Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

To All Our Guests....

Lisa

By Lisa
in Introduce Yourself / Share Stuff

Recommended Posts

Lisa Mentor
Lisa
Posted

To all of those who read, learn and are searching...please feel free to join us. It's affirming to know that you are not alone, to find others who can help trouble-shoot your concerns, get assistance from those who can point you in a direction or just to seek comfort in those who have walked in your shoes.

Not all answers can be found here, but it's a good beginning.

Join us! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Financialman Newbie
Financialman
Posted

Hi Lisa,

I am brand new to this forum but not to Celiac disease. I finally decided to get involved in a Celiac forum and I am totally amazed with how many people are involved in this one. I hope to be able to add my voice and help all the newbie Celiac members.

Lisa Mentor
Lisa
Posted
  • Author

Hi Lisa,

I am brand new to this forum but not to Celiac disease. I finally decided to get involved in a Celiac forum and I am totally amazed with how many people are involved in this one. I hope to be able to add my voice and help all the newbie Celiac members.

GREAT! Looking forward to it! :D

jerseyangel Proficient
jerseyangel
Posted

Welcome Financialman! :D

  • 3 weeks later...
mom2three23 Newbie
mom2three23
Posted

I was recently diagnosed and am just trying to get my bearings and came across this site! I am so happy I could cry . . . I have so many questions, and yet feel I'm so 'green' I'm not even sure what questions I should be asking. Short of a diagnsis - of which I basically handed to the doctors after years of being sick, at times quite seriously - the doctors haven't been much help at all. So I have become an internet junkie! SO happy to have "found" you!

Lisa Mentor
Lisa
Posted
  • Author

I was recently diagnosed and am just trying to get my bearings and came across this site! I am so happy I could cry . . . I have so many questions, and yet feel I'm so 'green' I'm not even sure what questions I should be asking. Short of a diagnsis - of which I basically handed to the doctors after years of being sick, at times quite seriously - the doctors haven't been much help at all. So I have become an internet junkie! SO happy to have "found" you!

WELCOME!!!

No matter where you have been, there is someone here that has walked in your shoes. :)

So glad you have joined us.

Judy3 Contributor
Judy3
Posted

I've been on this site for a few months since my diagnosis and you guys have been very helpful and friendly. I'm doing excellent now on the gluten free diet or 'the celiac diet' as my gastroenterologist refers to it. Welcome to the new people, we need all the voices we can get so this isn't so difficult.

:D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bookworm25 Newbie
Bookworm25
Posted

Hi,

I have always been coeliac so in one way it is good as I do not know what I am missing, if indeed I am missing anything at all! I do however get a twinge of jealousy as my friends order anything they like from restaurants and their food shopping trips are quicker as they do not have to check all the ingredients but it certainly could be worse!

I have only recently joined this site and already there is a lot of help on here!

Natasha

Financialman Newbie
Financialman
Posted

Hello to everyone. It looks like community is growing,slowly, but growing. I have been spending time looking around for the last two weeks or so and there is a wealth of information here. We need to recommend this forum to all our Celiac friends. :)

Financialman Newbie
Financialman
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

kareng Grand Master
kareng
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

She talks a lot ( like me) :ph34r:

psawyer Proficient
psawyer
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

Over 6,600 of them are in one topic. :blink:

jerseyangel Proficient
jerseyangel
Posted

I forgot to ask Jerseyangel how you were able to have over 18,812 posts on this forum since 2005? :)

:lol: As my friends have pointed out (and thank you both so much...Peter with statistics, even... :blink: )-- I do like to talk....but silly-ness aside, back in 2005 I had been undiagnosed and sick for over 20 years before finding out what the trouble was. By then, I had been told it was all in my head for so long and kept so much to myself about dealing with the symptoms that when I stumbled onto this site while looking up an ingredient and saw people actually talking about this--I wanted to be a part of it.

The only thing was--at that time I was not computer literate at all (a slight problem :D ) --I was using the kids' computer to try to look up that ingredient and when I finally came up for air after reading practically the whole forum--I had to ask my son how to register and post. :P

Needless to say, I caught on pretty quickly--which I guess is where the 18,000+ posts come in. :rolleyes: I will forever be grateful for the camaraderie, support, information, and finally friendship I found here so I stay on and try to make myself useful in between the fun.

mushroom Proficient
mushroom
Posted

Over 6,600 of them are in one topic. :blink:

Dang! What other statistics can you come up with?? :o

Financialman Newbie
Financialman
Posted

Thanks for the response Jerseyangel and your friends psawyer and kareng. Not to ignore psawyer (4,000+ posts is also a lot) but kareng has over 3,000 posts in little over a year which is also amazing. What's your story?:D

kareng Grand Master
kareng
Posted

Thanks for the response Jerseyangel and your friends psawyer and kareng. Not to ignore psawyer (4,000+ posts is also a lot) but kareng has over 3,000 posts in little over a year which is also amazing. What's your story?:D

I'm trying to beat Patti (Jerseyangel)! Or as some would say - I talk too much!

lexusca Rookie
lexusca
Posted

Hey there I was daignosed this morning and found this forum, any and all info I can get is great. Glad there is a place out there for this

jerseyangel Proficient
jerseyangel
Posted

Hey there I was daignosed this morning and found this forum, any and all info I can get is great. Glad there is a place out there for this

Welcome lexusca, and be sure to let us know how we can help :)

RoseM Newbie
RoseM
Posted

Hi. This is my first post. I'm so excited to have found this forum! :) I was actually diagnosed about a year and a half ago. Ever since then I've sorta been "going it alone" as far as Celiac and the gluten free diet goes. (I mean, I do have a really supportive extended family but I don't get to see them very often. In my day-to-day life, I don't know anyone with Celiac Disease or anyone on the diet.) So it's really awesome to have found a whole community of people who understand. And there's so much information here. I wish I'd found it sooner. :)

mushroom Proficient
mushroom
Posted

Glad you decided to join us, Rose. Welcome, and let us know if there is anything we can do for you.

kareng Grand Master
kareng
Posted

Hi Rose!

  • 3 weeks later...
Tutti Frutti Newbie
Tutti Frutti
Posted

Hi everyone :) I am so happy to have found your forum. For months I have been praying to find out what is "wrong" with me. I do not know anyone with Celiac Disease so I have found many of your posts to be helpful. I have not been diagnosed, I am a student and only have the basic student insurance which means that I can only go to the clinic on campus.

I have experienced muscle twitching, pain and numbness. After eating a meal I get a fever then chills. One day I am constipated and the next day I have dia.... I have lost muscle mass and my hair has been falling out. I feel tired but I can't sleep.

When I eat dairy or soy I get sick and break out so I suspect that gluten could be a problem too. All of this has wrecked my self esteem because I appear to be a pessimistic,crazy person with an eating disorder. Everyone thinks that I must be making up my symptoms.

I am eliminating gluten from my diet. This is the first week and I already notice no flushing or fevers after eating.

Thanks again :)

  • 2 weeks later...
Terri O Rookie
Terri O
Posted

Well imagine that!!! I go to search around the forum (after reading everything in a couple of places) and I find that you are all here! This forum has been a Godsend to me and I thank all you knowledgeable folks for making it so. I have found many answers just by reading! The links people post are fascinating and helpful too. It is so helpful to know that I am not alone in this! THANKS! Terri O

  • 2 months later...
sandsurfgirl Collaborator
sandsurfgirl
Posted

Hi. This is my first post. I'm so excited to have found this forum! :) I was actually diagnosed about a year and a half ago. Ever since then I've sorta been "going it alone" as far as Celiac and the gluten free diet goes. (I mean, I do have a really supportive extended family but I don't get to see them very often. In my day-to-day life, I don't know anyone with Celiac Disease or anyone on the diet.) So it's really awesome to have found a whole community of people who understand. And there's so much information here. I wish I'd found it sooner. :)

You may even meet some real life friends from this board. Two of my greatest and most wonderful friends I met from this very board! We go out for gluten free girls nights and gripe about celiac on the phone and it's great.

With all the info I get here I recruited a celiac. I got a friend to realize that she and her kids needed to go gluten free. They couldn't afford the testing and had insurance issues. So they are healthy and doing great now gluten free and we have gluten free playdates.

Alex'sMum Newbie
Alex'sMum
Posted

Hi :)

My son (9) has just had a positive blood test for coeliac and is waiting for the biopsy. In the mean time I've been reading everything I can. It's been quite a shock, but this forum has been a real help. Reading peoples posts, and realising we're not alone in this and we'll get the hang of it has really helped. My daughter and I are being tested tomorrow, but I'm not worried anymore - we'll deal with this as a family anyway.

Thanks for being such a friendly supportive community :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,200
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...