Jump to content

Scott Adams

Admin
 View Profile  See their activity

  • Posts

    28,300

  • Joined

  • Last visited

  • Days Won

    615

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Scott Adams

  1. Scott Adams
    It could be related to celiac disease, and a quick search of our forum did show that several other people had this symptom: https://www.celiac.com/search/?q="protein in urine"&updated_after=any&sortby=relevancy Here are some summaries of kidney issues and celiac disease studies: /celiac-disease/celiac-disease-amp-related-diseases-and-disorders...
  2. Scott Adams
    I've not seen any studies done on that question, but do know from years of reading posts here that it varies greatly from person to person, and those with DH seem to have the longest recovery times, even from very tiny amounts of gluten. For those with gastro symptoms recovery seems to take days. For those with neurological or DH symptoms it can take weeks...
  3. Scott Adams
    It would be interesting to run a gluten test on it...I'm nearly out of test capsules for my Nima Sensor, so I hope the new company gets them going again.
  4. Scott Adams
    I agree with @trents and your initial diagnosis, if correct, really meant that you should have been gluten-free for life. At this point the important thing is to keep eating gluten daily until all of your testing is finished, because going gluten-free before any tests may make the results false-negative.
  5. Scott Adams
    Vitamin and mineral deficiencies are very common, especially in those who are newly diagnosed. Are you taking supplements that include a B Complex, as well as D? Have you had your levels re-checked?
  6. Scott Adams
    There are many brands of rice milk now, and the biggest one is probably Rice Dream, which is gluten-free: https://www.dreamplantbased.com/product/rice-dream-classic-original-organic-rice-drink/
  7. Scott Adams
    Welcome the forum, and I had the same question as @trents, and if the answer is yes, can we assume that you had a bone density test and have possibly been diagnosed with osteoporosis or something similar? Of course your doctor knows much more than we do at this point, and there must be a good reason why they prescribed Prolia.
  8. Scott Adams
    Welcome to the forum. I think your perpetuating a misconception here. A food labeled "gluten-free" and is therefore under 20ppm definitely does not mean that a food contains any gluten. They do not fortify the foods up to a certain level of gluten. In fact, if any food company with a gluten-free label discovers gluten at any level between 0-20ppm it would...
  9. Scott Adams
    If you are more ambitious we do have a recipe section here: /celiac-disease/gluten-free-recipes/ and a quick search turned up:
  10. Scott Adams
    A lot of people with celiac disease have also reported having gastritis, and when I just searched this forum I found 777 hits on it: https://www.celiac.com/search/?&q=gastritis&type=forums_topic&search_and_or=and
  11. Scott Adams
    Barilla pasta is excellent, and they also make a nice fettuccine noodle.
  12. Scott Adams
    We made this update!
  13. Scott Adams
    The blanket statements that some manufacturers make are indeed unhelpful. Out of an abundance of caution we did remove Godiva from this list.
  14. Scott Adams
    Believe it or not cellulose can be found in foods like grated Parmesan cheese. It’s kind of like a filler so that they can use less cheese and I believe it absorbs moisture so keeps it dry.
  15. Scott Adams
    Welcome to the forum. Be sure that you continue eating gluten daily until all tests are done for celiac disease, otherwise you may end up with false negatives. You could also get a Mail order test for around $100 if you wanted to do this outside of your insurance and doctors. The advantage would be that it could be done far more quickly.
  16. Scott Adams
    Of course it’s possible there could be a contaminated batch out there, but it might be best to just avoid it. Sunflower seeds would be the most likely allergen in it. and I’m not sure what is in their “natural flavour.”
  17. Scott Adams
    Your approach might work fine, or you could also try just adding guar or xanthan gum, and perhaps a bit of tapioca flour, to the traditional masa flour. There are also commercially available gluten-free white flour tortillas available at Trader Joes, Whole Foods, etc. This article may also be helpful:
  18. Scott Adams
    Ok, so just to clarify, you can't do any further testing for celiac disease unless you're eating gluten daily. You may still be able to get a skin biopsy for DH, however, I do believe that going gluten-free for so long may also affect those test results as well, and you could get false-negative results on any of these tests because you are now gluten-free...
  19. Scott Adams
    A quick look at their web site indicates that it is naturally gluten-free, and does not carry "gluten-free" on the packaging, and the only allergens listed are: Contains: Tree Nuts, Milk https://www.swissmiss.com/classics/milk-chocolate-canister Normally, if it had a chance of wheat contamination, they would include wheat as an allergen. None...
  20. Scott Adams
    Yes, and the article below may be helpful. I always take GliadinX enzymes before eating outside my house (full disclosure, they are a sponsor here), as their AN-PEP base enzyme has been shown in many studies to break down small amounts of gluten, like you might get when eating a "gluten-free" meal in a restaurant, in the stomach, before it reaches your intestines...
  21. Scott Adams
    Welcome to the forum. I agree that your doctor should have ordered the tTG-IGA test. If your goal is to get a formal diagnosis that would help you stay gluten-free for life, then yes, you should keep eating gluten daily until all tests are done. However, ~10x more people have non-celiac gluten sensitivity than celiac disease, and for that there is currently...
  22. Scott Adams
    Can you share the reference levels for each test, as each lab has different cut of levels that denote celiac disease?
  23. Scott Adams
    The fastest and best way to stop the itch and rashes, if they are caused by gluten sensitivity, would be to switch to a 100% gluten-free diet. Obviously you're planning a biopsy so need to wait on that, but what if your biopsy is negative? You could still have DH or non-celiac gluten sensitivity and need to go gluten-free.
  24. Scott Adams
    I agree that on the genetic side, new research continues to find new genetic markers associated with celiac disease, for example this new article:
  25. Scott Adams
    Welcome to the forum! If you can get a copy of your celiac positive blood test results and wish to share them here it could provide more insight to your situation. In Europe if your antibody tests are 10x the level for celiac disease they are making the diagnosis without a biopsy. I bring this up because of your family history, and to me it would seem prudent...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.