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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. Reham
    Posterboy
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  2. Atflook
    Jenniw
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  3. lilgreen
    kareng
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  5. Marian mcdermott
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  6. wisefish
    desirun
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  7. RyanIN
    Ennis-TX
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  8. Lcorb26
    cyclinglady
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  9. hafadai43
    Lcorb26
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  10. SLG
    selectivefocus
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  12. robin2
    cyclinglady
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  13. PhoebeC
    • 15 replies
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  14. 3groovygirls
    kareng
    • 10 replies
    • 13.6k views
  15. E's mom
    desirun
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  16. desirun
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  17. desirun
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  18. melaniesilvers
    Ennis-TX
    • 11 replies
    • 12.4k views
  19. Audrey’s Mom
    GF-Cheetah Cub
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    • 5.1k views
  20. Bri's mom
    Audrey’s Mom
    • 49 replies
    • 59.4k views
  21. vickyloveaimee
    cyclinglady
    • 4 replies
    • 2.1k views
  22. KeJo05
    Posterboy
    • 4 replies
    • 2.1k views
  23. Mamabean
    kareng
    • 10 replies
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  24. GloGlo
    Jmg
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  25. Lindsey1978
    cyclinglady
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  26. Lindsey1978
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    • 4k views
  27. mamaupupup
    Mermaid's Mom
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  • Recent Activity

    1. - Mettedkny replied to hjayne19's topic in Traveling with Celiac Disease
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      Mallorca Guide

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
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      Severe severe mouth pain

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    • Mettedkny
      You already got some great recommendations. Just want to second that Mallorca (and Spain in general) is one of the best and easiest places for celiacs to travel. I have been to Mallorca multiple times and have never experienced any cross contaminations and there are SO many easy to buy options in regular supermarkets. Hope you have a wonderful trip.
    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
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