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Reba32

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Everything posted by Reba32

  1. Reba32
    I don't personally know of any Celiac specific GIs in the GTA, (I was living in the US when I was diagnosed) but your best bet is to contact the CCA or the Toronto chapter info@torontoceliac.org and then ask your GP for a referral. I do know that the tests are NOT covered by OHIP, and the wait is crazy long, a friend of mine waited 4 or 5 months for an...
  2. Reba32

    ARCHIVED Frustrated With Drs

    Reba32 replied to milkmommy's topic in Doctors

    after my Celiac Dx I made my own appointments for a DEXA scan and told my doctor to run vitamin and mineral level tests. I guess it depends on your insurance if you can do that, but if I were you, I'd absolutely insist on proper care. If your doctor won't do it, then find a new doctor. (easier said than done in some areas I know)
  3. Reba32
    I believe most brands of aspirin are gluten free. Check with the pharmacist to be sure, they'll be able to look up in the book. Or call the manufacturer.
  4. Reba32
    are you also nut and dair sensitive, is that why you're asking, or because you just don't have either of those things on hand at the mo? I'm not sure why the original recipe uses almond meal specifically as a sub for the powdered milk, the textures are completely different, and any bread recipe I've seen usually only uses a couple of tablespoons of powdered...
  5. Reba32
    Bruce Fife's Cooking With Coconut Flour is an absolute MUST!
  6. Reba32
    Where do you live? Perhaps there is someone on the forum now who is close by and you could commiserate together.
  7. Reba32
    I go out to eat now and again, but I always call or email the restaurant ahead of time to find out if they can accomodate my needs. If not, I don't go there, I find somewhere else. Family is usually more difficult than restaurants. If someone invites me over I remind them of what I can and can't eat, they assure me there's no problem, and then I get...
  8. Reba32
    problem is, most people don't even know that "enriched flour" or "all purpose flour" found on most ingredients lists is made from wheat, so how would they know that genrally speaking, cous cous is wheat? A woman I used to work with said her mother has Celiac but her doctor told her it's ok to eat spelt. Which is also a wheat. If the "specialists" don't...
  9. Reba32
    basically I self diagnosed, but went to a GI for "official" diagnosis to basically get my (now ex) husband to stop bugging me about food. I had to go back to eating gluten for 8 weeks for the challenge, I had the blood test, then had to wait a while still for the endoscopy. The blood results came back "99.9 % positive for Celiac" and the doc said "don't...
  10. Reba32
    trans fats should be avoided at all costs, they're not good for you even in small doses, and it really is quite easy to stay away from them. Also, a high carbohydrate diet can contribute to high LDL levels because too much carbs in the diet causes the body to store fat. Which unfortunately, quite a lot of peole who go gluten-free have a very high carb...
  11. Reba32
    Raven, I am so sorry for the loss of your beloved dog. And I am sorry that your family is so unforgiving. {{{hugs}}} Just this side of heaven is a place called Rainbow Bridge. When an animal dies that has been especially close to someone here, that pet goes to Rainbow Bridge. There are meadows and hills for all of our special friends so they can run...
  12. Reba32
    I have had continuous vertigo and tinnitus for several months now. Well, the tinnitus I've had since high school (AC/DC and Black Sabbath concerts are very loud!), but it started really screaming last fall, and with the louder tinnitus came the constant vertigo. It never stops, standing, walking, sitting, lying down, doesn't matter. My brain is always spinning...
  13. Reba32
    avocados are better for potassium, and with less sugars than bananas. A banana is about 14.43 grams of sugar and only 422 mg of potassium each. An avocado is about 975 mg of potassium and only 1.3 g of sugars. Plus, the avocado has lots of healthy fats and fibre, the banana, not so much.
  14. Reba32
    it is entirely possible to have a wheat intolerance or allergy, and not a gluten intolerance. If you think wheat and wheat only is the problem, then by all means, have a few sips of beer. (personally just to be safe I wouldn't drink an entire bottle just yet!). Just make sure not to have anything else that day that would typically trigger a reaction. ...
  15. Reba32
    it might be helpful if the FDA illustrated exactly what 20ppm looks like, so consumers will know what a "safe" portion size of gluten looks like. I'm guessing it's quite small. Even so, I do think that article just confuses the matter for a lot of people. I have a friend whose doctor told her she has a "mild reaction" to gluten, (ie: no painful intestinal...
  16. Reba32
    I had all my vitimin and mineral levels tested after my Celiac dx, and everything was deficient. Everything, not just D (though that one seems to be the fashionable one to test most commonly these days, there are several other very important vits and minerals that should be tested). Even with mega-doses of supplements, while your villi are healing,...
  17. Reba32

    ARCHIVED Sad And Angry

    Reba32 replied to Schatz's topic in Coping with Celiac Disease

    when I was diagnosed, I wanted to call every single doctor I had ever seen in my entire life and stuff the photos of my flattened villi in their faces. Not because I was angry at the diagnosis, but because I was angry at all of them, that for 40+ years I'd been misdiagnosed and what would my life have been like had they got it right when my symptoms first...
  18. Reba32
    chocolate in and of itself is gluten free. However, the processing of cocoa into chocolate candies may not be. Some manufacturers use barley as a sweetener (Lindt), some make chocolate bars with cookies n cream (Hershey) or other gluteny ingredients, and most mainstream manufacturers make several different types of candy on any given day, so the machines...
  19. Reba32
    speaking as a person who was diagnosed after age 40, I would tell your friend that he's extremely lucky to have been diagnosed young! I suffered for decades with multiple misdiagnoses, infertility, depression, anxiety, etc etc ad nauseum. And even post diagnosis the fun continues because my body was so damaged I'm just falling apart and in constant pain...
  20. Reba32
    why dumb it down for them? You are being contaminated, if that word frightens them, then perhaps it will encourage them to be careful when parparing food for you. To say you've "been glutened" is probably meaningless to anyone but another Celiac.
  21. Reba32
    they're rarely, if ever, store employees. They're hired by marketing companies to market the brand of food, they're not hired by the store. I'd also find out from the Costco which marketing company brought the person in, and contact them to make sure they know if they're sampling foods labeled as "gluten free" then they should know what that means and why...
  22. Reba32
    It does not wax or wane with eating. It is constant. All day, every day. Use of chemical pesticides and herbicides were banned a couple of years ago in Ontario, so it's not that, and I certainly don't use them in my own garden. No lead paints, no old plumbing, we're on municipal water not a well.
  23. Reba32
    I have never had any problems with distilled spirits, and I'm fairly sensitive. I drink rye whiskey and Absolut vodka pretty regularly and do not get any of my usual gut reactions to gluten. Articles right here on Celiac.com say that distilled liquors do not contain gluten, as well as pretty much any book I've ever read on the subject. I have however...
  24. Reba32
    I stay away from anything that says it is processed on equipment that also processes wheat, or "may contain wheat". Some products, like the site's own sponsor Nut Thins are labeled Gluten Free, and recommended by Celiac.com as safe to eat, but the label says they're made in a facility that also processes wheat products. My guess is that they have dedicated...
  25. Reba32
    peanut butter cookie made with gluten free peanut butter? How about all the other stuff that goes into making a cookie?
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