Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Day Of Chemo Went Well


bonnie blue

Recommended Posts

bonnie blue Explorer

Good morning friends,

Well yesterday was my first day of chemo, actually my daughter and I don't like the name so we have decided to call it the cocktail hour, sounds much better right. :) Anyways it is a very aggressive treatment, and of course with the Celiac disease that makes it that more fun. I have three chemo drugs, along with steroids, anti-nausea meds, magnesium, and I cant remember the name but also a drug to keep my white count up. The good news is that I have a port so it is only one poke at the beginning of the day, and you know what I can't even feel it, so that is good. Their main concern now is keeping my weight stabilized, my goal is to make it through the two months of chemo without having to have a feeding tube, so I am eating every two hours, just small amounts, my husband and girls have been great about reminding me, actually they made two signs for me in the house that say "Don't forget to eat!"

So I am still in very good spirits, the doctors, nurses, everyone who is treating is very optimistic about a good outcome, I know this will be a very difficult time, the worst time will be the stomach surgery, but right now just taking this one day at a time. Thank you all so much for the support it means so much to me, sending out hugs and good thoughts to all. B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

blessings & prayers are being sent your way...

Diane-in-FL Explorer

Hugs!! I am hoping that you get through this OK.

bigbird16 Apprentice

Keeping you in my thoughts and prayers!

BabsV Enthusiast

Good luck! I hope everything goes smoothly.

ravenwoodglass Mentor

((((((((((((((((((HUGS))))))))))))))))

Keeping you in my thoughts and prayers. I hope things continue to go smoothly.

DonnaMM Explorer

I am sure you will do just fine!!! Just be positive! Don't stress too much about the feeding tube they can be very beneficial and easily removed after treatment. I have been through chemo before and although my treatment was fairly easy and everyone's experience I different feel free to email me if you need to vent. Your family will be best your support thought this. My prayers are with you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



navigator Apprentice

Glad your first cocktail hour went well. Great idea to rename it and take control :D. Hope it continues to go well. Thinking about you and your family.

Jestgar Rising Star

We're here with you Bonnie B. Stay strong.

lizzy59 Newbie

I'm new to the forum, but still want to wish you the best--my thoughts and prayers go out to you!! As someone else said, take it one day at a time. God bless!

lucky28 Explorer

Good idea~coctail hr!lol glad to hear everything is starting out well! Good luck, keep us updated!

Reba32 Rookie

looks like you're discovering ways to deal with this in a positive light, that's awesome :) Cocktail hour it is! LOL

Skylark Collaborator

I so glad to hear the first treatment went well. Good luck!!!

Celtic Queen Explorer

The Cocktail Hour...I love it. I've heard that keeping a good attitude during chemo can really help you fight the cancer. Sounds like you're already ahead on that score.

Gemini Experienced

Bonnie...I am a very tough person emotionally but your bravery and good spirits leave me in awe. I am one of those very thin celiacs

who was close to a feeding tube at diagnosis so can understand totally your concern over possibly having one. Eating every 2 hours sounds like

a fantastic plan and I hope the weight sticks to your frame with every bite! You are an amazing person and I look forward to your continued reports and well being. Keep up that amazing spirit!

Bubba's Mom Enthusiast

Thanks for letting us know how it's going for you. I like the renaming to cocktail hour. ;)

It sounds like you still have your sense of humor? It will help you get through this. I admire your positive attitude.

(((hugs)))

mushroom Proficient

Way to go, Bonnie. Each day at cocktail hour I will sip and send best wishes your way. You have a great attitude. {{{hugs}}}

pricklypear1971 Community Regular

So glad it went well. Cocktail hour always does, right?

sahm-i-am Apprentice

Stay strong Bonnie, but if you need to let loose and vent know we are here! Thinking happy positive thoughts for you and your family.

Wendi

Googles Community Regular

I'm glad to hear your first cocktail hour went well. I love the name.

AVR1962 Collaborator

Wonderful news!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    2. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

    4. - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,842
    • Most Online (within 30 mins)
      7,748

    Julia Duffee
    Newest Member
    Julia Duffee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.