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Any Options For Those Who Don't Have Insurance To Get Testing At Not So Expensive Price?


sleepybeauty

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sleepybeauty Newbie

After I was diagnosed with Celiac, a lot of people have been asking me about it. One of which is my cousin. She has a lot of symptoms, but doesn't have insurance. The blood test was really expensive. Does any one know of any places in San Diego where they have clinic? Any options would be greatly appreciated.

Thank you!


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happygirl Collaborator

She could try the gluten free diet and see if her symptoms resolve. That would be the cheapest way.

sleepybeauty Newbie

Thank you. I suggested that, and she may. However, she has 3 small children, and she would rather have a test result if she is going to make such a permanent change in their life style.

Jestgar Rising Star

A trial would only be permanent if it made them all feel better. And she'd want that anyway, right?

sleepybeauty Newbie

Yes, she would. I just thought I would check. Thank you for your posts.

HAK1031 Enthusiast

Enterolab is an at-home test kit (enterolab.com) where you send them your samples. that's around $150-- still not cheap, but probably not as much as the blood test, plus it's a ton more accurate.

happygirl Collaborator

1. It doesn't diagnose Celiac.

2. There is no agreed upon evidence that it is more accurate, especially when it doesn't diagnose Celiac, and there are yet to be published studies.

(just a bit more info for those reading)


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Generic Apprentice

However, I think it would be helpful for people like my b/f who has a mother who thinks I brain washed him into

thinking there is a problem. He figured it out by accident when he started eating gluten-free with me. He is even more

paranoidabout getting glutened than I am! It would definatley be a plus for us if we had a diagnosis from an official

test.

sleepybeauty Newbie
Enterolab is an at-home test kit (enterolab.com) where you send them your samples. that's around $150-- still not cheap, but probably not as much as the blood test, plus it's a ton more accurate.

Thank you, this is definitely worth checking into.

ShayFL Enthusiast

I use Healthcheckusa and DirectLabs. Call. Healthcheck is usually cheaper. But DirectLabs seems to offer more tests. If you look on their website, you might not see a Celiac panel. But if you all, they have it.

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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