptoms at all and you get follow up tests that are coming back either normal, or better than they were when you were diagnosed I'd say it's fine.

 

I'm perfecting my recipe and it's getting better and better - I ate about half a loaf yesterday! :wub: Maybe I should just stop baking, for my waistline's sake...

Gemini Experienced

I'm perfecting my recipe and it's getting better and better - I ate about half a loaf yesterday! :wub: Maybe I should just stop baking, for my waistline's sake...

I think that if you feel fine after eating your delicious gluten free bread, then don't worry about it.  If one day you overdose on bread and don't feel so good after, then you have your answer but keep in mind that eating too much of anything can cause problems for a number of reasons. Eating too much chocolate, for me, will wire me out but it has nothing to do with gluten. If you monitor your antibodies also, and they come back good, then it's a double don't worry about it. Otherwise, you might become obsessed with it and that is never a good thing.   :) 

 

Enjoy your bread and baking gluten free!

IrishHeart Veteran

Speaking of math problems, ^_^ you can read this explanation by Tricia Thompson, RD.

 

Open Original Shared Link

 

Conclusion: 

"Even if all of the gluten-free grain foods you ate contained 20 parts per million gluten (and they probably won’t) you would have to eat a lot more than the recommended number of servings to approach an intake of 10 milligrams of gluten."

C-Girl Contributor

Speaking of math problems, ^_^ you can read this explanation by Tricia Thompson, RD.

 

Open Original Shared Link

 

Conclusion: 

"Even if all of the gluten-free grain foods you ate contained 20 parts per million gluten (and they probably won’t) you would have to eat a lot more than the recommended number of servings to approach an intake of 10 milligrams of gluten."

Thanks! That's precisely what I was looking for.

I love math that's done for me!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Thanks! That's precisely what I was looking for.

I love math that's done for me!

 Me too. I totally suck at math. (one of the many reasons I keep the hubs around.)

LauraTX Rising Star

I saw this snippet from University of Chicago and thought it would help here:

Open Original Shared Link

  • 2 weeks later...
Redbard52 Newbie

Here's an example of the math for an approximation of the gluten consumed:

 

You use 90g of flour with 17 ppm gluten in a loaf of bread.  Say your loaf of bread weighs 360g and assume it has 10 slices of bread and you eat two slices.  So you have eaten 20% (i.e., 2/10) of 360g, 0.20x360 = 72 grams of bread.  The flour consitiutes one-quarter of the weight of bread (i.e., 90/360), so you ate 0.25x72g = 18g of flour.  17 ppm = 17/1,000,000. So, you ate 18g x 17/1,000,000 = 0.000306 grams of gluten.  1mg = 1g/1000.  So this is the same as 0.000306gx1000mg/g = 0.306 mg.

 

Although you are likely also getting some gluten from other sources, this doesn't seem like too much gluten vs studies that indicate safe limits on the order of 10 mg/day.

 

But be aware that the purists will tell you not to use that flour since you "know" that it contains some gluten.

 

Redbeard52

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,551
    • Most Online (within 30 mins)
      7,748

    Newest Member

    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.