Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

A Theory


sandsurfgirl

Recommended Posts

sandsurfgirl Collaborator

Today I'm sick as a dog. Nausea, vomiting, coughing, and feeling weak and tired. I feel like I got glutened but I'm pretty positive I did not.

I've seen other people post about this happening to them before and I have a theory. I have also seen people post about gluten being trapped in our bodies, in our intestines, and our brains. So my theory is that maybe gluten is lodged in places and when it gets released we get glutened again.

Is that silly? Or does it make sense? I've lost a few pounds and my husband said that maybe as I lose weight gluten is getting released like a toxin.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Maybe you caught a virus or a touch of food poisoning? Its possible to eat the same dish as others & get the one part that has bacteria growing. Also, you (we) may be a bit more succeptable to these things or get hit harder by them. My MD doesn't seem to know much about celiac disease but he did think I should stay away from kids when a stomach virus is going around as it might hit me harder.

Whatever: Sorry you are not feeling good feeling s*&((y.

tictax707 Apprentice

I am so sorry to hear that you are sick!! This is a very interesting thought. It has happened to me before that I get sick as if I am getting gluten, but cannot trace any gluten anywhere (even after calling ALL manufacturers of anything I have eaten since I felt bad), and there were no colitis triggers. I'm in research, so my science brain is off to figure out whether or not this is medically feasible. Just wanted to send some quick sympathy first though. ;)

Gemini Experienced

Today I'm sick as a dog. Nausea, vomiting, coughing, and feeling weak and tired. I feel like I got glutened but I'm pretty positive I did not.

I've seen other people post about this happening to them before and I have a theory. I have also seen people post about gluten being trapped in our bodies, in our intestines, and our brains. So my theory is that maybe gluten is lodged in places and when it gets released we get glutened again.

Is that silly? Or does it make sense? I've lost a few pounds and my husband said that maybe as I lose weight gluten is getting released like a toxin.

One of the hardest things a newer Celiac has to remember is that not everything is caused by gluten. Sounds like a virus or maybe the flu but not gluten. If you have been gluten-free and follow the diet strictly, any trace amounts should vacate the property and not come back! :P

WheatChef Apprentice

The average person gets salmonella poisoned a handful of times every year.

tictax707 Apprentice

Unfortunately I can't find much in the way of a definitive answer after wading through the literature, and now my break is over. Ultimately gluten would have to a) get past the gut via the leaky gut syndrome (a phenomenon that I am not sure is fully accepted), and 2) gluten has be to able to actually be taken up by the tissue. The biggest fraction of gluten is 130kDa, and I read that cells can take up proteins to 150kDa. However, I don't know whether or not this actually happens in the human body. Sorry I couldn't help prove/disprove the theory more. If I find out anything else I will post. Ultimately I guess all you can do is treat the symptoms best you can and rest up...

Stylo Rookie

I like your theory, though I'm not sure it is possible. I've heard that some drugs stay in your fat and if you lose weight they get re-released. I don't know if thats true, but I know someone who lost a lot of weight and had an acid flashback.

You could just be sick, I didn't think I had a gluten allergy for the past two years because I thought I was getting sick all the time and that was it. It feels the same to me, I quit smoking, lost weight, and couldn't stop being sick. Let's hope it's just the flu :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

Unfortunately I can't find much in the way of a definitive answer after wading through the literature, and now my break is over. Ultimately gluten would have to a) get past the gut via the leaky gut syndrome (a phenomenon that I am not sure is fully accepted), and 2) gluten has be to able to actually be taken up by the tissue. The biggest fraction of gluten is 130kDa, and I read that cells can take up proteins to 150kDa. However, I don't know whether or not this actually happens in the human body. Sorry I couldn't help prove/disprove the theory more. If I find out anything else I will post. Ultimately I guess all you can do is treat the symptoms best you can and rest up...

Thanks for looking that up. How cool to be in research!

Gemini- "vacate the property" :lol::lol::lol::lol:

I feel like I have a virus or some food poisoning. I hope my theory is totally wrong because what a scary thought that it could do that. I guess there's always accidental glutening. My kids are not gluten free, but I'm very careful about crumbs, etc.

Whatever it is, it sucks!! lol

Lgood22573 Rookie

I think it sounds like a virus or food poisoning as well. Hope you feel better really soon!

tictax707 Apprentice

Yeah - hopefully this theory won't pan out!! I don't know why, but my spidey sense tells me that gluten probably can't hang around and hide and bite you randomly later. It does sound more like a virus of some sorts. You've been through a lot recently! You might be more suseptible to stuff than normal... Regardless, I hope it goes away pronto!

ravenwoodglass Mentor

It does sound to me also like you have picked up a virus.

Gluten would not stay in your system and it does not cross into the brain etc. What does happen is the antibodies flow through the system and that is what is technically causing a 'gluten reaction'. They do subside after we have been gluten-free for a bit but CC or an accidental glutening create a cascade of antibodies going again. The amount needed to trigger the antibodies can be as little as just a few part per million. It isn't the gluten flowing through our bodies but our bodies reaction to it that makes us ill.

Fozzie Newbie

I can relate to your situation. After 5 weeks on this diet I was feeling "Normal"( relatively) for about 5 days and then something happened after dinner on Tues. I think that the chicken was off as my husband had indigestion after eating it . As for myself the lymphocytic gastritis has been causing turmiol for 3 days (stinging and pain) and my gut is rolling again. I have been extremly careful about the food I have ingested over the past month and this is depressing! I don't think that gluten can hide in our bodies but rather because of the damage we have incurred to our GI system we may be more susceptable to other pathologies.

Question- Does anyone else have lymphocytic gastritis along with celiac?

JNBunnie1 Community Regular

Oddly enough, since I've been gluten-free I've had pretty much a cast-iron stomach when it comes to food poisoning. I've only gotten hit once, I'm able to clearly determine the difference between food reactions and food poisoning, fortunately for me, the symptoms are very different, I only puke with food posioning. I got the one incident of food poisoning because I was stupid, too, left chicken salad out too long and then ate it. I've taken some other risks and never got hit, even when my boyfriend did, isn't that weird? Well, we've already established I'm weird.... :)

GFinDC Veteran

Hmmm, is coughing one of your usual symptoms with a glutening? If it not, then it sounds like a bug in the tummy.

I don't think gluten can hide out inside us, although people with diverticulitis might think differently.

You might want to write down everything you ate the day before and keep that list. It might lead you to another food intolerance.

I've heard about chemicals being stored in fat, (from the infamous Dr. House of TV land).

Get better! :)

gabby Enthusiast

Hi,

There are lots of food recalls going on all the time...and it might be a good idea to check the FDA recall website once in a while to see if anything there effects you. They will list things being recalled due to undeclared allergens, undeclared gluten, undeclared other ingredients, or due to things like suspected salmonella, listeriosis, etc. There's one product listed from April 1, 2010 that is being recalled because of undeclared wheat and barley ingredients....

Open Original Shared Link

Hope that helps!

GFLindsey Explorer

I can relate to your situation. After 5 weeks on this diet I was feeling "Normal"( relatively) for about 5 days and then something happened after dinner on Tues. I think that the chicken was off as my husband had indigestion after eating it . As for myself the lymphocytic gastritis has been causing turmiol for 3 days (stinging and pain) and my gut is rolling again. I have been extremly careful about the food I have ingested over the past month and this is depressing! I don't think that gluten can hide in our bodies but rather because of the damage we have incurred to our GI system we may be more susceptable to other pathologies.

Question- Does anyone else have lymphocytic gastritis along with celiac?

Fozzie -- I have been searching on here for someone else with lymphocytic gastritis! UGH. I have lots of questions for you! I am going to send you a PM.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,205
    • Most Online (within 30 mins)
      7,748

    Butch68
    Newest Member
    Butch68
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.