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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. Reham
    Posterboy
    • 4 replies
    • 2.1k views
  2. Atflook
    Jenniw
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  3. lilgreen
    kareng
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  5. Marian mcdermott
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  6. wisefish
    desirun
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  7. RyanIN
    Ennis-TX
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    • 41.6k views
  8. Lcorb26
    cyclinglady
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  9. hafadai43
    Lcorb26
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  10. SLG
    selectivefocus
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  12. robin2
    cyclinglady
    • 6 replies
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  13. PhoebeC
    • 15 replies
    • 10.5k views
  14. 3groovygirls
    kareng
    • 10 replies
    • 13.6k views
  15. E's mom
    desirun
    • 3 replies
    • 1.8k views
  16. desirun
    • 3 replies
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  17. desirun
    • 0 replies
    • 1.6k views
  18. melaniesilvers
    Ennis-TX
    • 11 replies
    • 12.4k views
  19. Audrey’s Mom
    GF-Cheetah Cub
    • 5 replies
    • 5.1k views
  20. Bri's mom
    Audrey’s Mom
    • 49 replies
    • 59.5k views
  21. vickyloveaimee
    cyclinglady
    • 4 replies
    • 2.1k views
  22. KeJo05
    Posterboy
    • 4 replies
    • 2.1k views
  23. Mamabean
    kareng
    • 10 replies
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  24. GloGlo
    Jmg
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    • 3k views
  25. Lindsey1978
    cyclinglady
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    • 2.4k views
  26. Lindsey1978
    • 14 replies
    • 4.1k views
  27. mamaupupup
    Mermaid's Mom
    • 29 replies
    • 19.3k views
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    • trents
      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
    • Theresa2407
      Our support groups in Iowa have tried for years to educate doctors and resource sites like this one.  We have held yearly conferences with continued education classes.   We have brought in Dr. Murray, Dr. Fasano, Dr. Green and Dr. elliott.  In those many years we may have had 2 doctors attend.  We sent them information, with no response.  I talked to my personal doctor and she said their training for Celiac was to show them a skinny man in boxer shorts and a huge stomach.  Saying if you see this, it is Celiac.  If it isn't in their playbook then they don't care.  Most call it an allergy with no mention of our immune system.  There is so much false information on the internet.  Then people don't understand why they can't get well and are acquiring more immune diseases. I mention this site to everyone.  Scott has working hard for the Celiac community.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      One of our sponsors here is a nut/seed/dried fruit, etc., company that sells gluten-free versions. Tierra Farm: https://www.tierrafarm.com/discount/gfships
    • trents
      You might also consider a low iodine diet as iodine is know to exacerbate dermatitis herpetiformis. But be careful with that as well as there are health problems that can accrue from iodine deficiency.
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