Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Say?


Heater

Recommended Posts

Heater Rookie

What's a good way of saying what happens when you eat gluten?

I have to eat out with people quite a bit for work, and I never know what to say past 'it makes me sick' if they keep asking. Generally I just go out for one or two meals with the same people, then never see them again- they're here for business, so I don't feel the need to explain it in a lot of detail. And I don't even really like talking about it all- in detail or not.

Any ideas on what I can say? Or how to change the topic?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chrissy Collaborator

it damages your small intestine.

TriticusToxicum Explorer
it damages your small intestine.

I say "intestinal distress" if I think I'll ever see them again. They usually look at me quizically for a moment and then you see the light bulb go on...

gfp Enthusiast

I just say it''s not fitting conversation for a dinner table!

If they press I just say my body tries to get rid of it any and which way it can.... now can we move on!

Corkdarrr Enthusiast

I tell them that it's similar to having the stomach flu.

I've never had to carry the conversation any further than that.

-Courtney

StrongerToday Enthusiast

If we're at the table, I'll say something like "oh, you're eating... best not to talk about it right now".... that usually shuts them right up :rolleyes:

mookie03 Contributor

I have to deal w/ that at work too, but i just say something like "it's an auto-immune reaction, so the symptoms vary and a lot of the effects are long-term so they are more difficult to pinpoint"

It is vague enough that they wont ask too many questions and u dont have to get into the details


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mango04 Enthusiast

If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

Nantzie Collaborator

I call it "bathroom issues", but I feel like even that is saying too much. I like Courtney's description of saying it's like having the stomach flu. I think I'm going to start using that.

Nancy

tiffjake Enthusiast
What's a good way of saying what happens when you eat gluten?

I have to eat out with people quite a bit for work, and I never know what to say past 'it makes me sick' if they keep asking. Generally I just go out for one or two meals with the same people, then never see them again- they're here for business, so I don't feel the need to explain it in a lot of detail. And I don't even really like talking about it all- in detail or not.

Any ideas on what I can say? Or how to change the topic?

I always say "its like food poisoning" because they get the idea, and I don't have to share the details.

Green12 Enthusiast
If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

Excellent response Mango :lol::lol:

carriecraig Enthusiast

Reading your post reminded me of a topic that I started in January: Open Original Shared Link

Most annoying comments/questions asked.

Some of the answers are hysterical - this is my favorite: Yea, I've gotten the "Can't you just eat a LITTLE??" Yea, I answered... if I want MOLTEN ACID shooting out my butt.

chrissy Collaborator

one of my kids has no symptoms, and of the other two, only one gets intestinal distress----so the bathroom stories don't necessarily work for us.

eleep Enthusiast

molten acid!

hahahahahahahahahahaha! snort! hahahahahahahahahah!

eleep

happygirl Collaborator

I tell people it causes an auto-immune reaction that in turn damages my intestines and causes numerous long-term health problems, as well as "making me sick." I quickly move on and say, if I don't eat it, then I'm fine!

And move on!

Now my poor friends know the REAL story (those poor poor people)

2Boys4Me Enthusiast

Ty doesn't get symptoms, so I tell people it's like smoking - Nothing's happening on the outside, but damage is happening inside.

Lymetoo Contributor

Thanks for the good answers!!

Turtle Enthusiast
If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

:lol: GOOD ONE!!!

I like the molten acid coming out my butt comment too! TOO FUNNY!

teebs in WV Apprentice

I don't typically have intestinal symptoms, but I do have DH. I typically show my arm and when people see the visible scars they get it. But even then, I get the feeling that they just think "big deal, she gets a rash". After a year I am still not sure of myself when asked the question........

Guest ~jules~

I usually say imagine how you would feel if you drank drano, or if its someone I'm close to I just use the stomach flu as an example. Oh god, my husband told a waiter I may go into seizures, thats never even happened to me, I guess he felt like the guy wasn't listening :blink:

Mtndog Collaborator

I usually say that it's like a combination of stomach flu and a REALLY bad hangover that lasts for 3days- weeks. The look on their faces says it all. :P

taz sharratt Enthusiast
I just say it''s not fitting conversation for a dinner table!

If they press I just say my body tries to get rid of it any and which way it can.... now can we move on!

very polite gfp.

luvs2eat Collaborator

Ha ha... molten acid shooting out of my butt is my response... if they persist beyond my more polite answer of, "I have serious intestinal distress."

ianm Apprentice

I say "Okay I'll eat it but you're the one who's cleaning up the mess not me." Usually gets the point across.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.