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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Believe me, I get what drives people to self-diagnose or to have to deal with inadequate medical advice. My hubby went Gluten Free 16 years ago based on the poor advice of my allergist and his GP. It worked though, but we will never know if he has celiac disease or not. He will tell you that I get way more support from medical, family and friends with...
  2. cyclinglady
    I used to buy CeraVe facial sunscreen, but as I checked the label prior to purchasing more last summer, I noted the oat listing that had not been on previous bottles. Probably, the amount is so tiny that it would not cause a reaction, but I am not a risk taker. Do I eat sunscreen? Well, never intentionally. On a bike ride, I can sweat a lot. Sunscreen...
  3. cyclinglady
    Country Life vitamins are certified gluten free. But also look to good food sources. With healing, you should be able to absorb most from food. Need Vitamin D? Sit in the sun for a while. Eat sardines and salmon (oily fish) and lots of eggs (plenty of Vitamin b-12). Open Original Shared Link Open Original Shared Link What exactly is...
  4. cyclinglady
    Welcome to the forum! Okay, I do not have DH, but I have a few suggestions. Read through our forum's DH section for advice and tips. You are in a bit of a quandary because you have gone gluten free. It is best to get tested (blood test, intestinal and skin biopsies) prior to going gluten free. It is best because all the celiac tests will...
  5. cyclinglady
    I do not know of a group near Atlanta, but I would recommend looking into a celiac camp for this summer. She might meet lots of "local" kids. There is one in Warm Springs, GA. Starts right after school gets out. Here is more information: Open Original Shared Link I am old, but I wanna go to celiac camp! I do go to Lake Lanier where my family...
  6. cyclinglady
    Yeah, celiac disease is a bummer. But it could be worse! At least you know what you are dealing with. Please take the cancer issue seriously. We just lost a member to lymphoma. We have another member who was mis-diagnosed and fortunately she has recovered from lymphoma (she also has diabetes). Diabetes is linked to celiac disease, but only type...
  7. cyclinglady
    Yes, celiac disease is genetic, but only a few go on to develop it. It can develop at anytime in your life. Here is more information about a simple blood test (University of Chicago's celiac website): Open Original Shared Link This is critical....you must be consuming gluten daily for any celiac test to be accurate. So, do not give up gluten...
  8. cyclinglady
    IBS is really code for "I be Stumped". Chances are your IBS is really celiac disease, especially since you had a positive on the blood test. Doctors are now being asked to screen patients for celiac disease if they have IBS. Open Original Shared Link You could just go gluten free, but there are some issues that can arise. Without a formal diagnosis...
  9. cyclinglady
    I can not comment about soy, but really you just need to make sure you do not eat gluten. So, I watch my lipstick, facial sunscreen and lipstick. I use CeraVe products, but last year, I noted that their sunscreen now contains oats. Open Original Shared Link Here is what the gluten-free Dietician (she also is the Gluten Free Watchdog which is...
  10. cyclinglady
    TexasJen expressed my thoughts exactly. No beer for me. I do not care for gluten-free beers (have not tried them all), but prefer wine (vodka too which is distilled and not brewed like beer)! Nothing, I repeat, nothing is worth getting glutened over. I wonder with the gluten free craze, if beer sales has dropped? As far as your friend, he might...
  11. cyclinglady
    The "Find Me Gluten Free" app (website) is helpful in finding gluten free restaurants. Read the reviews and look for those with the most reviews and are written by celiacs. Because you might not find restaurants in small towns, I would strongly recommend purchasing a good ice chest (like an Igloo 5 day cooler) at a Walmart or Target Discount store upon...
  12. cyclinglady
    I was diagnosed when I went for a routine colonoscopy (yep, I was over 50 years old). During my GI consult he suggested celiac testing because I was anemic. I have always been anemic due to Thalassemia (genetic anemia) but my hemoglobin levels really took a dive. I was also going through menopause and my thyroid was swinging wildly from hypo to hyper....
  13. cyclinglady
    Meats fall under the USDA instead of the FDA, but they follow the FDA rules for gluten. It is safe. As always, read the label! I can not eat sausage because of the casing and garlic, but I feed it to my gluten free hubby and he has no issues with it). Open Original Shared Link I buy Johnsonville. I have eaten it, but like I said, garlic...
  14. cyclinglady
    I am a GlutenFreeWatchdog member. I also support Consumer Reports. I like the idea of someone adocating for those with celiac disease or gluten intolerances. For now, I will stick to my primary gluten tester -- my brain. Reading labels, calling manufacturers, eating at restaurants recommended by celiacs, and posting on this forum has worked for...
  15. cyclinglady
    Can not help you with the medications as I am allergic to ALL OTC pain drugs. Best to ask your pharmacist and call the manufacturer. This list is maintained by a pharmacist who advocates for celiacs. Still check every label yourself. Brain fog? Ask your pharmacist. It is hard to figure out things when you are not well. Open Original Shared Link ...
  16. cyclinglady
    I have visited this website. While I agree that a more whole, (less processed), gluten-free diet is probably the best way to heal in general, it is my opinion that this website is trying to sell you their product. If you have money to burn....just send some my way (my kid will be going to college soon!). ? Some celiacs do have a hard time healing...
  17. cyclinglady
    Consider a second GI opinion. Get all your lab tests and present them. A negative blood test, yet positive biopsy could be many things: Open Original Shared Link But...it would be prudent to continue the gluten-free diet for six months or longer. Your doctor may be trying to determine if celiac disease is actually the root cause. It certainly...
  18. cyclinglady
    Well, without elevated thyroid antibodies, you can rule out autoimmune thyroiditis ((Hashi's or Graves) for now (anything can develop in the furture). But your doctor prescribed thyroid replacement, so she must suspect hypothyroidism based on lab results and not just symptoms as those can be so vague (I never had weight gain, hair loss, etc. when first diagnosed...
  19. cyclinglady
    Welcome! Glad you are in your way to recovery. Try reading our Newbie 101 thread pinned at. The top of the "Coping" section of the forum. Lots of great tips.
  20. cyclinglady
    Ask your doctor for synthetic thyroid. I am a huge Armour fan (as is my doctor), but it might not be the best for you. Going without thyroid replacement is crazy if your lab results are out of range, in my non-doctor opinion.
  21. cyclinglady
    Honey, recovery time is often not as fast as we like. There is a steep learning curve to the gluten-free diet (you have already experienced it. You have damaged more than just your small intestine. It is going to take time. Like weeks or months. Some of us have taken over a year. Luckily, you are young! Healing should go much faster because you are...
  22. cyclinglady
    There are so many different symptoms for Autoimmune disorders that overlap. Seven weeks into the diet is not enough time based on most member's experiences. It can take a year or longer to feel better. Have you seen ANY improvement? Thyroid fatigue is awful. Are you sure the thyroid hormone replacement was causing you issues? What exactly were...
  23. cyclinglady
    Thanks for the update. I have not had my TPO antibodies checked in years, but I can report that my thyroid is no longer enlarged, I no longer have nodules, and it has been stable. By treating my celiac disease, I have in turn, treated my thyroid -- at least that is my theory! ?
  24. cyclinglady
    Welcome, Amanda! Kaiser is pretty good about follow-up care, if you ask for it. Unlike a mammogram, they are not going to contact you. Here are the tests and timing of care: Open Original Shared Link Basically, you can talk to the GI about taking any time off. It is dependent on your personal case. Going gluten free is critical. Check...
  25. cyclinglady
    Not sure what is used in the Godiva chocolate cheesecake, but Godiva does not offer gluten free chocolate per their website. Not sure this is a CYA statement.... Open Original Shared Link We eat See's which is gluten free. Open Original Shared Link
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