Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Aim For Gluten Free Or Completely Grain Free?


ErinP

Recommended Posts

ErinP Newbie

Just curious how others are managing this.

I realize gluten free is the rule of the thumb.

But, the more I research, both prior to diagnosis and after, the more I think gluten-free isn't good enough. Personally, I aim for completely grain free. I have corn periodically and that's about it.

Grains are calorically dense and nutrient poor, not to mention the fact that they are more likely to be digestive irritants, even in people without gluten intolerances.

I tend to think gluten free baked goods, cereals, etc. should be rare treats, rather than standard fare.

Am I the only one?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



domesticactivist Collaborator

We're totally grain free as well. We're actually doing the GAPS Diet.

Marilyn R Community Regular

I agree with limitting the gluten-free baked goods and cereals, but I still like my rice.

I grew up in the midwest and was a "cornasoir", loved it. And I loved hispanic foods. About one year after going gluten-free, I developed an intolerance to corn, so corn is out for me.

Rice hasn't bothered my digestive system so far. I'm iffy on gluten-free oats, but I don't like oatmeal, I was just trying to make a good fruit cobbler, but never found a gluten-free recipe that I thought was really good.

I'll never stick any form of Quinoa in my mouth again.

Everybody's autoimmune system responds differently, though. It's wierd.

For now, I'm doing gluten-free, soy, dairy and corn free, so that limits virtually all processed foods except a few canned meats, canned or frozen veggies, peanut butter and coffee. It makes grocery shopping fairly quick, but I make a separate stop at a produce market. (Prices and quality are so much better there.)

One thing that helped was to check out Indian Cookbooks from the library. Many recipes are gluten-free and very tasty. And I've never seen soy in an Indian recipe. (Noted your thyroid problem in your tag.)

Good luck to you, hope this helps. :)

ErinP Newbie

domestic, other than the particular care for gluten, GAPS looks almost identical to a Paleo diet. Which is what I follow.

I've actually been low-carb for the better part of two years and wouldn't have even known about the whole celiac thing except for being hospitalized this spring for four days.

The doc was positive it was Crohn's. Until he looked at my colonoscopy and decided no, it's probably celiac... When I told him I'd had a two week binge on sugar and flour (things I haven't indulged in at all for months!) he said yep. We can do more testing, but it would probably be easier just to go gluten-free and call it good. ;)

When I got out of the hospital, to treat my supposed-Crohn's, I made a minor shift from my low-carb diet to a hybrid version of the Specific Carb diet and a Paleo diet. Basically just knocked out peanut butter and most dairy.

I know what you mean about corn, marilyn. I live on the line between Kansas and Nebraska. We grow a bit of corn in our part of the world. lol On the other hand, I married a working cowboy, so what we REALLY have to have in our house is beef.

Lots of beef. :D

srall Contributor

I aim to be grain free, but a couple of times while out to eat I've eaten a small amount of rice. I felt a little "jointy" (my word for sore joints) the next day. I'd like to keep rice as an option for when we're traveling, but I don't eat it at home. Going grain free was the final hurdle in my diet (and nuts too I am discovering). My joint pain and fatigue sort of cleared after I lost the grains. However I am not trying to be specifically low carb since I'm 43 and still pretty underweight. So I eat a lot of fruit smoothies and white potatoes, and also sweet potatoes. There is diabetes in my family so I'm still watching for that.

domesticactivist Collaborator

Yes, GAPS is very close to both Paleo and SCD. The main difference is that GAPS takes a phased introductory approach and focuses on regular consumption of bone broth and home-fermented foods. The full GAPS program also includes detoxification and some supplementation. One of these days I'm going to make a proper post with the nuances pulled out.

sb2178 Enthusiast

I have no problem eating grains. Rice and corn are both regular parts of my diet, as is buckwheat and to a lesser extent, quinoa and wild rice. I do eat less than I did pre-diagnosis, but I also eat more potatoes and sweet potatoes. Probably more like 1 cup grain (or 3 tortillas, or 2 muffins) per day instead of 3.

Oats (gluten-free), well, I keep trying them and deciding that was a bad idea.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I generally feel better if I include some complex carbohydrates in my diet. To keep things varied I do include non-gluten grains. Otherwise I'd eat an awful lot of potatoes.

lynnelise Apprentice

I eat all non-gluten grains minus oats. So far I don't notice any reactions other than oats. The certified gluten-free oats just do not agree with me at all.

chasbari Apprentice

I have turned to a combination of SCD and paleo and am grain free. With the state of GMO corn I wouldn't touch it with a ten foot pole. Grain free has allowed me to be very high functioning physically when four years ago I could barely move due to the severity of my accompanying rheumatoid arthritis. I tried rice but found difficulty with blood sugar regulation. Relatively low carb seems to help as well. Lots of good fats which really seem to taste good now. Years ago I wouldn't have eaten things that I now do.

Poppi Enthusiast

I eat lots of grain. Quinoa and rice in particular are consumed very regularly in our house.

If you are grain free and looking for baked good Elena's Pantry appears to be grain free. She uses mostly almond flour and some coconut flour in her recipes but I don't recall seeing grains at all ... or dairy or soy come to think of it.

Korwyn Explorer

Almost totally grain free here as well.

jstwnttbhealthy Newbie

since eggs are out and most fruit, i have not much choice but to eat some grain for breakfast. i really like my quinoa and buckwheat (alternating between them) with vegetalbes. occationally millet and amaranth. glutenfree oats and rice does not seem do agree with me too much. iffy on the potatoes as well (white and sweet). corn is ok.

Strawberry-Jam Enthusiast

idk... I practically live on rice. I have rice every day pretty much, in some form or another, usually stir-fried with meat and egg or smth. Other times I'll have rice bread or chex.

I try to avoid corn for the most part but I don't avoid it like I do gluten or soy. I don't do much with other grains tho. I did buy some cream of buckwheat but I haven't tried it yet.

injust10pages Newbie

For most people when starting to deal with their gluten intolerance or celiac disease aiming to go entirely grain free is the best route. Until you can develop a strategy and a routine I think it is the best decision. There are several 'safe' grains out there but when starting its wise to remove all grains from your diet.

Any thoughts?

Thanks for the topic.

Marilyn R Community Regular

Overwhelming response, isn't it? The truth is, everybody cares. And here's something I searched and posted for you... Buckwheat is a pseudocereal that is eaten like a grain, though botanically it is neither a cereal nor a grass. Rather, it is a seed from the herb family Fagopyrum. Buckwheat is not related to wheat, and contains no gluten, so it can be safely eaten by those with celiac disease or gluten intolerance."

Hope I get to use the term "pseudocereal" in a conversation soon. How about "Are those really gluten-free Rice Checks or is that psuedoceral?" (AKA "Did you make buckwheat?) If I have to do the cooking, things could get fun. "We're having strawberry pseudocereal today!"

By the way,buckwheat cooks faster in the morning if you soak it overnight. It's yummy with any fruit.

domesticactivist Collaborator

Buckwheat is delicious and we really liked the pie crusts we made with it and the pancakes, too. HOWEVER - it "glutened" us horribly. I don't know if it was cross-contaminated or was just causing us problems all on its own, but it's definitely on my list of things to watch out for.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.