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Other Food Intolerances Get Me Down

sandsurfgirl

By sandsurfgirl
in Coping with Celiac Disease

Recommended Posts

sandsurfgirl Collaborator
sandsurfgirl
Posted

I hate it that I have dairy and soy intolerance. It is so depressing to have to eliminate such pervasive ingredients. My life would be so much easier if I could grab some string cheese or yogurt as a snack, or make sumptuous gluten free pizza or quesadillas at home without getting bloated, crampy and nauseous.

Soy, forget it. I get stabbing gut pain that feels like I'm doing to die, seriously it's that bad. Soy I can deal with. But dairy is so tough.

I'm 9 months gluten free and I keep hoping I will outgrow my dairy intolerance as my body heals my villi. Any hope for that or am I dreaming? Go ahead. I can take it. If there's no hope I'd rather resign myself to it now.

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ravenwoodglass Mentor
ravenwoodglass
Posted

Keep hoping and healing. I have been able to add dairy back in with no ill effects and it does make life easier. When you do decide to try dairy again start with stuff like cheddar cheese and yogurt, those are pretty much lactose free and will be the first that are likely to be tolerated if you don't have a casien intolerance.

tarnalberry Community Regular
tarnalberry
Posted

You adapt to dairy free just like you adapt to gluten free - with time, patience, and practice. It was really hard for me the first few months, but six years later, I'm rather used to it. Find the subs you need (I use almond milk, coconut based yogurt, and other coconut based items), and find different things to eat. You'll get there.

jerseyangel Proficient
jerseyangel
Posted

I was able to add dairy back in after being off of it for over 5 years. I still avoid soy, legumes, tapioca, and coconut but those are easy for me--dairy was hard :(

There is hope--these food sensitivities are tough to figure out and a pain to live with but maybe at some point you will be able to tolerate them again :)

ksymonds84 Enthusiast
ksymonds84
Posted

I was able to add back in low lactose dairy after 9 months or so being dairy strict. I still cant drink regular milk or cottage cheese, but can have up to 2 TBS of cream cheese or sour cream at one sitting, and can have up to 1/2 cup of real vanilla ice cream, provided that they use only sugar and not high fructose corn syrup (different issue). Also, I am fine with hard cheeses, butter, and cream.

As for soy, I've found that soy bean oil and lecithin I'm fine with, I just have to avoid soy protein, hydrogenated soy protein, and soy flour in ingredients. Just keep giving your body time to heal and you may find that you can bring back items once thought forbidden. ~hugs~ been there too!

burdee Enthusiast
burdee
Posted

I hate it that I have dairy and soy intolerance. It is so depressing to have to eliminate such pervasive ingredients. My life would be so much easier if I could grab some string cheese or yogurt as a snack, or make sumptuous gluten free pizza or quesadillas at home without getting bloated, crampy and nauseous.

Soy, forget it. I get stabbing gut pain that feels like I'm doing to die, seriously it's that bad. Soy I can deal with. But dairy is so tough.

I'm 9 months gluten free and I keep hoping I will outgrow my dairy intolerance as my body heals my villi. Any hope for that or am I dreaming? Go ahead. I can take it. If there's no hope I'd rather resign myself to it now.

I have diagnosed IgG mediated (delayed reaction) allergies to and abstain from dairy, soy, eggs, cane sugar, vanilla and nutmeg (as well as gluten intolerance). Fortuantely I wasn't diagnosed with everything all at once, because I might have felt overwhelmed and/or depressed by those 'limitations'. However, I prefer freedom from gut pain over food freedom. So I explored all kinds of other foods, cultures and recipes and found many new favorites to replace what I could no longer eat.

I also missed cheese (pizza, etc.) before I discovered Daiya brand dairy/soy free cheese. Now I have melted cheesy foods at least every other day. I don't miss ice cream thanks to Truly Decadent coconut milk based ice cream. I might miss eggs, but I ate them so often and peanut butter so rarely before I was diagnosed. Now I eat peanut butter on an English muffin with fruit every other day (and peanut butter banana wraps for lunch frequently) and don't miss eggs at all. Yeah, quiche would be nice, but I have a white bean quiche recipe I could try. I make my own mayonaise from raw cashews, honey, salt and lemon juice. So finding tasty substitutes for all my former allergen filled favorites made me so much happier about what I could eat, as well as healthier.

srall Contributor
srall
Posted

I'm so new to this. The one thing I really miss about dairy (as well as wheat) is just it would be nice to have a convenient snack that was very filling. As opposed to a piece of fruit or veggies. I can't do soy or dairy right now and would be happy to get one of those back. I've read lots of posts by people who can reintroduce dairy, but has anyone successfully reintroduced soy after healing? I don't even feel like I need to eat soy or dairy every day. Just every once in awhile it would be nice to not have to avoid it like the plague. I've totally come to terms with never eating gluten again though.

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sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

I have tried dairy a few times thinking it was fine until the next day when I woke up bloated as heck. Ugh. I have been dairy light or dairy free for years and I'm just getting tired of it. I had substituted soy stuff and then realized after going gluten free that soy was bothering me so badly. My nose swells shut when I eat soy in addition to the gut pain so I realized that most likely the constant sinus infections and need for antibiotics for years and years was likely due to soy as well as the gluten inflammation.

Just in case I haven't said it in awhile, I really hate celiac disease.

rnbwdiva Newbie
rnbwdiva
Posted

I'm 9 months gluten free and I keep hoping I will outgrow my dairy intolerance as my body heals my villi. Any hope for that or am I dreaming? Go ahead. I can take it. If there's no hope I'd rather resign myself to it now.

jeanne- Rookie
jeanne-
Posted

There is a post on youtube from a man named Sean Croxton from Underground Wellness. He is an athlete trainer and is into holistic and functional medicine. He says that he is dairy intolerant to regular pasturized milk, but his able to drink raw milk without any problems. The pasturization process destroys the natural enzymes in the milk that make us able to digest it. Raw milk can only be sold legally in California though. Don't know if this will help.

Momto2Boys Rookie
Momto2Boys
Posted

I don't have any advice but wanted to wallow with you a bit ! I'm very new to this, very overwhelmed, and depessed about it all. I was gluten free for 2 weeks when I got diagnosed with my other intolerances and candida. I'm going for a second opinion and in the meantime have decided to stay gluten free but am going to eat all the other things. My husband is wondering where his wife went. This is all consuming and depressing. I know we will both get through it but sometimes it just fees good to say: This sucks!

the other posts and recommendations are very helpful and I hope to stop feeling sorry for myself soon!

good luck to you. I hope you are able to reintroduce or find other things you love to eat soon! Hugs!

elk Rookie
elk
Posted

I make my own mayonaise from raw cashews, honey, salt and lemon juice.

This sounds yum! Can I get the recipe?

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

No advice for you but I can commiserate, especial about the soy. I indulged last week on some Lays Stax and some chocolate and now I have the worst sinus infection. I seem to get a sinus infection every other month when I break down and have something with soy. Soy is harder to avoid than gluten it seems unless you make everything from scratch and always carry food with you. I don't know if you will ever be able to add dairy back in. I'm 9 months gluten free/dairy lite as well and can have small amounts of cheddar cheese and yogurt, but my biggest problem is that when I have a little bit I seem to CRAVE it and I over do it sometimes. I really need to buckle down and stop all dairy for a few months again. I have had more little colds and aches and pains since I started eating more dairy. I know all the dairy-free subs mentioned above and they are mostly good, but I love my cheese. I'm so sad about it. :(

jackay Enthusiast
jackay
Posted

I hate it that I have dairy and soy intolerance. It is so depressing to have to eliminate such pervasive ingredients. My life would be so much easier if I could grab some string cheese or yogurt as a snack, or make sumptuous gluten free pizza or quesadillas at home without getting bloated, crampy and nauseous.

Soy, forget it. I get stabbing gut pain that feels like I'm doing to die, seriously it's that bad. Soy I can deal with. But dairy is so tough.

I'm 9 months gluten free and I keep hoping I will outgrow my dairy intolerance as my body heals my villi. Any hope for that or am I dreaming? Go ahead. I can take it. If there's no hope I'd rather resign myself to it now.

I feel your frustration, too. I miss being Susie Homemaker and being able to mix up lots of good dishes. While trying to figure out what is bothering me besides gluten, eating does get rather boring.

jackay Enthusiast
jackay
Posted

I have diagnosed IgG mediated (delayed reaction) allergies to and abstain from dairy, soy, eggs, cane sugar, vanilla and nutmeg (as well as gluten intolerance).

burdee,

How long is it before you get symptoms from delayed reaction allergies? I'm having a tough time figuring out what is bothering me and feel most likely it is because of delayed reactions.

Also, how did you get diagnosed with them? I had food intolerance testing done twice and avoiding the foods I reacted to and eating the others on a four day rotation, didn't help any. I did better doing an elimination diet on my own but things have gone down hill since. Not really sure what approach to try next.

Momto2Boys Rookie
Momto2Boys
Posted

burdee,

How long is it before you get symptoms from delayed reaction allergies? I'm having a tough time figuring out what is bothering me and feel most likely it is because of delayed reactions.

Also, how did you get diagnosed with them? I had food intolerance testing done twice and avoiding the foods I reacted to and eating the others on a four day rotation, didn't help any. I did better doing an elimination diet on my own but things have gone down hill since. Not really sure what approach to try next.

Jackay - where did you do your tests? I did Immunolabs. Started by avoiding everything for a few days and then I got really sick so I decided I'm not messing with it anymore (only doing gluten-free - still eating milk, cheese, yeast, etc. that came up positive on my test) until I get my second opinion by a GI specialist.

jackay Enthusiast
jackay
Posted

Jackay - where did you do your tests? I did Immunolabs. Started by avoiding everything for a few days and then I got really sick so I decided I'm not messing with it anymore (only doing gluten-free - still eating milk, cheese, yeast, etc. that came up positive on my test) until I get my second opinion by a GI specialist.

It was (Company Name Removed - They Spammed This Forum and are Banned) Worldwide. Sorry about that, I forgot they were banned. Look online for food intolerance testing, Deerfield Beach, FL and you will find it.

The first time, gluten didn't show up. I was eating quite a bit of wheat every fourth day, eating regular oats on another day and threw in some barley here and there. The second time, gluten did show up.

I had the test done the second time since I already knew gluten was an issue. I figured by avoiding gluten, I would see a big difference when I found out what other foods bothered me. There wasn't a whole lot left to eat and not enough to rotate on a four day basis so I didn't do well with the rotation. However, I did just stick with the foods that were O.K. I didn't see any changes at all.

I know there are still foods that bother me as I get lots of headaches and have a lot of insomnia. Diarrhea is always present from gluten contamination so am pretty sure other foods are causing the headaches and insomnia.

burdee Enthusiast
burdee
Posted

burdee,

How long is it before you get symptoms from delayed reaction allergies? I'm having a tough time figuring out what is bothering me and feel most likely it is because of delayed reactions.

Also, how did you get diagnosed with them? I had food intolerance testing done twice and avoiding the foods I reacted to and eating the others on a four day rotation, didn't help any. I did better doing an elimination diet on my own but things have gone down hill since. Not really sure what approach to try next.

With gluten, dairy, soy, vanilla and nutmeg I get gut cramps, bloating, constipation and sinus congestion (dairy only) within a few hours of ingestion. All those reactions last 1-2 weeks. Cane sugar causes almost instantaneous tachycardia which lasts for 48 hours and sometimes nausea which lasts a few hours. I don't recall egg reactions other than every time I got flu shots I got very nauseas and crampy for several days afterwards. I haven't 'tested' eggs since diagnosis. However, knowing that I have egg white allergy explained why I got so sick everytime I got flu shots.

I was diagnosed with gluten, dairy and soy intolerance/allergies by Enterolab IgA antibody stool tests. I was diagnosed with cane sugar, eggs, nutmeg and vanilla by ELISA IgE and IgG antibody reactions blood tests. I only had IgG reactions to ELISA test foods. I didn't realize exactly which foods caused my symptoms before diagnostic tests. However, after diagnoses and eliminating those foods I no longer had those symptoms, unless I accidently consumed one of my allergens. I don't like to unnecessarily restrict myself by guessing what might bother me. (I HATE restrictive diets after being put on weight loss diets as a child, when I was not 'fat', but just had a bloated tummy.) So I did diagnostic tests.

I have accidentally 'tested' (cross contamination, misreading ingredients or being served foods that were supposedly allergen free but weren't) every one of my allergens except eggs at least a few times since diagnoses. I react even more strongly after weeks, months and years of abstinence. My body doesn't forget how to react to my allergens. I won't ever purposely indulge in my diagnosed allergens, because I have enough other healthy food choices that I don't need to subject myself to unnecessary pain.

burdee Enthusiast
burdee
Posted

This sounds yum! Can I get the recipe?

Yes, here's the recipe for eggfree mayonnaise:

Add to blender:

1 cup whole (or chopped) raw (unsalted, unroasted) cashews;

1 cup hot water (helps soften the cashews);

1 tablespoon honey or agave;

1 teaspoon salt.

Blend for at least one minute. I have an 'ice crusher' pulse mode on my blender which I use to finely grind the cashews for a minute. Then I blend on 'mix' or 'stir' for another minute. Then, while blender is running slowly add:

3-4 tablespoons lemon juice.

Blend another minute to thoroughly mix. Then pour into two 8 ounce jars and refrigerate at least one hour. If you won't use the mayonaise within 2 weeks, you can freeze it and thaw for later use. I often divide the mayo into smaller jars and freeze what I won't use in 1-2 weeks.

If you like a thicker mayonnaise, increase the cashews to 1-1/4 cup in 1 cup hot water. I also use water from my hot water dispenser to soften the cashews before blending. (Just let the cashews sit in the blender with hot water while you measure and add honey and salt.) You can also add 1-2 tablespoons of tahini (if you tolerate sesame) while blending the lemon juice to thicken the mayonnaise. You could also decrease the lemon juice to 3 tablespoons if you like a sweeter mayonaise.

precious831 Contributor
precious831
Posted

I hate it that I have dairy and soy intolerance. It is so depressing to have to eliminate such pervasive ingredients. My life would be so much easier if I could grab some string cheese or yogurt as a snack, or make sumptuous gluten free pizza or quesadillas at home without getting bloated, crampy and nauseous.

Soy, forget it. I get stabbing gut pain that feels like I'm doing to die, seriously it's that bad. Soy I can deal with. But dairy is so tough.

I'm 9 months gluten free and I keep hoping I will outgrow my dairy intolerance as my body heals my villi. Any hope for that or am I dreaming? Go ahead. I can take it. If there's no hope I'd rather resign myself to it now.

Welcome to the club. I'm gluten-free/DF/SF and recently grain-free as well. Very sad. Not much I can do, I want to get better and still having symptoms so I went grain-free as well. My doc wants to do another colonoscopy because he said I sound like I also have colitis. I just had colonoscopy in February so I said no way. I'll try grain-free and go from there.

Dairy really, really messes me up. I had severe intestinal bleeding 2 months ago from eating goat cheese, it was seriously a minute amount and I was sick for nearly 2 weeks. It's TMI so I won't post the symptoms here.

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

Welcome to the club. I'm gluten-free/DF/SF and recently grain-free as well. Very sad. Not much I can do, I want to get better and still having symptoms so I went grain-free as well. My doc wants to do another colonoscopy because he said I sound like I also have colitis. I just had colonoscopy in February so I said no way. I'll try grain-free and go from there.

Dairy really, really messes me up. I had severe intestinal bleeding 2 months ago from eating goat cheese, it was seriously a minute amount and I was sick for nearly 2 weeks. It's TMI so I won't post the symptoms here.

Wow 2 weeks? Is there a chance it was contaminated? Goat cheese carries lysteria among other things. Look up lysteria and see if those are your symptoms. That's why pregnant women can't eat it.

elk Rookie
elk
Posted

thanks burdee!

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