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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Waiting on biopsy after positive bloodwork, but also not really believing this is real
@knitty kitty My whole family has migraines and I started getting them at age 19, so I'm not sure mine are related to gluten, although I do feel like obviously the more inflamed my whole system is, the more likely I am to suffer from more of these things. -
- knitty kitty replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Waiting on biopsy after positive bloodwork, but also not really believing this is real
@Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency. I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate. These forms get into the brain easily and really improve migraines. I do still get Ophthalmic migraines... -
- Alibu replied to Alibu's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16
Waiting on biopsy after positive bloodwork, but also not really believing this is real
@knitty kitty Thank you for those, I will definitely bring them up! I did send a message to my doctor basically asking what they think so I'll go from there. He may very well just decide that this was enough to diagnose celiac, but I have no clue what his thoughts are right now. I also asked for a second opinion on the pathology.- 1
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- knitty kitty replied to HilaryM's topic in Related Issues & Disorders3
New onset constant gas
@HilaryM, Are you eating a diet high in carbohydrates? You might find a Paleo diet easier on your digestive system. A Paleo diet can promote changes in intestinal flora, effectively starving out SIBO bacteria. Be wary of gluten free processed foods. Many are not enriched or fortified with vitamins and minerals lost in processing like gluten... -
- knitty kitty replied to MelissaClinPsyD's topic in Coping with Celiac Disease7
Refractory Coeliac Disease research to reduce anxiety
@MelissaClinPsyD, I hope you investigate whether your participants take nutritional supplements. The group of eight B vitamins, Vitamin D and magnesium have a big impact on mental health, especially depression. I know correcting nutritional deficiencies were most important in my physical and mental health recovery! There's more information and...
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@knitty kitty My whole family has migraines and I started getting them at age 19, so I'm not sure mine are related to gluten, although I do feel like obviously the more inflamed my whole system is, the more likely I am to suffer from more of these things.
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By knitty kitty · Posted
@Alibu, Just wanted to add... Migraines can be caused by thiamine insufficiency. I used to have them, regularly, but haven't since supplementing with thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and Magnesium Threonate. These forms get into the brain easily and really improve migraines. I do still get Ophthalmic migraines which are triggered by computer screens. It's permanent damage from nutritional deficiencies. An Erythrocyte Transketolace test is a more accurate test for sufficient thiamine. Keep us posted on your progress! -
@knitty kitty Thank you for those, I will definitely bring them up! I did send a message to my doctor basically asking what they think so I'll go from there. He may very well just decide that this was enough to diagnose celiac, but I have no clue what his thoughts are right now. I also asked for a second opinion on the pathology.
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By knitty kitty · Posted
@HilaryM, Are you eating a diet high in carbohydrates? You might find a Paleo diet easier on your digestive system. A Paleo diet can promote changes in intestinal flora, effectively starving out SIBO bacteria. Be wary of gluten free processed foods. Many are not enriched or fortified with vitamins and minerals lost in processing like gluten containing foods are. Talk to your doctor and nutritionist about supplementing with vitamins and minerals while healing. Vitamins are organic compounds that the body cannot make and so must get from the diet. Supplementing ensures our bodies get a fair chance to absorb the essential nutrients it needs. -
By knitty kitty · Posted
@MelissaClinPsyD, I hope you investigate whether your participants take nutritional supplements. The group of eight B vitamins, Vitamin D and magnesium have a big impact on mental health, especially depression. I know correcting nutritional deficiencies were most important in my physical and mental health recovery! There's more information and my mental health struggles in my blog. Keep us posted on your progress!
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