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knitty kitty

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by knitty kitty

  1. knitty kitty
    Wendy, I'm sorry you're feeling so depressed and frustrated about your Celiac diagnosis. My pastor described life events we don't want to go through as "a Call to Nineveh." Surely you remember the story of Jonah. He was called by the Lord to go preach to Nineveh, but Jonah was very opposed to going. Like many here on the forum, the diagnosis...
  2. knitty kitty
    Dolson, I understand and empathize with your feelings about the medical profession' ineptitude in treating autoimmune diseases like diabetes and Celiac Disease. Perhaps these research articles might help you. "Evidence for altered thiamine metabolism in diabetes: Is there a potential to oppose gluco- and lipotoxicity by rational supplementation...
  3. knitty kitty
    I agree with Trents. You can live without carbs. Here's an article on how the body utilizes both carbs, and proteins and fats as sources of energy. https://www.dietdoctor.com/low-carb/does-the-brain-need-carbs The body breaks down carbs into glucose which the brain uses for energy. But the body can also turn fats and proteins into glucose...
  4. knitty kitty
    Ferguston, Maybe this article will be helpful to you. It's about SIBO and the need for extra thiamine when you eat a lot of carbohydrates.... https://www.eonutrition.co.uk/post/thiamine-deficiency-a-major-cause-of-sibo Thiamine is water soluble and is easily flushed out of your system. Thiamine helps keep SIBO bacteria in check. The RDA...
  5. knitty kitty
    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4699997/ This article is about gastrointestinal Beriberi. Are your symptoms similar to the patient in the article? What did the doctor do about that hole in your intestine?
  6. knitty kitty
    P.S. this article mentions thiamine deficiency and MCAS.... https://pubmed.ncbi.nlm.nih.gov/9184654/ If not refeeding syndrome, at least a thiamine deficiency... Proper thiamine deficiency testing, because blood levels can be "normal".... http://www.hormonesmatter.com/thiamine-deficiency-testing-understanding-labs/
  7. knitty kitty
    Have you considered Mast Cell Activation Syndrome? Here's an article that explains it very well even though it mentions autism... https://mastcell360.com/autism-and-mast-cell-activation-syndrome/ Hope this helps
  8. knitty kitty
    Carla20, I used Baby Sign Language with my son when he was little. No problems, just he was very smart and trying to communicate and I got tired of trying to guess and asking twenty questions. I was the one who was getting frustrated. It really works! You'll be amazed at how quickly kids grasp sign language. There's tons of videos on YouTube...
  9. knitty kitty
    Furguston, Have you heard about Auto Brewery Syndrome? https://www.healthline.com/health/auto-brewery-syndrome I wonder how your symptoms compare. Cutting out carbohydrates seems to be key in getting rid of the Candida yeast. Have you thought about the Paleo Diet or the AutoImmune Protocol diet? Hope this helps! Knitty Kitty
  10. knitty kitty
    chocoholic, What an interesting rabbit hole! I've briefly come up for air..... The texture changes of the hair remind me of kwashiorkor...and niacin/tryptophan conversion problems with pyridoxine deficiency....and omega six deficiency.....all have hair production impacts... The high copper levels imply impaired copper ...and vitamin C deficiency...
  11. knitty kitty
    chocoholic, I found this article that says that copper deficiency can cause changes in hair like you have described and shown in your photo. https://www.buoyhealth.com/diagnoses-a-z/copper-deficiency/ Here's a general overview of copper deficiency... https://draxe.com/nutrition/copper-deficiency/ Copper is needed in red blood...
  12. knitty kitty
    Thank, PosterBoy! Thanks for the link! You always have the best links and additional input! Much appreciated! Knitty Kitty
  13. knitty kitty
    Thanks for your sympathy. 😿 Casal's necklace in syphilis occurs towards the shoulders. Casal's necklace in Pellagra occurs on the areas of the neck exposed to sunlight. In Pellagra, any skin exposed to sunlight becomes photosensitive, becoming more pigmented and scaly skin develops. Neck, face, arms, feet. I have a hand print on my ar...
  14. knitty kitty
    I felt so much better taking the high dose thiamine, but after three days my brain function didn't seem to be improving as dramatically. I had reached a plateau. I no longer needed as much. I cut down on the amount I was taking slowly. When I didn't feel as bright, I took a little more. Every one is different. You might have improvement for more...
  15. knitty kitty
    I took ten of the Now Thiamine (B-1) tablets for three days. I took 3 tablets at breakfast, 3 tablets at lunch and one with afternoon snack, and 3 tablets with dinner. You can take ten of the tablets for more days than that if you keep feeling better. If you get sick to your stomach, don't take so many at once or so close together or take fewer throughout...
  16. knitty kitty
    This is the B Complex that gives you all the B vitamins https://www.amazon.com/Now-Supplements-Vitamin-B-50-Capsules/dp/B0013OSL5S/ref=mp_s_a_1_3?dchild=1&keywords=now+b-50&qid=1594130906&sr=8-3
  17. knitty kitty
    Niacin will make you flush. It goes away in three to five days usually. If your body really needs niacin, you may flush longer, but it does go away. Get the Life Extension Niacin 500 mg. And the Allithiamine or the Now thiamine. I started with the Now thiamine. And the Magnesium. And the Vitamin C. These all work together...
  18. knitty kitty
    Here's the links to the book about Niacin and the vitamins..... Dr. Holder's book on Niacin.... https://www.amazon.com/Niacin-Story-Wonderful-Healing-Properties/dp/1591202752/ref=mp_s_a_1_3?dchild=1&keywords=niacin+dr.+hoffer&qid=1594125580&sr=8-3 Life Extension Niacin 500 mg (Must get the kind that flushes for best results...
  19. knitty kitty
    Please call me Kitty. I'm paranoid another K will slip into your abbreviation and then I'll really be in trouble! 😸 I think doctors and especially gastroenterologists should be taught about vitamins and deficiency diseases. I learned about them in the premed courses I took at university. Why couldn't they? Because Big Pharma is in control of ma...
  20. knitty kitty
    Sorry, so much information I wanted to impart. The difference I felt was within hours of taking that first 500 mg dose of thiamine. Took another 500 mg at lunch. I kept feeling better and better. I realized I could take 300 mg or 400 mg with each meal and get the same effect. Three or four days later, I didn't feel an improvement as obvious as when...
  21. knitty kitty
    Wanted to add.... Thiamine needs magnesium to work best, so I take Doctor's Best High Absorption Magnesium. Years ago, I read this book... Niacin, the Real Story... by Dr. Hoffer and it really helped. I had returned to normal niacin intake, but I felt something missing after correcting my thiamine, so started taking Niacin as described in Dr....
  22. knitty kitty
    I'm currently taking LifeExtension Benfotiamine with thiamine 100mg capsules (fat soluble form of thiamine) which helps my diabetes. Once or twice a day. And I currently take Now B-1, 100mg tablets, one with every meal. I've tried several fat soluble forms of thiamine like Benfotimine and these two others... I have tried Ecological Formulas...
  23. knitty kitty
    I found niacin therapy helped me with my PTSD. I read this book by Dr. Hoffer https://www.amazon.com/Niacin-Story-Wonderful-Healing-Properties/dp/1591202752 Here's a site... https://medium.com/@jonathanroseland/vitamin-b3-niacin-a-vitamin-of-hope-for-a-hurting-world-a345bd76c711 Many Celiacs suffer from vitamin deficiencies. I had several...
  24. knitty kitty
    High dose thiamine means 500 mg of thiamine a day or above. Some take 500 mg three times a day for several days, then a maintenance dose is set. Thiamine has no upper limit. It is safe. It is water soluble, any excess is flushed out in urine. At most, you may get nauseous. If so back down the amount. The RDA's are minimums to prevent illness...
  25. knitty kitty
    https://ods.od.nih.gov/factsheets/Thiamin-HealthProfessional/ "Levels of thiamin in the blood are not reliable indicators of thiamin status. Thiamin status is often measured indirectly by assaying the activity of the transketolase enzyme, which depends on TDP, in erythrocyte hemolysates in the presence and absence of added TDP [3]. The result, known...
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