Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What To Say?

Heater

By Heater
in Coping with Celiac Disease

Recommended Posts

Heater Rookie
Heater
Posted

What's a good way of saying what happens when you eat gluten?

I have to eat out with people quite a bit for work, and I never know what to say past 'it makes me sick' if they keep asking. Generally I just go out for one or two meals with the same people, then never see them again- they're here for business, so I don't feel the need to explain it in a lot of detail. And I don't even really like talking about it all- in detail or not.

Any ideas on what I can say? Or how to change the topic?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


chrissy Collaborator
chrissy
Posted

it damages your small intestine.

TriticusToxicum Explorer
TriticusToxicum
Posted
it damages your small intestine.

I say "intestinal distress" if I think I'll ever see them again. They usually look at me quizically for a moment and then you see the light bulb go on...

gfp Enthusiast
gfp
Posted

I just say it''s not fitting conversation for a dinner table!

If they press I just say my body tries to get rid of it any and which way it can.... now can we move on!

Corkdarrr Enthusiast
Corkdarrr
Posted

I tell them that it's similar to having the stomach flu.

I've never had to carry the conversation any further than that.

-Courtney

StrongerToday Enthusiast
StrongerToday
Posted

If we're at the table, I'll say something like "oh, you're eating... best not to talk about it right now".... that usually shuts them right up :rolleyes:

mookie03 Contributor
mookie03
Posted

I have to deal w/ that at work too, but i just say something like "it's an auto-immune reaction, so the symptoms vary and a lot of the effects are long-term so they are more difficult to pinpoint"

It is vague enough that they wont ask too many questions and u dont have to get into the details

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mango04 Enthusiast
Mango04
Posted

If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

Nantzie Collaborator
Nantzie
Posted

I call it "bathroom issues", but I feel like even that is saying too much. I like Courtney's description of saying it's like having the stomach flu. I think I'm going to start using that.

Nancy

tiffjake Enthusiast
tiffjake
Posted
What's a good way of saying what happens when you eat gluten?

I have to eat out with people quite a bit for work, and I never know what to say past 'it makes me sick' if they keep asking. Generally I just go out for one or two meals with the same people, then never see them again- they're here for business, so I don't feel the need to explain it in a lot of detail. And I don't even really like talking about it all- in detail or not.

Any ideas on what I can say? Or how to change the topic?

I always say "its like food poisoning" because they get the idea, and I don't have to share the details.

Green12 Enthusiast
Green12
Posted
If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

Excellent response Mango :lol::lol:

carriecraig Enthusiast
carriecraig
Posted

Reading your post reminded me of a topic that I started in January: Open Original Shared Link

Most annoying comments/questions asked.

Some of the answers are hysterical - this is my favorite: Yea, I've gotten the "Can't you just eat a LITTLE??" Yea, I answered... if I want MOLTEN ACID shooting out my butt.

chrissy Collaborator
chrissy
Posted

one of my kids has no symptoms, and of the other two, only one gets intestinal distress----so the bathroom stories don't necessarily work for us.

eleep Enthusiast
eleep
Posted

molten acid!

hahahahahahahahahahaha! snort! hahahahahahahahahah!

eleep

happygirl Collaborator
happygirl
Posted

I tell people it causes an auto-immune reaction that in turn damages my intestines and causes numerous long-term health problems, as well as "making me sick." I quickly move on and say, if I don't eat it, then I'm fine!

And move on!

Now my poor friends know the REAL story (those poor poor people)

2Boys4Me Enthusiast
2Boys4Me
Posted

Ty doesn't get symptoms, so I tell people it's like smoking - Nothing's happening on the outside, but damage is happening inside.

Lymetoo Contributor
Lymetoo
Posted

Thanks for the good answers!!

Turtle Enthusiast
Turtle
Posted
If people keep asking and I really don't want to talk about it I just say, "my immune system attacks and destroys my internal organs." It's never failed to totally shut people up LOL.

:lol: GOOD ONE!!!

I like the molten acid coming out my butt comment too! TOO FUNNY!

teebs in WV Apprentice
teebs in WV
Posted

I don't typically have intestinal symptoms, but I do have DH. I typically show my arm and when people see the visible scars they get it. But even then, I get the feeling that they just think "big deal, she gets a rash". After a year I am still not sure of myself when asked the question........

Guest ~jules~
Guest ~jules~
Posted

I usually say imagine how you would feel if you drank drano, or if its someone I'm close to I just use the stomach flu as an example. Oh god, my husband told a waiter I may go into seizures, thats never even happened to me, I guess he felt like the guy wasn't listening :blink:

Mtndog Collaborator
Mtndog
Posted

I usually say that it's like a combination of stomach flu and a REALLY bad hangover that lasts for 3days- weeks. The look on their faces says it all. :P

taz sharratt Enthusiast
taz sharratt
Posted
I just say it''s not fitting conversation for a dinner table!

If they press I just say my body tries to get rid of it any and which way it can.... now can we move on!

very polite gfp.

luvs2eat Collaborator
luvs2eat
Posted

Ha ha... molten acid shooting out of my butt is my response... if they persist beyond my more polite answer of, "I have serious intestinal distress."

ianm Apprentice
ianm
Posted

I say "Okay I'll eat it but you're the one who's cleaning up the mess not me." Usually gets the point across.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    2. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    3. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

    4. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that...
    5. Maggieinsc
      - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

      Thanks for the prompt reply. Interesting that blood test could be caused by other things. I am sure Dr Fincher will get to the bottom of it. I know he ate nowhere near that amt of gluten before the endoscope. Always interested in any new info abt celiac. U can not trust what is said on fb- That would be a piece of bread a day. He didn't even make that...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Gut nutrition supplements?

      By xxnonamexx · Posted

      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      Gluten free Yogurt suggest

      By Jane07 · Posted

      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.