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- knitty kitty replied to kevert93's topic in Gluten-Free Foods, Products, Shopping & Medications4Having issues with chips
Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically. Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe. You could also be having difficulty digesting the oils used in those chips. Thiamine in the form Benfotiamine can help. We need the eight... -
- CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Coeliac or not coeliac
Thank you for responding. I didn't intentionally reduce gluten prior to the endoscopy though I dont generally eat a lot of it due to the unpleasant symptoms. I was under the impression my TTG of 87.4 was very high, at least that's what my doctor said. -
- CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Coeliac or not coeliac
Thank you. I think what's confused me is that I assumed the biopsies would show damage due to my TTG being so high. I have been looking into paying for the genetic testing. I think I will do this. If it shows I have the genes I will consider the repeat endoscopy. If I haven't got the genetic susceptibility at least I will know and not go through... -
- knitty kitty replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Coeliac or not coeliac
@CC90, Welcome to the forum! Have you had a genetic test to look for Celiac genes? You must have Celiac genes in order to develop Celiac disease. If you don't have any Celiac genes, your doctors should look for another cause of your illness. Intestinal damage from Celiac disease can be microscopic and patchy, especially in people who haven't... -
- knitty kitty commented on Scott Adams's article in Origins of Celiac Disease18
Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)
Extreme fatigue, small fiber neuropathy, pain (especially abdominal pain and leg pain) and loss of appetite are all symptoms of Thiamine Vitamin B 1 deficiency. I experienced all these symptoms myself. Thiamine is extremely important in providing energy for the body to function, in nerve conduction, and brain function including appetite. Since your...- antibiotic
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By knitty kitty · Posted
Hi, @kevert93, Those Gluten Assist enzymes digest carbohydrates, not just gluten specifically. Eating a high carbohydrate meal can deplete Thiamine Vitamin B 1 causing digestive symptoms like you describe. You could also be having difficulty digesting the oils used in those chips. Thiamine in the form Benfotiamine can help. We need the eight B vitamins to digest our food, carbs, fats and proteins. Poor digestion can cause symptoms like vomiting and stomach pain, brain fog, headaches, exhaustion. Try taking a B Complex with the activated forms of the B vitamins (Life Extension's Bioactive B Complex is great!) and additional Benfotiamine. The B vitamins are used to make digestive enzymes and will allow your digestive system to function properly. The B vitamins also will improve headaches, exhaustion, and brain function. Taking Thiamine in the form Benfotiamine will improve digestive symptoms and lower inflammation, too. Benfotiamine and the B vitamins are safe. The B vitamins are chemical compounds found in whole foods, not in highly processed foods like chips. The body cannot make the B vitamins, so supplementing is beneficial. Benfotiamine is safe and nontoxic even in high doses. -
Thank you for responding. I didn't intentionally reduce gluten prior to the endoscopy though I dont generally eat a lot of it due to the unpleasant symptoms. I was under the impression my TTG of 87.4 was very high, at least that's what my doctor said.
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Thank you. I think what's confused me is that I assumed the biopsies would show damage due to my TTG being so high. I have been looking into paying for the genetic testing. I think I will do this. If it shows I have the genes I will consider the repeat endoscopy. If I haven't got the genetic susceptibility at least I will know and not go through another endoscopy unnecessarily. I have been on 30mg lansoprazole daily for 3 years and my acid symptoms have not resolved. Its miserable being in pain and not having a definite answer. I have had transfusions for iron due to chronic low ferritin that doesn't resolve with tablets but I'm not sure about B vitamins.
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By knitty kitty · Posted
@CC90, Welcome to the forum! Have you had a genetic test to look for Celiac genes? You must have Celiac genes in order to develop Celiac disease. If you don't have any Celiac genes, your doctors should look for another cause of your illness. Intestinal damage from Celiac disease can be microscopic and patchy, especially in people who haven't had symptoms for long. Gall bladder dysfunction is common in the early stages of Celiac disease. Gall bladder pain occurs on the upper right side of the abdomen. Nausea and acid reflux often accompany. These symptoms can be improved with supplementation of the eight B vitamins, chemical compounds the body cannot make so must get from food. Acid reflux, nausea, brain fog, gall bladder dysfunction are symptoms of deficiencies in B vitamins Niacin and Thiamine. The eight B vitamins work in concert together, so taking a B Complex containing the activated forms of B vitamins is essential with Celiac. Thiamine in the form Benfotiamine helps with the gall bladder dysfunction and brain fog. The B vitamins are water soluble and easily excreted if not needed. Taking B Complex and additional Thiamine in the form Benfotiamine is beneficial and safe. Doctors aren't taught about vitamins, so the deficiency symptoms that you have are easily misinterpreted. Other vitamins like Vitamin D and essential minerals like magnesium are often low in the newly diagnosed. Supplementing with B Complex can improve symptoms. -
Welcome to celiac.com, @cc90! Had you been experimenting with a gluten free or reduced gluten diet prior to getting the TTG and the endoscopy/biopsy? If so, it would have skewed the test results, including the endoscopy/biopsy, toward the negative range. Was the TTG-IGA the only blood test run for checking into celiac disease? Did they also do a Immunoglobulin A (IgA) (aka, "total IGA") test to check for IGA deficiency? This should always be run along with the TTG_IGA test. If you are IGA deficient, then the IGA tests such as the TTG will not be reliable.
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