Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weird Ways We've Been Glutened


OptimisticMom42

Recommended Posts

OptimisticMom42 Apprentice

Hello everyone,

I know this was stupid and I should have thought of it ahead of time but if it can happen to me maybe it could happen to other busy folks.

A co-worker brought in cherry tomatoes from his garden in a reused plastic grocery bag. I grabbed one out of the bag, rubbed it clean on my shirt and popped it in my mouth. A couple hours latter I'm wondering how I got glutened from cherry tomatoes. It had to have been whatever the bag was used for originally. All I can think of is how flour leaks out of those paper bags and gets all over everything.

Another good reason to stop using those plastic sacks and to wash my veggies!

Hope this helps protect someone else,

RA


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



runningcrazy Contributor

I'm only glten free while waiting for enterolab results, so I'm not truly confirmed celiac about 1.5 weeks into the diet and feeing great I made "the cravings place" allergen free cookies and a hot one fell off the sheet coming out of the oven and landed on the floor. I know I saw stuff all over the floor but I popped it in my mouth anyway.

Later I was really sick and I remembered doing that. And I was reminded that my sister made real cupcakes there a little before me and that "stuff" I saw on the floor must have been flour!!

JillianLindsay Enthusiast

Mine's a real bonehead move! It was one of my first days on the diet and my first visit to Starbucks gluten-free. The person I was speaking to couldn't help me so after a long time hemming and hawing I just ordered a regular coffee. When I went to put cream & sugar into it I saw a vanilla powder and thought it would be nice to add a little flavour... duh! I sprinkled it on and could have kicked myself. After spending all that time trying to pick a drink I indiscriminately sprinkled on some random powder lol d'oh :rolleyes:

Mtndog Collaborator

So many butthead moves here- the latest one was REALLY wanting a fudgsicle, being really tired and not noticing "malt powder" at the end of ingredients.

That and shampoo or conditioner- so stupid!

Lisa16 Collaborator

I have a short list:

1. vitamins. When I first started I was taking a multi and two days into gluten-free, I looked at the ingredients and it said "derived from wheat."

2. a banana bread lara bar OR the de-icer on the plane. I was going to HI and ate a larabar, once I was firly sure we would be taking off. We were delayed and, well... see the funny ancedotes thread

3. a box of rice chex. I had bought three on special (a 3 for deal) and didn't realize I had gotten one of the old boxes. I was halfway through it and wondering why the heck I was sick when I noticed. DUMB.

4. Teabags. Yep. I got glutened by tea. Always read the ingre3dients-- never assume.

SGWhiskers Collaborator

Eating grapes with freshly washed hands. The soap had vitamin E.

Picking up a bag of garbage with used birdseeds at the bottom. Woosh. Up with a plume of gluten in the face.

Jonbo Apprentice

I've had a few "duh" ones. One was friend offering some craisins from bag she had. Me knowing they are OK, I eat a handful. Not 1 minute after that, my mind thinks outside the box. She's eating fried food and reached in before me. Needless to say not long after it went a little downhill but recovered by the next day fully. When I inquired, she said "Oh yeah, I also ate some of my cheez-its before also when eating them". <_<

Other time was not long after I was diagnosed and still learning, and same friend offered some doritos. They weren't in bag (plastic baggy from home with some in it). I think "Doritos must be fine, corn chips and cheese powder". Eat a few. Learn the hard way. Reading online, fathoms me the original ones have wheat but most other ones didn't.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ranger Enthusiast

At the hospital with a friend. There was a box of donuts and a pump type coffeepot on the table. She handled several donuts, then got her self some coffee. Then, I got some coffee, opened up my bag of gluten-free crackers and proceeded to eat them. Sick for 3 days - learned that donut crumbs can live on handles! It's a learning curve!

  • 3 weeks later...
StacyA Enthusiast
Eating grapes with freshly washed hands. The soap had vitamin E.

Picking up a bag of garbage with used birdseeds at the bottom. Woosh. Up with a plume of gluten in the face.

I don't understand the concern about vitamin E - or is it just you?

Amyleigh0007 Enthusiast

This isn't weird but it is stupid. Last Christmas I ate handful after handful of a delicious chocolate and peanut butter candy that was on the desk of a co worker. I assumed they were safe. I got very, very sick and when I checked out a bag of the candy at Walmart one of the first ingredients was wheat flour. I no longer assume!!

SGWhiskers Collaborator
I don't understand the concern about vitamin E - or is it just you?

A lot of Vitamin E comes from Wheat Germ. It also goes by tocopherol and tocopherol acetate. Many companies use other sources though. I call the company. I never thought about it in hand soap.

jabberwife Explorer

Lisa16 - What is it about a Banana Bread Larabar that glutened you? I'm confused...is there something I should know?

ravenwoodglass Mentor
Lisa16 - What is it about a Banana Bread Larabar that glutened you? I'm confused...is there something I should know?

Hi, I am not Lisa but she was stating that she wasn't sure what got her. The Larabars are gluten free. No worries if you like them keep feeling safe eating them

summerteeth Enthusiast
4. Teabags. Yep. I got glutened by tea. Always read the ingre3dients-- never assume.

I second you on the tea bags. They didn't happen to be the Tazo green ginger bags, did they? Best tea ever... and now I can't have it.

Also: salad dressing. I was an airhead and forgot to read the label, thinking "Caesar dressing should be safe..." WRONG. I paid for that one... big time.

And lastly, grapefruit shampoo.I wash my hair the morning after I buy it, thinking "Wow - this smells really good". I started to get sick later in the day and couldn't figure out why. I tell Adam, my fiance, and he says "Uhh... your shampoo clearly states "wheat"" (he is allergic to SLS).

jabberwife Explorer

LOL - I was about to say...

larabars are my go-to snack, just in case I don't have time to make something from scratch, or if I'm going somewhere where I don't know where my next meal is or whether I'll be able to eat it!

:)

Thanks.

  • 4 months later...
grainfree Newbie

I had a reaction after eating a cashew Larabar. The ingredients are cashews and dates. According to the Canadian Celiac Association, dates and other dried fruit may be dusted with gluten powder to prevent sticking. Something to consider when reading labels.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,917
    • Most Online (within 30 mins)
      7,748

    tiffanygosci
    Newest Member
    tiffanygosci
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
    • tiffanygosci
      Hi! I had my first episode of AFib last May when I was 30 (I have had some heart stuff my whole life but nothing this extreme). I was not diagnosed with celiac until the beginning of this month in October of 2025. I was in the early stages of celiac, so I'm not sure if they were related (maybe!) All of my heart tests came back normal except for my electrolytes (potassium and magnesium) that were low when the AFib occurred. I also became pregnant with our third and last baby a couple weeks after I came back from that hospital stay. I had no heart complications after that whole thing. And I still haven't over a year later. It was definitely scary and I hope it doesn't happen again. I drink an electrolyte drink mix about every day, and I'm sure being on a gluten-free diet will help my body even more! I will pray for you in this. Taking care of our bodies is so challenging but Jesus is with us every step of the way. He cares and He sees you!
    • knitty kitty
      I followed the Autoimmune Protocol Diet which is really strict for a while, but later other foods can be added back into your diet.  Following the AIP diet strictly allows you digestive system to heal and the inflammation to calm down.  Sort of like feeding a sick baby easy to digest food instead of spicy pizza.   It's important to get the inflammation down because chronic inflammation leads to other health problems.  Histamine is released as part of the autoimmune response to gluten.  High histamine levels make you feel bad and can cause breathing problems (worsening asthma), cardiovascular problems (tachycardia), and other autoimmune diseases (Hashimoto's thyroiditis, diabetes) and even mental health problems. Following the low histamine version of the AIP diet allows the body to clear the histamine from our bodies.  Some foods are high in histamine.  Avoiding these makes it easier for our bodies to clear the histamine released after a gluten exposure.   Vitamin D helps regulate the immune system and calm it down.  Vitamin D is frequently low in Celiacs.  The B Complex vitamins and Vitamin C are needed to clear histamine.   Supplementing with essential vitamins and minerals boosts your intestines' ability to absorb them while healing.   Keep in mind that gluten-free facsimile foods, like gluten-free bread, are not enriched with added vitamins like their gluten containing counterparts are.   They are empty calories, no nutritional value, which use up your B vitamins in order to turn the calories into fuel for the body to function.   Talk to your doctor or nutritionist about supplementing while healing.  Take a good B Complex and extra Thiamine in the form Benfotiamine (shown to promote gut health).  Most B Complex vitamins contain thiamine mononitrate which the body cannot utilize.  Meats and liver are good sources of B vitamins.   Dr. Sarah Ballantyne wrote the book, the Paleo Approach.  She's a Celiac herself.  Her book explains a lot.   I'm so glad you're feeling better and finding your balance!
    • klmgarland
      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure!
    • knitty kitty
      Some people prefer eating gluten before bed, then sleeping through the worst symptoms at night.  You might want to try that and see if that makes any difference.   Several slices of toast for breakfast sounds okay.  Just try to work up to the Ten grams of gluten.  Cookies might only have a half of a gram of gluten.  The weight of the whole cookie is not the same as the amount of gluten in it.  So do try to eat bread things with big bubbles, like cinnamon rolls.   Yeah, I'm familiar with the "death warmed over" feeling.  I hope you get the genetic test results quickly.  I despise how we have to make ourselves sick to get a diagnosis.  Hang in there, sweetie, the tribe is supporting you.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.