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Hmmm. 9 People Read This And No Advice?


JessicaB

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JessicaB Explorer

come on guys!


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psawyer Proficient

I read your query, one of now at least 15 who have, but I don't have any relevant information to post on the topic. I had to read the topic to see what the question was, and once I saw the question, I knew that I did not know anything that would help you. I am sure I am not the only person who reads a lot of posts without responding because I don't have anything useful to contribute to the topic. I do hope that someone who can help reads and responds.

JessicaB Explorer

sorry, im just confused and wish someone had the same situation as me :)

MySuicidalTurtle Enthusiast

You can't expect less than an hour to pass and have a lot of people resond. Clicking a topic doesn't mean someone has actually read it. It's night time and it will be awhile until you get a lot of answers.

plantime Contributor

Ditto Peter. If I don't have anything different or of value to add, why should I post?

Lollie Enthusiast

I think I missed something, What was the question?

Lollie

plantime Contributor

I don't know. I thought she would repost it in her opening post, but she didn't. There are a lot of new posts each time I come on, so I could very well have just missed it.


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jerseyangel Proficient

I'm glad I'm not the only one who is confused by this.

tiredofdoctors Enthusiast

I'm confused, too . . . :huh: Also, if no one has any information with regard to a subject, they're not going to BS you and tell you something that could potentially harm you.

Canadian Karen Community Regular

I think she is referring to this thread:

Open Original Shared Link

Karen

mouse Enthusiast

Everything I have read says that you cannot have a false positive bloodwork. You can only have a false negative test. Your doctor who did the blood work is 100% right and you do have Celiac. As far as the biopsy I cannot answer that as I never had the test. My doctor was back in the stone ages and did not think it was necessary. The only reason I can see to have a biopsy after a positive blood test is to see how much damage has been done to the Villi. I wish I had done it for that reason alone. But at the time I had never heard of Celiac and was extremely ill at the time of diagnosis.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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