Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wonderful Story


happygirl

Recommended Posts

happygirl Collaborator

I was in my best friend's wedding this past weekend in PA. Something awesome happened and I had to share:

Many of you on the board know that I am having post-Celiac/non-Celiac related health problems as of recently (February), with my problems increasing in the past few months. I have lost a great deal of weight and my parents have moved in with me to help me out (just moved to take a new job and husband has not moved yet). I have given up much in my life but refused to give up this wedding. I've been friends with Meg since I moved to PA when I was 16 and she was the maid of honor in mine...and I was the matron in hers.

At the reception, after I gave the toast and dinner started (I brought my own food because of my multiple food reactions), I found out that Meghan and Brian had done something for me as a surprise. Instead of using money to buy favors for the wedding guests, they instead chose to make a donation to the Celiac Disease Foundation in my name. They said they wanted to do something for me, since they know what I have been going through, and thought it was the best way to honor me. They had a write up about it (didn't mention me by name because they didn't want to call attention to me) and placed it in a 5x7 frame that was on the main table for everyone to see when they came in (to get the name and table assignment).

They didn't tell me until after my toast because they didn't want to have me start crying...but my parents were there and had seen me, and finally told me....my mom cried, then I cried, then I found Meghan and Brian, and she cried, and etc etc etc. Apparently the whole wedding party knew but hadn't told me so I could get through my toast...and wanted it to be a surprise. Talk about the best surprise and the most thoughtful thing anyone has ever done for me...and in honor of Celiac and my health....makes it all the more special.

I just had to share, because the world in general, is not accepting or necessarily supportive of Celiac...but there are people out there who are wonderful and good-hearted! What a great weekend it was!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aerin328 Apprentice

That's an awesome story!

jmengert Enthusiast

Just reading that brought tears to my eyes; what a wonderful best friend you have, and what a great story!

Guest nini

now that is heartwarming! thanks for sharing

TinkerbellSwt Collaborator

Wow.. that is such a great story. I too have tears in my eyes. They must be such special friends.. what a touching thing to do.. you are a very lucky woman to have such great people in your life. Sounds like they are truly blessings..

tarnalberry Community Regular

That is really awesome of them! I'm glad you were able to make it to the wedding.

happygirl Collaborator

Honestly, I wish everyone could've been there to see it. It was so overwhelming and wonderful. They had done so many things to try to make the weekend easy for me and this was just the icing on the cake. I even took a picture with the frame (which they sent home with me). Her family and his family was so supportive of me. Apparently, Meg and Brian had told them all of what I have been going through recently, so I had people that I had never met (parts of his family) were coming up and telling me they were praying for me to find answers, and they hoped that I got better, etc. It was honestly just an amazing night....I am so lucky to have friends and family like that!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



i canary Rookie

Thanks for sharing your wonderful story. I've gotta go find a kleenex, my eyes are leaking....

Guhlia Rising Star

Yup, me too... A little misty over here. What an awesome story and an even MORE awesome friend.

Guest zoomom

You must have some wonderful friends!

Thanks for sharing,

Robin

SchnauzerMom Rookie

What kind and thoughtful friends you have. Thanks for sharing with us.

Lisa Mentor

Laura, keep those special people close. :)

Judyin Philly Enthusiast

Laura

you sure deserve all the kindness shown by your dear friends.

So happy you had such a great tribute and good time at the wedding.

thanks so sharing with us this wonderful story.

hugs

judy

Ursa Major Collaborator

Wow, now you made me cry, too. :rolleyes: How wonderful.

jayhawkmom Enthusiast

Woops.... my eyes are leaking now too!!

What wonderful friends, you are certainly a lucky person to have such kind and caring friends.

I just loved reading this!!!

daffadilly Apprentice

Thank You for posting this, now that is what I call a real friend.

I read your allergy list, I used to have a list about like that, mine is almost all gone except for a few, so hang in there, I think it will get better for you.

Saz Explorer

That is so nice of them.

I've recently being trying to go gluten-free again after to long of been really bad. One of my friends has sent me recipies, info and websites, that she says she has been given or accidently come across. I'm not sure if she if this was the case or if she looked for them delibratly, but its nice that shes been so supportive.

mamaw Community Regular

That is beyond friendship, that is thick as blood. What special people you all are...Hang on to that friendship , it is so awesome.

What part of Pa do you reside???

blessings

mamaw

2kids4me Contributor

What a wonderful gift to you! With friends like that, you will get through anything! :)

I had to wait til I stopped tearing up after reading your wedding story.

Thanks for the gift to us in sharing it...

Sandy

AndreaB Contributor

Such a beautiful thing to do for a wonderful person. You have wonderfuls friends and parents too. :)

Nantzie Collaborator

Another cryer here... Give them extra hugs and thanks from us for being such wonderful people.

Nancy

casnco Enthusiast

Now there is a real friend. Thanks for sharing a positive.

GFinVA Newbie

Laura - I'm glad to hear that you had such a great weekend! Looking forward to catching up soon :)

Alison

happygirl Collaborator

This is why I had to share---I knew YOU guys would appreciate it and know what it really meant. Its amazing when your friends become like family and support you through anything.

Luckily, I have great friends all around---just today I had 9 of my best girlfriends from Penn State send me roses (sick from undiagnosed but non-Celiac related issues....long story.)

Imagine if yall teared up over this---what I was like at the reception! And I'm a crier anyways! You should have seen my mom and I- it was pathetic, but in a good way. :)

mamaw-my dad is military and so we moved around a lot. I lived in philly for two years, then moved to mechanicsburg, outside of harrisburg. my parents have kept them home there, and my parents have split their time between PA and VA. After graduating from high school in Mech, I went to Penn State for four years, moved to Auburn for my graduate degree, moved to Virginia Beach for a year (first job) and just moved to Northern Virginia last month for my dream job. Sigh. That makes me tired just thinking about it. Wedding was in Camp Hill (town next door to M-burg) and reception was in hershey.

Alison-hey girl. I'll write you an email, hopefully tomorrow :)!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    2. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    3. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    5. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,879
    • Most Online (within 30 mins)
      7,748

    Peta Dunn
    Newest Member
    Peta Dunn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.