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trents

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Everything posted by trents

  1. trents
    From the article linked: If the initial Immunoglobulin A (IgA) test is lower than normal, then these two tests should be done: 1. Tissue transglutaminase antibodies, IgA and IgG profle. 2. Gliadin (deamidated) antibodies evaluation, IgG and IgA. From your post: "Based on the low IGA, her PCP ordered a TTG-IGG which came back extremely elevated...
  2. trents
    Wingo, you may be straining at the gnat and swallowing the camel. Have you had any follow-up antibody testing done to check compliance with gluten-free eating? Maybe you are cross-reacting to some other protein in your diet.
  3. trents
    Don't take that PPI or any other PPI long term if at all possible. Changing the pH like that in the gut creates its own nutrient absorption problems.
  4. trents
    Well, if you have the DQ-2 gene, you have the potential for celiac disease. I'm not sure how your physician can justify ruling celiac disease out on that basis. The DQ-2 and the DQ-8 genes are the ones that have definitely been associated with celiac disease. If you only have one of them your chances of having celiac disease are less but not zero.
  5. trents
    Sounds like you and your doctor are on the right track. At the end of the day, the antidote for both celiac disease and NCGS is the same: a strictly gluten free diet. If it turns out that the genetic testing shows you have MTHFR you might look into purchasing some gluten free methylated vitamins. You might also look into histamine intolerance/MCAS (Mast...
  6. trents
    Wait, I see you also had a TTG-IGG test ordered that was negative. Missed that the first time I viewed your post. It does not appear that you have celiac disease but you could have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease. There is no test for NCGS. Celiac disease must first be ruled out. NCGS is ...
  7. trents
    tysha, celiac antibody test scores can also be drive down toward the negative range by anemia. And by any chance had you already been cutting back on gluten in your diet before the blood draw was done. This can invalidate test results.
  8. trents
    You were negative for both antibody tests that are designed to detect celiac disease: ENDOMYSIAL IGA ANTIBODY (aka, EMA) and TISSUE TRANSGLUTAMINASE IGA AB. This, however, is not an exhaustive list. There are more tests for celiac disease that were not ordered. But the two that were ordered do not indicate celiac disease. The first antibody test that...
  9. trents
    Welcome to the forum, tysha! Please post the test results along with the reference ranges for negative vs. positive so that we can have some numbers to go by in helping you understand the results.
  10. trents
    Is it warm to the touch?
  11. trents
    https://en.wikipedia.org/wiki/Chondrodermatitis_nodularis_chronica_helicis The picture and the description in the article linked above indicates there is an wound or an ulcer in connection with this in addition to the erythema. Do you have that also or just the redness?
  12. trents
    I'm not clear on whether you are referring to the IGG-IGA antibody test or the genetic testing when you say the doctor told you it meant you don't have celiac disease. There certainly is evidence from your antibody testing that you could have celiac disease and the genetic testing allows for that conclusion as well and then on top of that your symptoms...
  13. trents
    Wheatwacked makes an excellent point. I had forgotten that the biopsy was positive for your son. It does seem highly probable that he has celiac disease but I wouldn't rule out other medical issues besides that.
  14. trents
    Well, if you give him gluten and he suddenly becomes ill again you at least know what to withdraw quickly and hopefully, it would not send him into a health tale spin but something he will bounce back from quickly. I guess I'm thinking you need to try it for clarity sake. Include son in on the decision if possible.
  15. trents
    But your son has show marked improvement since going gluten free along with some other diet and lifestyle changes, correct?
  16. trents
    It's important to not begin a gluten free diet until all testing is complete. Your physician may refer you to a GI specialist who may want to do an endoscopy with biopsy of the small bowel lining, especially if additional antibody testing throws positives.
  17. trents
    Ask for the following tests: Total IGA tTG-IGA DGP-IGA DGP-IGG There is also a celiac disease test known as EMA which is good to have but more expensive and less sensitive than the others. But it is very specific for celiac disease. If you have the luxury of ordering it I would but at least go for the others I listed. ...
  18. trents
    Welcome to the forum, Night misery! May we assume you have celiac disease as manifested with DH? A little background would be nice.
  19. trents
    Welcome to the forum, NessH! Your one antibody test does not support a diagnosis of celiac disease but your symptoms are consistent with celiac disease. Were there any other antibody tests run specifically for celiac disease? Though you don't say, I assume the one test was the anti transglutaminase IGA as it is the most common single test run by physicians...
  20. trents
    It takes more than a little cross contamination to make me violently ill and puking. The last time it happened was when I ate two wheat biscuits by mistake that my wife made. She also made some gluten free biscuits for me but I got them mixed up. It almost happened again more recently when the family ate at a Chinese restaurant and got glutened by the little...
  21. trents
    Same here. About two hours which is the amount of time it takes for my stomach to start emptying into my duodenum after eating a meal. Severe abdominal cramps and emesis for 2-3 hr. followed by 2-3 hr. of diarrhea.
  22. trents
    Would villi blunting from NSAID use throw positive antibody tests as would celiac disease? We have reports sometimes of people who have positive biopsies but were negative for antibody testing.
  23. trents
    Thank you for the update. I don't think I've ever heard of a "weakly" positive EMA. They're usually just positive or negative. But the EMA is very specific for celiac disease.
  24. trents
    Welcome to the forum, whaleroad! It's not clear to me if you ate the two crumpets every morning leading up to the blood draw or just once during that time. The Mayo Clinic guidelines for a pretest "gluten challenge" is the daily consumption of two slices of wheat bread (or the gluten equivalent) for 6-8 weeks leading up to the day of the blood draw...
  25. trents
    The danger of NSAIDs damaging villi, like many other medical risks, is more of an issue for some people than others. It may not be that common in the general population and modern medicine is all about metrics. If the risk is low, if something is uncommon and rare, docs don't think about it. However, it is especially relevant for those of us who have celiac...
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