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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Are you on any blood pressure meds of the "sartan" family? I hope you realize that for celiac disease testing, both the antibody test and the endoscopy/biopsy, one needs to be eating gluten regularly beforehand. For the antibody test to be valid, gluten needs to be consumed daily 6-8 weeks beforehand and for the endoscopy, at least 2 weeks beforehand...
  2. trents
    Villi blunting is the hallmark of celiac disease. However, there are certain medications such as NSAIDS and some BP meds that have also been implicated in villi blunting as well as some non gluten food proteins, particularly casein (dairy). As you have noted, some medical conditions of the bowel also mimic celiac blunting, including Crohn's and some parasitic...
  3. trents
    brianm1, the reason I'm suggesting the multi vit and B-complex is that vitamin and mineral deficiencies generally accompany celiac disease. Since celiac disease damages the villi of the small bowel. normal absorption of vitamins an minerals is disrupted.
  4. trents
    When I say that 10% of celiacs react to oats the same way as they do the gluten in wheat I am not referring to oats that have been cross contaminated with gluten containing grain. I am talking about gluten free oats. The protein in oats is very similar to the gluten protein in wheat, barley and rye. From the additional information you have provided it...
  5. trents
    Many people need official confirmation of celiac disease in order to stay on track with their gluten-free diet. It can be easy to rationalize it as due to something else or coincidence if there is improvement when going off gluten. An official diagnosis can also be relationally advantageous in a relational sense. Family, friends and physicians may be more...
  6. trents
    Welcome to the forum community, Brian! You seem to be practicing a healthier lifestyle in general. Cutting out wheat, dairy and sugar has eliminated a lot of calories from your diet most likely and you mention that you have lost weight. Some of your feeling better and health improvements could be attributed in part to the weight loss alone. But the improvement...
  7. trents
    karyn, Yes, it is overwhelming at first. We have all been there. We understand where you are at. I think it took me (and my wife) about a year before we had a good enough understanding of where gluten is likely to show up in the food supply so that there was consistency in avoiding gluten. It will take more than a few days. A good place to...
  8. trents
    Josh, what led up to your endocopy/biopsy and the follow-up blood work? Were you having classic celiac disease symptoms? Can you give us some more history here? There are some foods (e.g., the protein "casein" in milk) and some meds and some non gluten related bowel conditions (e.g. Crohn's Disease) that can mimic celiac disease but in all these the...
  9. trents
    Be aware that most canned soups use wheat starch as a thickener. If you are going to put your daughter on a gluten-free diet you really need to educate yourself as to how widely gluten is used in the processed food industry and disguised by terminology. It is found in products you would never guess would have wheat, barley or rye in them. Would you expect...
  10. trents
    There are some logical fallacies in this article. For instance, just because casein is used to make Elmer's glue does not necessarily mean that it has a negative impact on the gut. And just because our ancestors drank goats milk instead of cow's milk doesn't require us to conclude that they had discovered cows mile to have a negative effect on human health...
  11. trents
    Good words, CMCM.
  12. trents
    Karen, has any doctor actually tested your daughter for celiac disease? If not, I would push for that if I were you. The first stage, and often the only needed one is a simple blood draw to test for antibodies characteristic of celiac disease.
  13. trents
    I have had success with placing a phone call to the companies. The receptionist usually connects me to the right department to address my question. If the department representative I speak to can't answer my question then they will take my phone number and email address for the purpose of getting back to me after researching the question. That has worked...
  14. trents
    Symptomatically, celiac disease and gluten sensitivity are pretty much the same. The only way to reliably tell if it's celiac disease is to have an endoscopy/biopsy of the small bowel to check for villi damage. But either way, the remedy is the same: totally avoiding gluten. You may also have an allergy to wheat or gluten since the many of the reactions you...
  15. trents
    Good to know. Thank you. This is very interesting. Overuse/misuse of antibiotics has been implicated in the development of celiac disease because of the negative effect it has on gut microbiota. But may antibiotics also be a treatment for it? And maybe the use of antibiotics in meat and milk production is not such a bad thing for humans if residues help...
  16. trents
    I wouldn't hesitate to mention to the dermatologist that you have been having gastro issues and are wondering if you might have celiac disease. Helping the dermo doc make that possible connection will help eliminate the possibility of a missed DH/celiac disease diagnosis. What blood work did the naturopath order? What specific tests? Do you have a record...
  17. trents
    knitty kitty, I have not heard before that antibiotics have immunospressive and anti-inflammatory effects.
  18. trents
    You might have to contact the companies that manufacture the various brands of cooking oil available to you and ask them if the seeds they extract the oil from ever come in contact with equipment also used to process wheat, barely or rye.
  19. trents
    Whew! I'm exhausted after reading that. Whew! I'm exhausted after reading that. You might want to go back and use bullet points or more punctuation to break that up a little bit and make it more readable rather than using an extended run-on sentence narrative style. Anyway, you for sure will not be able to determine if gluten is the principal...
  20. trents
    Then I would certainly get tested to see if the parasitic infection has returned. We do know that certain non celiac medical conditions, some medications, and even senitivities/allergies to some non-gluten containing foods can mimic celiac disease and give positive antibody results.
  21. trents
    First I have ever heard of this phenomenon. If I were you, I would seek an endoscopy/biopsy of the small bowel in order to check for damage to the small bowel villi. During the periods where your antibodies are positive, I would think that would be indication that inflammation and damage are occurring. That in itself should give you pause as to whether...
  22. trents
    RA=rheumatoid arthritis.
  23. trents
    If gluten is the only problem, you should be feeling better by now. You might want to look into SIBO (Small Intestine Bacterial Overgrowth) and a FODMAP diet. Also, are you still eating oats? About 10% of celiacs react to oat protein the same way they do gluten in wheat, barley and rye.
  24. trents
    Your on the right track just continue to educate yourself as to how gluten is hidden in processed food and through cross contamination. It can take days, even weeks, to get over one gluten episode. It can take two years or more for the gut to experience full healing after committing to eating gluten-free and every gluten episode can be a setback...
  25. trents
    Hm! Never thought of alcohol based sanitizers as being a potential source of gluten. But it is something to be aware of for sensitive celiacs who feel they get glutened transdermally. Would depend on what grain it is made from. A lot of it is made from corn or wood.
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