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Awol cast iron stomach

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Awol cast iron stomach

  1. I wanted to say hello, and add that early in eating gluten free I had to avoid processed foods due to too many ingredients. I also had additional intolerances that needed time to subside. My team suggested I limit gluten free processed foods, as I was having issues with items with too many ingredients. I see Trents explained some of the culprits when he...
  2. I just wanted to share my support for you. Rant away. We all know that, and have experiences like that at some point. I am sorry for that very unpleasant, and emotionally isolating reminder of your medical condition. Which always is exacerbated by the hunger. I will admit many of my family friends, and coworkers found it easier to exclude me than to accommodate...
  3. "...hemorrhoids, constipation and diarrhea" . Heard of indeed. Experienced too. In hindsight, I can remember from age 2 having, and trying to convey my issues. I went 38 years misdiagnosed. So yes one can have these issues. I did have to go back on gluten for a gluten challenge. I failed that challenge and 6 days in they give me permission to stop, and I...
  4. Agreed. " Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight..." In my early days gluten free after my gluten challenge cross contamination would hit me neurologically in 20-30 minutes after the exposure. I would experience brain...
  5. Glad to read they made a test that won't require a gluten challenge. It does sound like it maybe quite sometime before it is readily available. This is a good first step. I was unable to finish my gluten challenge, and would have preferred not to have even attempted if this test had been available to me. I am glad it sounds it maybe available for others with...
  6. Hi, I have worked in education in the past. Based on where assigned and building crowding I made adjustments when needed. I understand completely what you mentioned. I brought food from home in my own Pyrex glass container. I kept it in my own lunch tote that I kept with me during the day. In the teacher's lounge/staff lunch room I would wipe down...
  7. Excellent thread topic. In the area I live there is only one food bank to my knowledge that has gluten free packaged foods. So in regular circumstances support agencies have limited gluten-free stock. For myself I would not be able to utilize likely many of the potential products they would have. I have additional intolerances, Corn is still an issue for...
  8. Hello. I was misdiagnosed for decades as IBS. As trents said many of us may not fit the "typical" profile, and were missed. My cousin is a gold standard celiac, and they took too long to diagnose her as well. I definitely had signs before official diagnosis, but it was often times dismissed, and/or minimized. Having the genetic component with...
  9. Oh Ms. Emily this quote is straight from my history too. "...being told my symptoms were just stress and IBS related.." It does get better both Scott and Trent have given excellent advice. I had 13 intolerances after diagnosis . I now have it down to gluten, and corn. I only recently got milk back. I still use nut milk, but do enjoy cheese or ice...
  10. I am sorry to read, your daughter still has issues despite her removing gluten from the home. Most of us also have to do a whole foods diet to avoid cross contamination from processed foods on shared manufacturing lines. Many of us avoid eating out to avoid cross contamination at restaurants. Lastly, we also have to take care to avoid gluten cross contamination...
  11. I modified my diet for years in addition to gluten, as I had multiple food intolerances post gluten challenge. I still watch my histamine levels particularly during allergy season, as I have environmental allergies as well that can increase my histamine load. As others mentioned I also maintain nutrition/supplementation as well. Lastly, I regularly have...
  12. "I don’t eat food from airplanes. It’s not worth the risk and so few people are aware of celiac disease and truly understand. " Agreed I have gotten sick on a flight, and then had flight attendants banging on the bathroom door because I went to the bathroom too much. It was an unpleasant flight experience.
  13. Their general faq info states regarding the Cetaphil product line "Although the ingredients in our Cetaphil skincare range are not recognized gluten sources; we do not test for trace amounts of gluten that may be present in the ingredients or as a result of the manufacturing process. Additionally, ingredient suppliers may change. If you are a celiac...
  14. Welcome to the forum Britt. I am glad you have a Dr. looking into this for you further. Trents gave you excellent information. I just wanted to chime in as I was long misdiagnosed IBS by symptoms only. I am diagnosed NCGS with additional food intolerances. I have a cousin who is Celiac. I was unable to complete my 2 week gluten challenge when I had my scopes...
  15. Not sure if this will be helpful. I am labeled NCGS. I was to complete a 2 week gluten challenge for both scopes. I failed. I made it 6 days of my 2 weeks.I also competed Ig E testing before, and food challenge/elimination diet after scopes. I developed additional intolerances during that time period. It took me 2 years and 4 months to feel normal again with...
  16. Is the Dr willing to put NCGS in the medical chart based on all the medical history and past tests? Are you willing, and able to be strict with just that label? Will your Dr's and medical providers honor that label? Will they help maintain your health and support it? It does sound like in my opinion you know that you should avoid gluten. If you are committed...
  17. "Last year, I gained 20 pounds in about two months. " Hello & welcome. I read wheatwacked and trents gave you excellent advice already. I just wanted to let you know I am NCGS, and experienced edema/bloating distension that had me appear to have gained weight during my undiagnosed time. So I am glad to read you are on your path to potential...
  18. I use my symptoms to guide me. Even though, I have been gluten-free for awhile my system can get riled up. Recently, I got some new prescription glasses, a Nickel allergy has arrived (likely had it longer, but I couldn't figure it out, and off Dr's radar. Despite it being contact dermatitis episode, it ramped up my innate immune system. So even now 3 weeks...
  19. I am labeled NCGS. I had high amounts of eosinophils and lymphocytes. I had inflammation starting at my esophagus, my stomach was horrible to the naked eye, then they got to the intestines. They initially were concerned I might have Barrett's esophagus although I don't match the particular profile. The pathology results revealed it was not Barrett...
  20. Sorry to read you are struggling. Many of us have been there. You are not alone. It is frustrating, and isolating. It was really difficult to lose long time friends, or no longer be able to eat out. The hardest was when my family of origin refused to come to a gluten-free BBQ I was hosting, if I would not let them bring gluten to it. You read that...
  21. I know a few others gave you some info already. I wanted to add my experience. I use to eat them in the past. I developed a corn intolerance. So the TJ products containing corn meal, corn starch, or corn derivatives are no longer a fit for me. I hope you are able to find an alternative. Best wishes.
  22. I was diagnosed vitamin D deficient before my gluten intolerance (NCGS) was diagnosed. After my gluten challenge I had to take supplements, and had to focus on vitamin D, B vitamins, magnesium, and zinc. I also have to watch for dehydration/electrolytes. I take a sublingual vitamin B-12 that dissolves under my tongue for absorption. It took over 2 years...
  23. I get brain fog from cooking gluten items in my environment. My immunologist had our entire house go gluten-free. ( I initially tried to keep my gluten-free isolated for a few years before finding a Dr willing to test me) I experienced it not only at my sister's house one holiday, but also at work lunch room once my own personal home was entirely gluten...
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