Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Is On Your Not-my-friend List?

penguin

Recommended Posts

penguin Community Regular
penguin
Posted

On the verge of going back to being gluten-free, I'm remembering all the companies that are on my "not-my-friend" list, in that they said their products were gluten-free and they weren't. Here's what I got:

Amy's

(everything but rice mac & cheese)

Bob's Red Mill

(all-purpose gluten-free flour mix)

Pamela's

(baking mix)

Kellogg's

(on principle)

Who's on your list? :huh:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 51
  • Created
  • Last Reply
bklynceliac Apprentice
bklynceliac
Posted

Mi-del. I've had problems with their cookies several times.

jerseyangel Proficient
jerseyangel
Posted

Some Whole Foods 365 Brand products.

I've gotten reactions from their Almond Butter, Digestive Enzymes and a couple other things.

When this happened with the almond butter, I called and inquired (complained). They sent me packaging and postage and asked me to send it to a lab at the U of Nebraska. I heard back from them that there was no gluten detected in the product, but that they only check to 200 ppm. <_<

Nantzie Collaborator
Nantzie
Posted

Amy's - I'm hoping that they fix their problems, but I got SO sick. The worst glutening I've gotten so far. I don't know if I'd have the guts (HA!) try them again.

VydorScope Proficient
VydorScope
Posted

Danon, Qaucker, Purity.

CarlaB Enthusiast
CarlaB
Posted

Oral B and Ritter's Frozen Custard ... it irritates me when companies won't tell you what's in their product so that you can be the one to decide if you want to take the risk or not! There is a risk in almost everything we eat, and these two companies just say, "We can't help you." If everyone did that, we would starve and have dirty teeth!!

I won't eat Lay's Stax because I've heard the risk of cc for casein is high.

tarnalberry Community Regular
tarnalberry
Posted

Quaker, Blue Diamond (about the onlly thing that I've reacted to that most people haven't - usually, it's the other way 'round)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

WE eat Pamela's pancakes everyday for 15 months now. At least 5 days a week. I have never had a problem with them having gluten. I haven't contacted them though. IS there some risk of gluten? Where are they processed?

Amy's, possibly.

Lay's regular chips, something with them doesn't agree with me. I can eat UTZ's though.

Monica

angel-jd1 Community Regular
angel-jd1
Posted

Quaker

Arby's

Steak N Shake (conflicting info on their website I've never actually eaten there)

-Jessica :rolleyes:

Kaycee Collaborator
Kaycee
Posted

I don't trust any company who will not reply to my emails.

Most companies are good and wonderful with their replies, even if they state their food has gluten in it, I appreciate them giving me the advice. But there have been a couple of companies who have not even replied. They are small companies, but that is no excuse. So I treat their products as having gluten in them, even if I do not get a response from them. They are not user friendly!

Cathy

DingoGirl Enthusiast
DingoGirl
Posted

Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

jesscarmel Enthusiast
jesscarmel
Posted
Wait a minute... :o are you saying that the Amy's cheese enchiladas in my freezer are going to give me problems? have not had them yet.....and what about the Shepherd's pie? both say GLUTEN-FREE on front.....

For me, definitely Blue Diamond Nut Thins. Extremely sick from those. And that's kind of evil, as they have their "proud sponsor of Celiac foundation" or someting like that right on the box.... :angry:

Heshey's Nuggetts.... :( Okay well I can eat a FEW, like 5 or 6 and no problems, but....half a bag.... :ph34r::lol: ...that's definitely not good.....

And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

I ate the cheese enchilladas a few weeks ago and was okay and the pizza and was fine so i geuss everyone is different or maybe some are contaminated and some are not.......

elonwy Enthusiast
elonwy
Posted

Amy's has been having issues. The pizza is made in a dedicated facility but the rest is not. I was fine, then this weekend was made really sick by the cheese enchiladas, now I'm going to wait til they work it out.

I love Blue Diamond nut thins, they've never given me a problem.

I don't trust Hersheys. The only thing that's never made me sick is the plain chocolate bar and the plain kisses. Everything else makes me sick.

Elonwy

jkmunchkin Rising Star
jkmunchkin
Posted

Believe it or not I once got really sick from the Gluten Free Pantry Truffle Brownie mix and although I haven't eaten it again I'm not afraid to try their other products. I'm not sure why or how I reacted to it, but I did. So I just stay away from that product.

I'll occassionally eat the rice cakes, but I'm leery of Quaker.

penguin Community Regular
penguin
Posted
  • Author

Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

taz sharratt Enthusiast
taz sharratt
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

is kettle chips ok or not :unsure: i have them a lot but am wondering if they may be causeing trouble :blink:

LKelly8 Rookie
LKelly8
Posted

(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

floridanative Community Regular
floridanative
Posted

Quaker because after eating their quick grits twice and getting bloated both times, I finally called them even though clearly their label indicated no possible gluten. This was before I knew about cc at factories. So their response was to almost yell at me saying if I have Celiac I can NOT eat any of their products. With that kind of attitude I said no problem and hung up. I now eat Arrowhead Mill grits but noticed that Jim Dandy grits started marking their labels - may contain wheat and milk. Thank you!

Katja Rookie
Katja
Posted
(I don't think the Kettle brand chips are gluten-free :( .)

Amy is not my friend. I don't like her brother Van or their dad, General Mills.

Unexpected, possible cc: Hershey's Dark, Lays Staxx, various rice crackers.

I checked on Kettle's Website since I am huge fan of their new "bakes" chips and have been eating them quite a bit with (I think!?!) no problems.

Are your products gluten free?

Our products are processed on equipment shared with ingredients that contain very small amounts of wheat. We thoroughly clean our lines after each flavor run, but there is a slight potential of cross contamination. For your convenience we do list all ingredients on the packaging.

Open Original Shared Link

flagbabyds Collaborator
flagbabyds
Posted

halls! for sure made me soooooooooooosoooooooooooooooooooooo sick one time

PF changs, sent me into anaphalytic shock from the leftovers that they used the same spoons on everyone's ALWAYS make your own leftovers at YOUR table

amy's for sure

i can think of more later.

Katja Rookie
Katja
Posted
And DO NOT buy the choc. covered raisins from Trader Joe's. Woke up and felt kicked in the gut from those. <_<

uh oh!!! REALLY? I have been wrecking my brain as to why I am so tired and exhausted? Did you have the dark chocolate ones? (can't do dairy, so I stay away from any milk chocolate!)

lindalee Enthusiast
lindalee
Posted
Danon, Qaucker, Purity.

Tell me its not Danon yogurt please. I want to make my own but haven't figured it out with my maker yet.

lindalee Enthusiast
lindalee
Posted
Oh, also on my not-my-friend list:

Kettle Chips

Quaker

Arby's

McDonalds

Outback (well, one location, anyway)

The irony is I usually don't react to the mainstream products, it's the ones marked gluten-free that give me trouble :rolleyes:

Haven't done any of those since gluten-free except Outback at Nags Head - ordered off the gluten-free menu and the grilled lobster tail made me sick after one bite and the salad had croutons.

Sarah8793 Enthusiast
Sarah8793
Posted

Lara Bars,

Some Lay's potato chips

And, I too seem to react to many products that are labeled Gluten-Free. I am getting to the point where I am suspicious of any processed food. And I'm afraid to eat out anywhere.

elonwy Enthusiast
elonwy
Posted

The only Dannon that is ok is the plain one. From Dannon:

Gluten: This protein is found in wheat, oats, rye and barley. DANNON yogurt products are not formulated to contain gluten, but they can't be considered gluten free. The natural system for stabilizing flavor might contain ingredients derived from gluten sources. Since there is a current lack of consensus on individual sensitivity levels to gluten, and there are no accurate tests to detect the presence and amount of gluten, DANNON yogurt cannot be classified as "gluten free"

Yoplait is ok, just read the ingredients. The only ones that I've found with gluten are the ones with cookies and granola.

Elonwy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748
    tessycork47
    Newest Member
    tessycork47
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.