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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- knitty kitty replied to Ginger38's topic in Related Issues & Disorders12Shingles - Could It Be Related to Gluten/ Celiac
Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/ -
- Flash1970 replied to Ginger38's topic in Related Issues & Disorders12Shingles - Could It Be Related to Gluten/ Celiac
Thank you for the links to the articles. Interesting reading. I'll be telling my brother in law because he has a lot of pain- 1
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- chrisinpa commented on Scott Adams's article in Additional Concerns5Gluten Transfer from Biodegradable Tableware: What a New Study Found and Why It Matters (+Video)
Oh my......will the danger never end? It has seemed like no matter what we do or have done the odds were/are against us. Next they'll tell us that just looking at wheat will be dangerous. Oh well....hang in there.- biodegradable
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- trents commented on Scott Adams's article in Winter 2026 Issue2Why Celiac Diagnosis Still Takes Years—and How to Change That
Our understanding of that is very incomplete at this time. There are theories and it seems to involve multiple factors. We know there is a genetic component but that is far from the total answer since 40% of the general population has the genetic potential to develop celiac disease but only 1% actually does. Other suspects are the indiscriminate use of antibiotics...- celiac disease
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- Ednamay commented on Scott Adams's article in Winter 2026 Issue2Why Celiac Diagnosis Still Takes Years—and How to Change That
Why do humans become intolerant to Gluten?- celiac disease
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By knitty kitty · Posted
Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/ -
Thank you for the links to the articles. Interesting reading. I'll be telling my brother in law because he has a lot of pain
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By Scott Adams · Posted
Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/ -
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By knitty kitty · Posted
Hi, @Ginger38, I've had shingles in the past. I understand how miserable you're feeling. Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten. The virus lives dormant in the nerves on the left side of my face. It causes Bell's Palsy (resulting in drooling). The cold sore virus is also in my eye. My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision. I take the amino acid supplement L-Lysine. Lysine messes with the replication of viruses, which helps the body fight them off. I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus. I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well. For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy. The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain. I take it for pain from crushed vertebrae in my back. This combination also works on other pain and neuropathy. I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online. However, it's made in Japan and the price with the tariffs added makes it really expensive now. But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately. I can't take Tylenol or ibuprofen because of stomach upsets. But I can take the vitamin combination without side effects. However, you can take the three vitamins at the same time as other pain relievers for added benefit. The vitamins help other pain relievers work better. I hope you will try it. Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
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