Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mouth Sores


Lady Jane

Recommended Posts

Lady Jane Newbie

One of the symptoms I had that I thought was use to celiac was constant mouth sores. Usually behind my back teeth, on the roof of my mouth, or on my lower lip in the front. Well, I've even off gluten for eight days and now I have another mouth sore. Do you think that means that the sores are unrelated to gluten? I'm pretty confident that I was not accidentally "glutened".


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

Try dry mouth toothpaste (check for gluten).

I also used to put some Dr. Tichenor's on the mouth sores or wash my mouth out with it (dilute it for mouthwash and check for gluten). I would put some straight on a cotton swab, and hold it on the sore. Burns like holy heck but it numbs it and would stop it from getting bigger.

And acidic foods make them worse.,.

ScarlettsMommy Explorer

I get them too but i also have crohns along with celiac and my dr says the sores r from my crohns

red island Newbie

The reason I was eventually diagnosed with celiac was because of mouth sores. My dentist took one look and told me to get tested. That was 3 months ago and I still periodically get sore gums and mouth - not sure if from cc or because the celiacs is still active. I am using Biotene mouth wash and it seems to help.

lovegrov Collaborator

I think eight days is too soon to really conclude much of anything.

richard

AVR1962 Collaborator

Are you talking canker sores? I have been gluten-free for 8 months and am still having trouble with canker sores.

Lady Jane Newbie

I don't think that they are canker sores. The are white in the middle with little bubble blisters and then red around the outside. They are terribly painful and irritating.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



red island Newbie

I don't think that they are canker sores. The are white in the middle with little bubble blisters and then red around the outside. They are terribly painful and irritating.

Sorry, I'm from the pre-computer era, I meant to say that my sores looked like that too and I was told by the dentist that it was a sign of active celiac or other autoimmune disease

IrishHeart Veteran

I had recurring mouth/gum sores before DX.

As Richard has suggested, it may be too early for them to have disappeared just yet. You may still have them pop up for a few weeks-months.

It does not necessarily mean you were glutened or that they are related to anything else.

Give it some time. Mine are all gone now. :)

IrishHeart Veteran

Are you talking canker sores? I have been gluten-free for 8 months and am still having trouble with canker sores.

Try some L-Lysine. It's an amino acid and very helpful for canker sores.

AVR1962 Collaborator

Try some L-Lysine. It's an amino acid and very helpful for canker sores.

Thanks IrishHeart, seems like I am contniually thanking you for the info. Funny, now that you mention Llysyne, I actually stopped taking it because doc said it was a waste of money and now that I think about it, that's when I started having problems with canker sores.

I did some research on canker sores online and it was suggested that sodium lauryl sulfate in toothpaste was the problem but my toothpaste does not have this. So I will pick up some more Lysyne and see iff that takes ace of the problem.

IrishHeart Veteran

Thanks IrishHeart, seems like I am contniually thanking you for the info. Funny, now that you mention Llysyne, I actually stopped taking it because doc said it was a waste of money and now that I think about it, that's when I started having problems with canker sores.

I did some research on canker sores online and it was suggested that sodium lauryl sulfate in toothpaste was the problem but my toothpaste does not have this. So I will pick up some more Lysyne and see iff that takes ace of the problem.

(chuckling) most docs pooh-pooh supplements--which is odd because they give us Vitamin D when we are low, B-12 when we are low, etc.--so obviously, supplementing is sometimes necessary. We do need to pick and choose of course, because over-supplementing is not beneficial either.

Celiacs are low in essential amino acids because of prolonged malabsorption. L-lysine is an amino acid. I had success using it--it was suggested by a friend who had awful canker sores her whole life--and it worked. Avoid OJ and tomato juice for a while. Give it a few weeks. If it works, great! Just a thought. Cheers, IH

beebs Enthusiast

That was one of mine, ulcers I mean. It is only starting to become noticeably less now, and I

ve been gluten-free for almost 12 months - these things take time!

Skylark Collaborator

It took months for me to stop getting canker sores. Eight days is nothing. The gluten is barely even getting out of your body.

Lady Jane Newbie

Good to know that eight days isn't long enough. I'm fine waiting... I just was concerned that maybe it meant I was wrong in connecting the two (sores & celiac). Thanks everyone!

Lori2 Contributor

My daughter's canker sores were diagnosed at Mayo Clinic to be due to iron malabsorbtion--a common celiac problem. Get your iron levels checked, not just hemoglobin, but also ferritin, % of saturation, etc. Your problem will probably not resolve until you start absorbing nutrients properly.

cap6 Enthusiast

I had horrific mouth sores prior to diagnosis, 8 to 10 at a time to the point where I couldn't talk. After a couple of months they lessened. At 21 month I still get one from time to time but they no longer get to the ulcerated point, just uncomfortable. Give it time.

AVR1962 Collaborator

I started taking L-Lysine about a week ago, advise from IrishHeart, and my canker sore is almost gone. And, been abttling with a yeast infection again and couldn't figure out why. That too has cleared up.

IrishHeart Veteran

I started taking L-Lysine about a week ago, advise from IrishHeart, and my canker sore is almost gone. And, been abttling with a yeast infection again and couldn't figure out why. That too has cleared up.

Glad it helped. :) Those things have any number of causes but the L-lysine has worked for me. RE: the yeasties---are you taking probiotics??

AVR1962 Collaborator

Glad it helped. :) Those things have any number of causes but the L-lysine has worked for me. RE: the yeasties---are you taking probiotics??

I am taking a probiotic. However, this last one was one I picked up at the grocery store and not as good, probably, as the one I normally take. Need to order the one I prefer.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,916
    • Most Online (within 30 mins)
      7,748

    Ykat
    Newest Member
    Ykat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.