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Recent Activity
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- Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Going for upper endoscopy today
Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the fut... -
- Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Going for upper endoscopy today
My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase... -
- Scott Adams replied to Cecile's topic in Related Issues & Disorders4
Symptoms
I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and... -
- Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Going for upper endoscopy today
UPDATE: here I am a couple months past my full diagnosis and going gluten free. I’ve been feeling a lot better. More energy, joint pain has gone down a lot. Haven’t really had the headaches and migraines I’ve had for years. My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said, have ...- 1
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- xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0My Journey Continues some notes
I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with...
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By Midwesteaglesfan · Posted
Her results only showed greater then 100 which over 10 is considered positive. But American standards still recommend the endoscopy to confirm. And the Dr explained to us both the European and American standards and asked us what we wanted to do. We figured since it’s still recommended here, do the endoscopy so Insurance can’t argue anything in the future regarding it -
By Scott Adams · Posted
My daughter also has it, and it's much better to discover it early. What was the positive level for her test? If she has over 10x that level, and you have celiac disease, I'm not sure if a biopsy is necessary to diagnose her. In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! -
By Scott Adams · Posted
I forgot to mention that I also had to avoid eggs for a few years after initially going gluten-free, but could eat duck eggs without issues. Fresh duck eggs can often be found in Asian markets (be sure they are fresh eggs, because they sell various kinds of duck eggs that look the same like salted eggs, eggs with embryos inside, etc.), farmer's markets, and I was surprised to see Costco now selling fresh duck eggs. -
By Midwesteaglesfan · Posted
UPDATE: here I am a couple months past my full diagnosis and going gluten free. I’ve been feeling a lot better. More energy, joint pain has gone down a lot. Haven’t really had the headaches and migraines I’ve had for years. My daughter(age 17) has had some symptoms which we thought were something else, but with my diagnosis I said, have the dr test her for celiacs. Her antibodies came back as greater then 100. So she is scheduled for her endoscopy and going to be joining me on this journey. -
By xxnonamexx · Posted
I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
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