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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    There is no lab test for gluten intolerance Could you post your results, or at least the names of the tests within the celiac panel? Probably good to keep eating gluten and see a gastroenterologist for further testing.
  2. RMJ
    A lot of people with celiac disease react more strongly to gluten after having been gluten free for a while. If you “cheat” you might ruin your trip. If you’re going to Paris they have a number of completely gluten free restaurants/bakeries. There is a thread about it somewhere on this site!
  3. RMJ
    Researchers are working on some future tests for those not eating gluten, but right now you have to eat gluten to get accurate test results.
  4. RMJ
    I’m so glad you persisted!
  5. RMJ
    Those blood tests are for genetics, to see if you have the genes that predispose one to celiac. Almost a third of the population has the genes for celiac but only 1-2% develop it. You’d need antibody tests, and if those are positive an endoscopy, to find out if you have it.
  6. RMJ
    I would say the blood work confirms the biopsy suggestion of celiac, but I'm not a doctor. You might want to take all of your results (biopsy and blood) to another gastroenterologist and get a second opinion. Or at least make an appointment with your current one and have him explain why he thinks those positive results are negative. Sometimes mistakes...
  7. RMJ
    Your understanding is fine, I’d question your doctor! Only one of the tests has to be positive to go to the next step, an endoscopy.
  8. RMJ
    The gluten in wheat/barley is in the grain, not the stalks/leaves. I definitely would NOT worry about a tiny bit of grain that might contaminate the clippings, that are just a portion of the soil, that will be washed off of the vegetables.
  9. RMJ
    He could try going gluten free for six months and see if the antibody levels go down. If so, it would indicate that gluten causes him to make auto antibodies (antibodies against oneself).
  10. RMJ
    Many doctors will not give a firm celiac diagnosis without an endoscopy/biopsy. I think that is why you were told your results “indicated” celiac instead of being told you have celiac. With those antibody results it would be very surprising if the biopsy does not show celiac.
  11. RMJ
    Yes you can have normal CBC, liver enzymes, etc and still have celiac.
  12. RMJ
    I’m glad you found something that helps! If you have been gluten free for 5 months your endoscopy may be normal, but I doubt that you will want to do a gluten challenge.
  13. RMJ
    Two other completely gluten free restaurants I’ve been to are the Curious Fork, and 2Good2Be. The food is fine but nothing special. I go there because they should be safe places for me when I have lunch with friends.
  14. RMJ
    Hi Icelandgirl, I don’t have kids or experience with kids but I think Healthy Creations would be kid friendly. It is more of a cafe, had tables inside and outside. I like the falafel. Hopefully they are careful about where they get their garbanzos. I’m guessing the kids would like the zoo and Safari Park, and Sea World. The Botanical Garden in ...
  15. RMJ
    I live in San Diego. I don’t get symptoms from gluten so can’t be sure there aren’t issues but I try to be very careful and my antibodies are finally in the normal range. My favorite is Healthy Creations in Encinitas. Completely gluten free. Not at all fancy, but very tasty. If you like gardens, you could combine it with a trip to San Diego Botanical Garde...
  16. RMJ
    I will eat at my brothers’ houses but we discuss recipes first and I look at the labels of the ingredients. Food just labeled gluten free does not have to be tested for gluten content. Food that is certified gluten free has been evaluated and tested by an independent agency, although I don’t think they test every lot.
  17. RMJ
    Different labs use different units and standard ranges, so searching google for a standard range isn’t helpful. The range to compare to is Kaiser’s, and that gives him a positive. I hope you can get the referral and the rest of the tests easily.
  18. RMJ
    The only way it could come from the mother more often would be if it was x-linked and always came from the mother - and I have never heard that for celiac.
  19. RMJ
    Here are the ingredients, fom the FDA website, although it looks like it is generic so it could vary from maker to maker. It does have lactose. Each tablet, for oral administration, contains 50 mg, 100 mg, 150 mg or 300 mg of trazodone hydrochloride, USP. In addition, each tablet contains the following inactive ingredients: 50 mg and 100 mg: Corn...
  20. RMJ
    Each lab has its own reference ranges.
  21. RMJ
    I’ve used my gluten free status as an excuse to avoid social occasions - I wasn’t comfortable with them even before I was disgnosed with celiac. Still, in order not to be a complete hermit I tried going to a party and not eating. It was a little awkward but not nearly as bad as I expected. The next time I tried it at a lunch with coworkers it was even eas...
  22. RMJ
    I don’t know what your sister’s relationship with her mother-in-law is, but if not good that might make it hard to request a special food. I will eat at my brother’s house but we discuss menus and ingredients and I check labels on anything they use. If I go to parties I just don’t eat. It was difficult the first time but got much easier after I had don...
  23. RMJ
    I think it is great that you eat gluten free when he is there so he doesn’t feel left out. Smooth, hard surfaces like glass, metal and china can be washd. If the surface is rough, porous or hard to clean then it can hold onto gluten.
  24. RMJ
    Does the current 23andMe test give results for celiac? I know they had to stop saying so much about health due to the FDA. Some people take their 23andMe raw data and put it into other websites to get health results.
  25. RMJ
    It depends on the normal range for the lab where the test was run. The results are in arbitrary units, not absolute amounts of antibody per milliliter of blood. Some labs the normal range is 0-19, some are 0-3, etc.
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