Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Snyders- Call To Action

cbear6301

Recommended Posts

cbear6301 Explorer
cbear6301
Posted

Open Original Shared Link

I read this on a gluten free blog and am so disheartened a company would say these things. Just wanted to share.

Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Open Original Shared Link

I read this on a gluten free blog and am so disheartened a company would say these things. Just wanted to share.

Thank you.

the link did not work for me, sorry.

Dada2hapas Rookie
Dada2hapas
Posted

This seems to work. Just omitted the 2nd http://

David in Seattle Explorer
David in Seattle
Posted

This seems to work. Just omitted the 2nd http://

That link is simply to this thread. I tried reposting, got the same result. I suspect some moderator editing is going on here, perhaps because the link is to a "competing" site. How nice. Here's the text of the page:

I received the following from someone who I really respect in the gluten free community. Jules is completely dedicated to making this a better gluten free world. Please read the following:

Are you willing to be poisoned?　 For profit?

I apologize for the alarm, but where food safety and our health are concerned, silence is not an option. I hope you agree.

This month I met a senior executive of a food company that is launching a new gluten-free product. When I asked why their product was not certified gluten-free,　I was discouraged (because I usually only eat products that are certified). As we discussed their reasons, and their casual and dangerous interpretation of what "gluten free" means,　my stomach knotted,　by blood pressure rose and I was moved to write a letter to their CEO.

Please read the letter,　and join me and thousands of gluten-free consumers who will not be taken advantage of for profit

Jestgar Rising Star
Jestgar
Posted

Open Original Shared Link

we have no trouble with competing sites. perhaps you just copied the wrong URL?

Roda Rising Star
Roda
Posted

Was this what you were referencing?

Open Original Shared Link

Well, it seems that everyone else got it before I realized and posted/ :P

David in Seattle Explorer
David in Seattle
Posted

Open Original Shared Link

we have no trouble with competing sites. perhaps you just copied the wrong URL?

I'm pretty proficient with computers, no, I pasted the correct URL & it was changed back to the one for this thread. Don't know why.

I'm glad to hear there was no censorship :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

I'm pretty proficient with computers, no, I pasted the correct URL & it was changed back to the one for this thread. Don't know why.

Very weird. I've had occasional trouble with quotes since they upgraded the site. Maybe there are a still a few bugs.

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for posting this. I will be avoiding their new 'gluten-free' products. Hopefully they will at least do what Lay's does. Ya know put in little letters at the end of their long list of gluten-free products the disclaimer that the products are produced in a shared facility. I wouldn't touch those pretzels anymore than I will eat Doritos. I never did like playing roulette and won't start now.

The FDA needs to get off their butt and make companies declare shared facilities on the package, that is still voluntary, and set legal limits for how much gluten can be in a product and still have the label. Why can't they give us the same protections they do for folks with a peanut allergy. Oh wait it's because we don't drop dead immediately, it takes years to kill us. Many painful years. And what about the folks just starting the diet and how sick they will become by eating gluten free stuff that isn't really gluten free? It is hard enough to begin the healing journey without supposedly gluten free items making us sick and leaving us wondering if the diagnosis was correct or if we have something else going on.

luvs2eat Collaborator
luvs2eat
Posted

I'm glad y'all got the computer glitches figured out so we could read the letter! What a completely disturbing revelation by Snyders!! I'd like to send them a letter telling them about the letter and WHY I'll never try their gluten-free products... AND to write a letter to Glutino thanking them for their efforts that can be trusted.

GFinDC Veteran
GFinDC
Posted

Thanks for posting. I gave up Glutino pretzels because they have soy. Looks like the Snyders will never make it to the starting gate.

shepgs Apprentice
shepgs
Posted

The FDA needs to get off their butt and make companies declare shared facilities on the package, that is still voluntary, and set legal limits for how much gluten can be in a product and still have the label. Why can't they give us the same protections they do for folks with a peanut allergy. Oh wait it's because we don't drop dead immediately, it takes years to kill us. Many painful years.

I agree that the FDA DOES need to force companies to disclose manufacturing processes on labels. I just have to clarify that, as it stands right now, companies only have to label for the top 8 allergens when they are an actual ingredient. Any companies that include wording about "made in the same facility as tree nuts," or "may contain tree nuts," are doing so either to be helpful or to cover themselves. In dealing with my son's peanut and tree nut allergies, I also have had to learn to decipher what the absence of that wording means. Is it safe? Did they just not care enough to label it?

I have felt since beginning this gluten-free journey recently that reading labels for nut ingredients is actually easier than for gluten. It wasn't always this way. When we started our journey with our son's allergies, companies could hide nut ingredients in vague ingredient names, kind of like they do with gluten! I'm hoping that, with time, labeling laws will be expanded to included gluten and also the possibility of CC. Only an informed consumer can make an informed decision.

Sorry for the tangent. Just offering my experience. I don't have much experience in the gluten-free world but nut allergies...I have some there.

BTW, I would be horrified if a company said "nut free" on their label and was so cavelier about what that means!

ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks for posting. I gave up Glutino pretzels because they have soy. Looks like the Snyders will never make it to the starting gate.

I had to give up the Glutino pretzels for the same reason. Then I found the Wylde ones. They are great. You may have already discovered them but thought I would mention in case you are missing pretzels as much as I was.

sbj Rookie
sbj
Posted

I can't wait to try these! :) Does anyone know when they will be coming out and whether they will be available in the various flavors?

ravenwoodglass Mentor
ravenwoodglass
Posted

I can't wait to try these! :) Does anyone know when they will be coming out and whether they will be available in the various flavors?

You are kidding aren't you!!!! With that companies idea of how to make safe gluten free food I can't imagine anyone wanting to risk it when so many safe snack foods are around.

GFinDC Veteran
GFinDC
Posted

I had to give up the Glutino pretzels for the same reason. Then I found the Wylde ones. They are great. You may have already discovered them but thought I would mention in case you are missing pretzels as much as I was.

Thanks Ravenwood, I think I will look for the Wylde pretzels. They would go good with some guacamole on a Friday night. Sounds good! :)

sbj Rookie
sbj
Posted

You are kidding aren't you!!!! With that companies idea of how to make safe gluten free food I can't imagine anyone wanting to risk it when so many safe snack foods are around.

Actually I'm not kidding. I liked Snyder's pretzels so one made without gluten products might be good. I'm certainly not going to base my opinion on hearsay. I have celiac disease and I do eat products made in facilities that also process wheat - and I am now testing normally via bloodwork. Last endoscopy was better, too. Are you seriously going to ban this company just because of something someone you don't know wrote on a blog about something they say they heard?

Jestgar Rising Star
Jestgar
Posted

an update:

Open Original Shared Link

TrillumHunter Enthusiast
TrillumHunter
Posted

Thanks for posting that link, Jestgar.

I had a mini-meltdown recently because my kids sat down and ate an entire bag of Glutino pretzels while I was gone for about an 1.5 hours. :angry: This was right after I had fed them a full breakfast. I really wanted pretzels and a Dr Pepper that evening.

Jestgar Rising Star
Jestgar
Posted

Sounds like a 'clean the yard, yes, all of it' offense.

Salax Contributor
Salax
Posted

Wow. I will stick with Glutino. I do hope however that Snyders (if the story is a true one) gets their head out of their arse and really does make a truely gluten-free product. Otherwise, they are going to kill their product before it's even known with the gluten-free community. Dumb Dumbs... :blink:

ravenwoodglass Mentor
ravenwoodglass
Posted

Actually I'm not kidding. I liked Snyder's pretzels so one made without gluten products might be good. I'm certainly not going to base my opinion on hearsay. I have celiac disease and I do eat products made in facilities that also process wheat - and I am now testing normally via bloodwork. Last endoscopy was better, too. Are you seriously going to ban this company just because of something someone you don't know wrote on a blog about something they say they heard?

I am not someone who can risk stuff 'made in the same facility' that may or may not be for sure gluten free. I get too sick and it just isn't worth it for a snack food when so many good safe alternatives are around.

I am glad for you that you can consume them with no issues but not all of us can take that risk.

The choice is up to an individual to take that chance and you certainly are free to do so. I'll stick with the Wylde pretzels that I know are from a dedicated facility.

Sick Boy Newbie
Sick Boy
Posted

I fired off my own whitty email to them, I was just diagnosed with celiacs in feb so this info helps me tremendously and it really makes me mad to find out company;s do things like what snyders is doing :D

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      gluten free cookie recipes

      By Scott Adams · Posted

      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.