Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is The Strangest Place That You've Seen Gluten?

BlessedMommy

Recommended Posts

BlessedMommy Rising Star
BlessedMommy
Posted

I thought that it would be fun to have a thread with the weirdest places that we've spotted gluten.

 

I think that the winner for me would be when I found jelly with gluten in it. It had wheat glucose syrup.  :wacko:  Also, barley sweetened soymilk.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


StephanieL Enthusiast
StephanieL
Posted

The thing with theses kinds of list is that so often it starts this "there's gluten in WHAT?" when they are very often isolated instances. I just caution people that just because it is in ONE kind of thing may have gluten doesn't mean there needs to be a mass worry about it! I think that's how the whole envelope thing started.

Waitingindreams Enthusiast
Waitingindreams
Posted

I'm not sure if anything would surprise me at this point, after seeing gluten/wheat in so many products...but when I was first getting used to reading labels...

 

- Twizzlers. My sister bought me a pack because I used to be addicted to them. I checked the label just to be sure, but I didn't actually expect to see anything - sure enough, wheat flour!

 

- Some Salad dressings. I never would have guessed. I used to love those Good Seasons packets, you know the kind you pour into olive oil/vinegar so that you can "make your own" dressing. That was my favorite one! Checked the ingredients - wheat. :(

 

- Certain Rice packets. I always buy the Steamfresh rice/vegetables and I found one with peppers, onions and spinach blended into the rice. I grabbed it without looking at it too closely...come to find out there was orzo mixed in. Oops! :( I had never seen that before, so I had just assumed it was a regular rice/veggies blend. 

 

There has to be more, but I can't think of any right now!

Tricia7 Newbie
Tricia7
Posted

I agree it varies from item to item, and just because one brand of something has gluten in it, it doesn't mean they all do. Also a food that was once safe may now not be. You have to read labels every single time!

 

The last thing to gluten me was  FROZEN PEAS

 

I didn't even realize it at first, and ate the meal then the leftovers over the course of 3 days. I noticed I felt a bit off, but not horribly ill.  I later was going to use the peas again and glanced at the label, like I try to do all the time (but obviously didn't do the previous time) and saw it "May contain traces of wheat"  Well, now I know why I felt sluggish. It probably didn't have a lot of gluten, just enough to make me feel kinda off.

 

Store brand items can be the worst offenders. My peas were food lion's store brand.

 

Walmart's version of crystal light once glutened me too (that was also on the label, but I didn't look, as I was only 1 week into gluten-free at that time)  However, if you buy real Crystal Light drink mix, made by kraft, it is labeled gluten free right on the package (at least newer packages do)

 

In going through my pantry I noticed a lot of walmart store brand items had "may contain wheat" on them. 

 

Bottom line, you have to read labels, and even if you think  you've already read it, read it again!

CajunChic Explorer
CajunChic
Posted

My clinique dramatically different moisturizer! I had that all over my face, lol.

CathyO Rookie
CathyO
Posted

My shampoo and hair conditioner.  I had to change brands.

 

And Bumble and Bumble "hair thickening spray".  Got it in my eyes.  Crazy.

 

I found that Target's gluten free pasta is also processed on equipment that processes wheat items.

GF Lover Rising Star
GF Lover
Posted

In our bed.  Hubs not allowed to eat late night snacks in the bed anymore  :D

 

Colleen

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BethM55 Enthusiast
BethM55
Posted

Not exactly IN something, but......  Deep Fried Gluten on the menu in a Chinese restaurant.  Seeing that made me go pale, and I refused to eat anything there.  Pulled out a food bar from my purse and enjoyed the tea. :blink:

SMRI Collaborator
SMRI
Posted

Frozen vegetables.....seriously, why??

GF Lover Rising Star
GF Lover
Posted

The only time I have seen gluten in frozen vegi's is if it has a sauce in it.  You must be careful selecting as it is getting more common for them to come in a light sauce.

 

Colleen

SMRI Collaborator
SMRI
Posted

The only time I have seen gluten in frozen vegi's is if it has a sauce in it.  You must be careful selecting as it is getting more common for them to come in a light sauce.

 

Colleen

SAMs club....all of their brands Made in a facility...some on shared equipment...

GF Lover Rising Star
GF Lover
Posted

Maybe buy your frozen vegi's from a grocery store then.

 

Colleen

Pollymo Newbie
Pollymo
Posted

Cajun Chic...I didn't know about Clinques DDML.  I have a travel size I don't use very ofter.... never thought to look at it!  What's in it??

jddh Contributor
jddh
Posted

+1 for "gluten" read verbatim on Chinese menus. Quite possible the translation is at fault however...could be rice gluten for stickiness.

 

I wouldn't necessarily discount the whole restaurant on that. Soy sauce, though.

 

I had a crummy salad in Memphis with cheap powdered parmesan cheese on top...judging by my reaction, that was FULL of gluten.

CajunChic Explorer
CajunChic
Posted

Cajun Chic...I didn't know about Clinques DDML.  I have a travel size I don't use very ofter.... never thought to look at it!  What's in it??

Barley is an ingredient! I had been using it for a week or so before I read the ingredients. Learned to not assume anything, lol.

SMRI Collaborator
SMRI
Posted

Maybe buy your frozen vegi's from a grocery store then.

 

Colleen

 

Well, not that it matters but I usually do but I was at Sam's getting other things and was going to pick up some frozen veges since I was out and they have a good price on them...and low and behold, I couldn't.... :rolleyes:

GF Lover Rising Star
GF Lover
Posted

I always get smacked when I try to be spontaneous... :lol:

 

Colleen

LauraTX Rising Star
LauraTX
Posted

In our bed.  Hubs not allowed to eat late night snacks in the bed anymore  :D

 

Colleen

 

That has me cracking up!!!!!!!  :D

 

Well, not that it matters but I usually do but I was at Sam's getting other things and was going to pick up some frozen veges since I was out and they have a good price on them...and low and behold, I couldn't.... :rolleyes:

 

 I used to pick up frozen veggies at sams club but over the last year or so, I think all of them now are no bueno.  I always go read the back and then loudly scoff and throw it back on the shelf, LOL.  

 

 

My weirdest place I have seen gluten is in the chocolate ice cream at a place called Bahama Bucks.  They are opening one near me and I looked it up online... Allergen menu has nothing checkmarked under the gluten column, but I read the whole ingredients list (full of artificial crap and not worth my money btw) and the last thing there was chocolate ice cream with WHEAT FLOUR listed... I was like.... what the heck???!!!!

mbrookes Community Regular
mbrookes
Posted

A can of roasted peanuts... I guess it was to keep them from sticking together. That was a strange brand that I found on the "weird food aisle" at Tuesday Morning.

C-Girl Contributor
C-Girl
Posted

Not exactly IN something, but......  Deep Fried Gluten on the menu in a Chinese restaurant.  Seeing that made me go pale, and I refused to eat anything there.  Pulled out a food bar from my purse and enjoyed the tea. :blink:

Some tea in Chinese restaurants contain barley!

IrishHeart Veteran
IrishHeart
Posted

Some brand of Irish tea has barley in it too. Gemini learned that one the hard way while flying to the UK.

 

I do not eat it, myself, but I know that "imitation crab" has gluten in it and many people use that for sushi or "crabmeat salad". Note: just buy real crabmeat.

 

I was surprised by a Bernaise sauce that had gluten in it. I make classic bernaise all the time and there's no gluten involved.

Apparently, some restaurants (like Bonefish grill ) will add it for thickener.  That's just wrong..and that stupidity bit me on the arse one time because I tasted the hubs' side of it.  Really nice while traveling on I-95...to have to stop dozens of times for me to purge...what a fun day.

 

yes, even veterans get bitten from time to time by "ASSuming" things.

 

Hoison sauce. Again, no need for gluten in there!! 

 

This is where label reading skills are so important. Barley or malt does not have to be listed under any "allergen" law.

across Contributor
across
Posted

In veggie juice (grain vinegar). I got symptoms and didn't know why until I read the label.

nvsmom Community Regular
nvsmom
Posted

I still think soy sauce is a weird one. Why? Why would it need that?

 

I remember being unpleasantly surprised when I learned that deep fryers needed to be dedicated gluten-free to be safe, but I suppose that is more of a cc issue.

 

And Daura (supposedly) gluten-free beer.   :angry: Yeah, someone needs to tell them that gluten -removed is NOT the same as gluten-free.  Ouch. :wacko:

chocominties Rookie
chocominties
Posted

Mayonnaise.  (Wheat flour.)

 

Marinara sauce.  (Wheat flour.)

 

An organic lollipop.  (Listed wheat as an allergen.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    2. cristiana
      - cristiana replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should...
    3. chrisinpa
      - chrisinpa commented on Scott Adams's article in Skin Problems and Celiac Disease
      2

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      Maybe they can attribute certain skin conditions to either being susceptible to getting Celiac......or the other way around....but I have to ask if certain people are prone to Celiac because of genetics and some people aren't. It's kind of the same thing as what came first.....the chicken or the egg.?
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      My journey is it gluten or fiber?

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities. If you are trying to add more fiber to your diet to ease constipation, considering...
    5. trents
      - trents replied to sha1091a's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Issues before diagnosis

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,695
    • Most Online (within 30 mins)
      7,748
    Aanhmcbride
    Newest Member
    Aanhmcbride
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Issues before diagnosis

      By trents · Posted

      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      Dizziness after eating green beans?

      By knitty kitty · Posted

      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.