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trents

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by trents

  1. trents
    Welcome to the forum, Kasini! The only thing I would suggest would be to consider getting a genetic test done to see if you carry one or more of the genes associated with celiac disease. About 40% of the general population will carry one or more of the genes but only about 1% will develop active celiac disease. So, having the genes doesn't equate to having...
  2. trents
    My physician put me on 25mg daily of nortriptyline and it seems to have dramatically cut down the frequency of my migraines. I have had 2-3 migraines in about a three month period as opposed to several a week before. I am still with holding final judgement, however, because mine are somewhat seasonal.
  3. trents
    Welcome to the forum, louai1920! Thanks for sharing your dilemma. One question I have. When you are at home, is your family sensitive to your need to eat gluten free?
  4. trents
    What makes you say you feel are missing something still? Is there less improvement in symptoms than you expected when going gluten free?
  5. trents
    Yes, lechtin can make some ill but so can fruits high in histamines like bananas. You might want to look up histamine intolerance/SIBO (Small Intestine Bacterial Overgrowth) which are common in the celiac population.
  6. trents
    Lactose intolerance is often the result of celiac disease because of the damage done to the villous lining of the small bowel. This area of the bowel is where essentially all of the nutrition from the food we eat is absorbed. Many celiacs report that they can return to consuming dairy after they have been on a strict gluten free diet long enough for the villous...
  7. trents
    Welcome to the forum, ClaraCk! Normally, there are two stages to a celiac diagnosis. The first stage involves a blood draw which is sent off to a lab to check for antibodies produced by celiac disease. Your primary care doctor should be able to order this. The second stage involves an endoscopy with biopsy of the lining of the small bowel which...
  8. trents
    We both live longer and healthier today. Our ancestors died younger and suffered their own disease issues. They just didn't keep data like we do today and didn't have names for all their causes of death. A lot of our current day health problems are in fact the result of the fact that we live longer on the average than our ancestors did. Yes, I agree that...
  9. trents
    Take away all the pesticides, chemical fertilizers and preservatives and whole nations would starve. The sheer population of the world now demands the use of these aids. Has it been overdone? Sure it has. Do we need to be more careful with them? Sure we do. Do we rely too much on them? Yes, we do. Do we need to work better with nature in our agricultural...
  10. trents
    Thanks for explaining the context and the reason you could not share specifics. How long have you known you have celiac disease? Your experience with discovering that the same water had been reused to cook gluten free pasta that was used for its gluten counterpart sounds like it must have been a revelation to you and you wanted to share your experience with...
  11. trents
    Welcome to the forum, Austin. I'm not sure if you are aware of this but it's not uncommon for celiacs to react to the protein in oats (avenin) like they do gluten. The two are similar in structure. Can you eat gluten free oats without a problem? Now, I'm not sure if this would be an issue in epidermal contact for this subset of celiacs. So, what I'm saying...
  12. trents
    Take it easy dude! If this is some eatery you refer to then other celiacs deserve to know so they can avoid it. Your first post is kind of vague.
  13. trents
    Welcome to the forum, Isshabalien! Who are you referring to?
  14. trents
    On this forum we routinely suggest sublinqual B12, B-complex, 5000-10,000 IU of D3, magnesium glycinate, and zinc. You can continue to take your multivitamin. The amounts of vitamins in a multi is typically not enough to correct nutritional deficiencies. Don't worry about the high concentrations of some B's in the B-complex as B vitamins are water soluble...
  15. trents
    The IGA-tTG and the endomysal are both celiac disease tests and were positive. I'm not a doctor but on this forum we are exposed to a lot of medical information. One thing we see is a lot of misdiagnosis with regard to bowel diseases. People are often misdiagnosed with IBS and Crohn's and finally some doctor starts running celiac tests and it turns out...
  16. trents
    Are you sure all your supplements are gluten free? Wheat starch can be used as a filler in pills.
  17. trents
    "Mum" you must be in the U.K. as eveidenced also by your spelling of "coeliac". Unfortunately, your healthcare system protocols don't allow for in depth celiac disease antibody testing, at least not in the initial screening. One test that should have been run but probably wasn't was the "total serum IGA". If that is low, it can lower some other tests scores...
  18. trents
    KrishnaM, when you research histamine intolerance you will also need to research MCAS (Mast Cell Activation Syndrome) because the two are closely related. These are very common in the celiac community. Sorry to add to your feeling of being overwhelmed. Remember, celiac disease represents and immune system disorder and it brings along friends.
  19. trents
    Estelle, the other thing you really need to do is to correct your nutritional deficiencies with some quality, high potency, gluten free vitamins and supplements. This could make a world of difference for you and address both your physical and psychological struggles. We can give you some recommendations for what to take if you are open to it.
  20. trents
    Other food companies also market products containing wheat as "gluten free". They subject the wheat to a chemical process that supposedly removes the gluten, or most of it anyway, to the extent of qualifying for the "less than 20ppm" that the FDA uses as a standard to allow companies to use the claim in advertising. And for a lot of celiacs, it would cause...
  21. trents
    Welcome to the forum, Estelle21! Celiac disease is a genetically-based autoimmune disorder. About 40% of the general population has the genetic potential for developing celiac disease but only 1% of the population develops active celiac disease. In addition to having the genetic potential for developing active celiac disease, there must be some kind...
  22. trents
    Welcome to the forum, KrishnaM! The King Arthur flour you mention has xanthan gum in it, an exceedingly common ingredient in man gluten-free baking products, which causes issues for many celiacs. Another ingredient in that flour, sorghum, is also notorious for causing celiacs problems. If you do not have any food allergies you would be in a decided...
  23. trents
    All blood tests fall into those two main categories, IGA and IgG but within those two main categories there are multiple tests. I think the link in my above post explains all this.
  24. trents
    Just type the test results in a new window. There is a very short time window for editing a post (for security reasons) and that is now past for your original post. Make sure you include the reference range for negative vs. positive for each test as there is no industry standard. Each lab develops their own. Did your physician discuss with you a follow-up...
  25. trents
    Welcome to the forum, trying2heal! Before diagnosis, did you get this type of reaction when consuming gluten?
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