Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Would This Bother You?


Kimbalou

Recommended Posts

Kimbalou Enthusiast

Sometimes I don't know if I am just too sensitive or if people are just plain rude and insensitive. Yesterday at work a co-worker who knows I have to eat gluten free went out and bought a bunch of pasta and cakes to welcome back a co-worker who was gone for a few months. I walked into the break room and saw nothing gluten free at all. She looked at me and said "Sorry!". She also admitted she thought about getting some veggies to go with the food...but didn't. she even said she thought the restaurant had gluten-free options!  One person said she would eat a piece for me. Yeah, right.

I kept thinking about this after I left work. Is it really that hard to buy some veggies? Even for the people who eat gluten?

How would you feel? Would you just blow it off? I am just tired of people's insensitivity.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I think I wouldn't be bothered by this. I am not sure I would even want to eat the carrot sticks with all the gluten around it.

I prefer to not eat what others bring - even if I know it's gluten-free because of cc issues and it seems to encourage people to try to make me gluten-free food that isn't safe. For instance, I ate something once that I knew to be safe and now this friend is always making stuff and telling me - it's gluten-free! But it isn't always - she doesn't understand cc or that soy sauce isn't always safe. However, one group I am in brought little individual bags of chips and saw that I would have one. Now they always bring them so I can have one - even when I am trying to limit calories! Lol

nvsmom Community Regular

It wasn't thoughtful but I would not be upset by it. Some people, and I was one like that, think immediately of the foods one can't have and get stuck there. Sort of like: Oh, he can't have peanuts so what will I feed him for lunch if he can't have peanut butter and the jam and butter is contaminated? We can't have sandwiches so what will we do?  KWIM?  They immediately forget soup, salad, chili, eggs, and such.

 

It would have been nice if they had got you something but she chose not to - you can't change people, darn it.   ;)

icelandgirl Proficient

I'm a fairly sensitive person and my feelings would probably have been hurt. That's just me though. It's hard having that left out feeling...maybe with time we get used to it. I'm at almost a year since my diagnosis and I do feel like it's getting easier. You can't change other people though...only your reaction to them.

chocominties Rookie

By now I'm pretty used to people walking by my desk and saying, "Oh wow, did you try those cookies?  They're amaaaaaazing!"  If we're having a food day I always make sure to bring my lunch, and then consider myself lucky if there's a bag of Tostitos and a cheese or veggie tray.  Folks at work (some of them) do know about my food issues, so they're pretty good about letting me see what I can eat, and letting me touch it first.  One time there was pizza, and no one was even touching the other items because they were all gorging on delicious, delicious pizza.  

 

More Tostitos for me, I guess.

 

But I'm also going on 5 years of dealing with this, and it probably helps that all my gluten issues "started" (were recognized) when I was in a position where I couldn't expect anyone to understand my issues.  I'm not saying "you'll get over it," but you'll start learning who to get pissed off at when they're clueless or insensitive and who not to.  People who aren't close to you are kind of like little kittens who do bad things but "don't know any better."  And the closer people get to you, the more they should know better.    

 

It might still be irritating on some "I wish I could eat that" level.  I still feel that sometimes (a lot of times).    

BlessedMommy Rising Star

Basically what Karen said. I'd be relieved that they weren't trying to cater to me.

Kimbalou Enthusiast

I never expect to be catered to. I guess my point is people are insensitive...especially when they say oh sorry...and I thought of getting some veggies too...honestly it was just odd to see pasta and cake...not very balanced meal. And....yes I know I cannot change people. Just talking about it helps me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

My vote goes to insensitive. but if you think about it she was trying to get a response from

you& you gave her nothing! Good for you....I just chalk it up to ignorance! People like this love to make others feel bad ....another good reason to have some tempting gluten-free goodies around.. I always like something Italian that smells like I want to dig into to that!!! and waffles all

through the office.....

It's okay to feel left out once in awhile just don't let the villain see it !!!!!

RubyRose Rookie

I don't think I would be bothered by it. It was not a celebration for you.  If it had been a party for you and they hadn't gotten anything you could eat. I could understand that. Some one else said, I don't expect others to cater to me.  I always bring a back up plan of goodies for myself, and if someone thinks of me I am flattered

RMJ Mentor

I would not be bothered at all that nothing was purchased that I could eat. But to be told that she thought about buying something I could eat and decided against it - that would irritate me!

Kimbalou Enthusiast

RMJ...exactly! thats what bothered me the most, was she mentioned she thought about it but didnt buy anything i could eat. ugh

WinterSong Community Regular

It's one of those social situations where I might feel like, "Well, this kinda stinks, but whatever. Not the most important thing in the world." Kinda like when my boyfriend's friend has a birthday party and invites me, but knows there is nothing at the restaurant I can eat so I either have water or wine. Kinda sucks, but in the grand scheme of life it's not a big deal. 

 

Most of the time, I do not eat what someone buys me because either it is a company I do not trust or there are CC issues. 

 

And people just don't realize how rude it is to say "I'll eat a piece for you," so I just laugh off that kind of comment 

cristiana Veteran

I'm a fairly sensitive person and my feelings would probably have been hurt. That's just me though. It's hard having that left out feeling...maybe with time we get used to it. I'm at almost a year since my diagnosis and I do feel like it's getting easier. You can't change other people though...only your reaction to them.

 

 People can be very insensitive.  However, a situation I find almost more difficult is well-meaning people preparing something for me, going to a huge amount of trouble on my behalf, only to discover that what they have cooked/bought still has gluten in it.  I am getting to the stage where I just feel it is easier to always have my own treats/snacks on standby.  A good excuse to carry a bar of chocolate in my handbag!

 

Another way of making people think is baking my own gluten-free cakes/buying them and then 'inflicting' them on other people.  They are always stunned at how good they are and ask for the recipes or where I bought them. 

 

Insensitivity/thoughtlessness... whatever it is... a great saying they have up at our local school on one of the walls is a quote by Kipling and it helps me such a lot with all manner of things these days.

 

“I always prefer to believe the best of everybody; it saves so much trouble”

I think Icelandgirl is right.  We can't change other people... only our reaction to them.  

BlessedMommy Rising Star

 People can be very insensitive.  However, a situation I find almost more difficult is well-meaning people preparing something for me, going to a huge amount of trouble on my behalf, only to discover that what they have cooked/bought still has gluten in it.  I am getting to the stage where I just feel it is easier to always have my own treats/snacks on standby.  A good excuse to carry a bar of chocolate in my handbag!

 

Yes, that scenario is one of the hardest! 

Serielda Enthusiast

I honestly would felt a bit left out at first, but get over it and Laugh to myself about being spared from all the junk food. Time to time I still get quirky and feel left out around certain events, but I remind myself I'm better off not participating in the food freak outs. Heck last birthday I had, I was shocked by an awesome and gorgeous gluten-free cake, that most was nervous to try ,but once they did you had to fight thunder dome style almost to get a piece. The reason I say that is often gluten-free foods and snacks can get ignored or left out in people are nervous that it may taste bad out of ignorance that gluten-free doesn't equate terrible. Give it time maybe next party you may get an epic nom nom.

luvs2eat Collaborator

Not only does it not bother me... I prefer it that way. I feel terrible when people try to accommodate me and I don't trust anyone but ME to feed me.

HappyMom623 Proficient

I got over the fact that people don't care about Celiac. My work always has bagels, donuts, cookies..ect.

 

No one ever thinks about me. LOL. Honestly, I'm okay with it because I'm trying to lose weight.

 

I'm sorry she said that though! Kind of sounds like she was being mean.

seejenrun Newbie

Yes. What 'luvs2eat' said. I don't trust anyone but me. I always bring my own food everywhere. I would never expect or want anyone to cater to me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,036
    • Most Online (within 30 mins)
      7,748

    Wees
    Newest Member
    Wees
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.