Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Had My Colonoscopy Thursday.


cahill

Recommended Posts

cahill Collaborator

Last Thursday I had a colonoscopy.

I am 54, have celiacs and have been having some symptoms that lead my doc to believe a colonscopy was in order.

Actually my doc has been after me to have one for the last couple of years ,, something about being over 50 <_< . I always have come up with excuses to put it off.

Well my GI doc was not so easy to put off :P

So I agreed to have one :huh:

From the time I agreed to have it until it was done I did nothing but whine and worry about having it.

I even posted in these fourms whining about the prep and my worrys.

Everyone was patient and informative. I was still nervous and embarrassed.

So ,I do the prep ( not nearly as bad as I expected)

I go in Thursday and staff was wonderful,they were patient ,professional and listened to me whine and worry :rolleyes: and said " it will be OK"

And it was, they gave me some meds, I dont remember anything of the procedure, got up ( after the procedure :P ) and walk to the car and went home. Had lunch and took a nap B)

After spending the last couple of years putting it off ,then when I finally agree to have one,I wasted 2 weeks whining and worrying over something that turned out to be simpler then many other procedures I have had.

A simple procedure that potentially could have saved my life.

I had my colonoscopy last Thursday. Have you had yours??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

After spending the last couple of years putting it off ,then when I finally agree to have one,I wasted 2 weeks whining and worrying over something that turned out to be simpler then many other procedures I have had.

:lol: :lol: :lol: So true for many things in life. It's generous of you to be so honest about your actions so the rest of us can't put up any excuses.

Diane-in-FL Explorer

Yes, I have had mine, but, for some of us, the prep is absolutely awful. :( I guess it depends on your doctor and what method he or she uses. The procedure itself was a piece of cake and they didn't find anything, so I'm glad for that. But I will be VERY reluctant to ever have another one.

cahill Collaborator

:lol: :lol: :lol: So true for many things in life. It's generous of you to be so honest about your actions so the rest of us can't put up any excuses.

sooooo ya had one :P ??

cahill Collaborator

Yes, I have had mine, but, for some of us, the prep is absolutely awful. :( I guess it depends on your doctor and what method he or she uses. The procedure itself was a piece of cake and they didn't find anything, so I'm glad for that. But I will be VERY reluctant to ever have another one.

I sorry the prep was awful for you Diane,,, can I ask what kind of prep your doc had you do??

Jestgar Rising Star

sooooo ya had one :P ??

:lol: :lol: I have a few more years to fuss and whine before I'm expected to go under the "scope". :P

Diane-in-FL Explorer

I sorry the prep was awful for you Diane,,, can I ask what kind of prep your doc had you do??

I had to take enormous pills. 4 at a time every 15 minutes until I had taken 12. First round was at 11am, then again at 5pm. They started to work before I even finished the first dose and I literally had to sit in a chair by the bathroom door all day and well into the evening. It was brutal. I drank lots and lots of liquid but still got dehydrated. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

I had to take enormous pills. 4 at a time every 15 minutes until I had taken 12. First round was at 11am, then again at 5pm. They started to work before I even finished the first dose and I literally had to sit in a chair by the bathroom door all day and well into the evening. It was brutal. I drank lots and lots of liquid but still got dehydrated. :(

WOW, I would be reluctant to do that too :(

Mine was 1 pill then I mixed a powder into 2 liters of water and had to drink 8 oz every 15 to 30 min until it was gone. I started the prep at 3;30 and was done by 9;30 went to bed and got up once during the night and one more time in the morning and I was done.

WOW I guess what the prep is makes a BIG difference

sa1937 Community Regular

I had my colonoscopy last Thursday. Have you had yours??

Yes, and I whined and worried, too. The prep was nasty but thankfully I wasn't nauseated and I managed to drink every last drop. The procedure itself was easy except I was dehydrated and they had a hard time with the IV.

But overall, I was more concerned when I had my endoscopy as I'm not used to invasive procedures.

luvs2eat Collaborator

I had mine at age 48, when I went to a GI doc for what turned out to be celiac disease. He ordered a bunch of bloodwork and said that 48 was close enough to 50, so a screening colonoscopy was in order. He then warned me that he wasn't a doc to use tons of anesthesia. I'd seen colonoscopies and endoscopies in nursing school many years before (where they gave you a valium and shoved a huge scope tube down your throat and kept saying, "Swallow!! Swallow!!" Yikes!!) so I wasn't worried.

I had a Go-Lightly prep... a gallon of soapy water to drink till "things" ran clear. I only had to drink about 2/3 of it. The procedure itself was fascinating. I got to watch the whole thing and ask lots of questions.

It was after the procedure that my doc said to me... "I have good news and bad news." I opted for the good news first. He said, "I know how to stop your unrelenting diarrhea." I asked for the bad news and he told me I could never eat wheat, rye, barley, or sometimes oats again."

The procedure itself was such a NOTHING that my PCP asked me to please tell all my friends so they wouldn't be so worried when it was their turn!

sreese68 Enthusiast

WOW, I would be reluctant to do that too :(

Mine was 1 pill then I mixed a powder into 2 liters of water and had to drink 8 oz every 15 to 30 min until it was gone. I started the prep at 3;30 and was done by 9;30 went to bed and got up once during the night and one more time in the morning and I was done.

WOW I guess what the prep is makes a BIG difference

I had this prep (the liquid) and my reaction was as brutal as the above poster's. It was awful. Took me two days to recover; however, I don't react well to anesthesia, so that doesn't help. Saying that, I'll do it again when I turn 50. It really is an important screening tool.

Gemini Experienced

I had to take enormous pills. 4 at a time every 15 minutes until I had taken 12. First round was at 11am, then again at 5pm. They started to work before I even finished the first dose and I literally had to sit in a chair by the bathroom door all day and well into the evening. It was brutal. I drank lots and lots of liquid but still got dehydrated. :(

You never know how awful it may be until you go through it so it isn't something I intend to do anytime soon. I know many who complained they became horribly dehydrated. So sorry it was a bad experience for you. Colonoscopies are a valuable tool for screening but I think they pressure people too much and not everyone needs to have one just because they have a 50th birthday. I admire the bravery of those who do!

Roda Rising Star

Yep I had a colonoscopy two months after my celiac diagnosis in 2008. I was 35 so I really whined and worried. Doc removed a polyp and after he told me that the pathology came back as benign, I don't have to have another one for 10 years. Still, that puts another one at 45. I'll whine again because that will still be two colonoscopies before age 50!! :o:P:lol:

cap6 Enthusiast

I've had 2 and both were nasty. The preps were no big deal but both times I woke up during the procedure and compare the pain to childbirth. Dr says I have a badly twisted colon so that was part of the intense pain. Hopefully it will be a looong time till the next. I hope.....

Cattknap Rookie

I had my first colonoscopy (actually I had both upper and lower GI) and was amazed how easy it was. The prep is not fun but certainly it is only short term...the procedure itself was a piece of cake...sorry I put it off for so long.

ravenwoodglass Mentor

I've had 2 and both were nasty. The preps were no big deal but both times I woke up during the procedure and compare the pain to childbirth. Dr says I have a badly twisted colon so that was part of the intense pain. Hopefully it will be a looong time till the next. I hope.....

I have had 3 and during the second one I had the same experience. My bowel wasn't twisted with the first and that was an easy experience. The second one was after the horrible reaction to the second gluten challenge and I had the same experience you did. That doctor, the same who ordered the second challenge, said they would do it again but with a general anesthesia in the hospital with an anesthesiologist rather than in the outpatient facility. I then decided to change GI doctors and my new doctor was told of the experience I had. He did a double scope with an anesthesiologist present and the procedure went smoothly. If you have the procedure done again tell them what happened and ask for a general anesthesia and you should have no problems.

sa1937 Community Regular

I guess I was fortunate. I had an anesthesiologist for both my endoscopy and colonoscopy even though I was not under general anesthesia. I can't imagine having either one any other way.

Roda Rising Star

I guess I was fortunate. I had an anesthesiologist for both my endoscopy and colonoscopy even though I was not under general anesthesia. I can't imagine having either one any other way.

I had a CRNA (Nurse Anesthetist) for all of my procedures and they gave me diprivan(Propofol) IV. At work we jokingly refer to it as milk of amnesia. I don't remember a blasted thing. During my first EGD the doc said I kept waking and was swinging at people. I don't have any recollection of it at all. When it came to the colonoscopy and my second EGD they must have given me more because I was groggy a lot longer afterwards and no reports that I was swinging at anyone. I still didn't remember anything which is good!

sa1937 Community Regular

I had a CRNA (Nurse Anesthetist) for all of my procedures and they gave me diprivan(Propofol) IV. At work we jokingly refer to it as milk of amnesia. I don't remember a blasted thing. During my first EGD the doc said I kept waking and was swinging at people. I don't have any recollection of it at all. When it came to the colonoscopy and my second EGD they must have given me more because I was groggy a lot longer afterwards and no reports that I was swinging at anyone. I still didn't remember anything which is good!

I also had diprivan and thankfully it worked beautifully. I don't *think* I came out swinging but I was really loopy after the endoscopy but not so much after the colonoscopy. On each follow-up, my GI asked me if I felt anything and I didn't. And I don't remember a thing either...now that's all good!

cahill Collaborator

I also had diprivan and thankfully it worked beautifully. I don't *think* I came out swinging but I was really loopy after the endoscopy but not so much after the colonoscopy. On each follow-up, my GI asked me if I felt anything and I didn't. And I don't remember a thing either...now that's all good!

I dont remember any thing of the procedure either.

I remember being in the procedure room,telling the nurse I "felt funny" she said it was the meds they were giving me.

The next thing I remember I was in recovery with the Doc talking to me telling me how things went. I vaguely remembered what he said and had to ask the nurse to read me the report the next day when she call check in on me.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    2. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,920
    • Most Online (within 30 mins)
      7,748

    MLSpade
    Newest Member
    MLSpade
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.