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Recent Activity
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- cameo674 replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results
The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely looking like a celiac diagnosis is in my future. She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations. I have never had a doctor recommend that. She also said there were... -
- Alibu posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Latent celiac, need to go gluten free, advice on kitchen "reset?"
Well, I've made if from the pre-diagnosis forum to here! I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL). My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense... -
- Scott Adams replied to cameo674's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Finally got in to doctor to get my referral and I lucked out and got into Gastro the same day - question about different transglutaminase results
It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation bet... -
- Scott Adams replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications1
Gluten free thyroid medications
I don't believe that site is updated regularly, and it may be unreliable. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication... -
- KimMS posted a topic in Gluten-Free Foods, Products, Shopping & Medications1Gluten free thyroid medications
Hello! I did a brief search on this and couldn't find recent posts, but feel free to direct me to something if I missed it! I have had a difficult time confirming which thyroid medications (specifically generic forms of Levothyroxine) are gluten-free and safe for celiacs. I am pretty confident the generic manufacturer Mylan is safe, and I have been taking...
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The GI doc messaged me this afternoon that she believes that the new blood work added to the old is definitely looking like a celiac diagnosis is in my future. She wants to me to call into scheduling each Monday to see if I can get my August 29th appointment moved up due to cancellations. I have never had a doctor recommend that. She also said there were additional labs that she requested still out that have not come back yet; so, they may have been missed drawing those since the functional health doctor has a whole slew of labs that I am suppose to be waiting until August 27th to do. I am still waiting to hear on whether or not she will allow me to do pill prep versus the typical...
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Well, I've made if from the pre-diagnosis forum to here! I've been diagnosed with "latent" or "potential" celiac and my doctor has suggested me to go gluten-free before my appointment with him in October (first available, LOL). My ttg-iga was 152, my EMA was positive, I have the gene, but my biopsy was negative (and he took 12 samples), so it makes sense to go gluten free to see if I improve. I know the basics - I can find lists of things to avoid, I know about hidden dangers, etc. all of that. Where I'm struggling is just STARTING. I need to go shopping and stock up on some staples. My goal is to not try to find gluten-free alternatives, but to focus on naturally gluten-free foods like...
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By Scott Adams · Posted
It’s great that you were finally able to see a gastroenterologist—and even luckier to get in the same day as your referral! It sounds like your GI is taking a very thorough approach, which is reassuring given your complex symptoms and history. The confusion around your different tissue transglutaminase (tTG) antibody results is understandable. The variation between your December and June labs may be due to multiple factors, including differences in the lab performing the test (Quest vs. Mayo Clinic), the specific assay used, and the amount of gluten you had been consuming before each test. Antibody levels can drop significantly when gluten is reduced or eliminated from the... -
By Scott Adams · Posted
I don't believe that site is updated regularly, and it may be unreliable. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/ -
Hello! I did a brief search on this and couldn't find recent posts, but feel free to direct me to something if I missed it! I have had a difficult time confirming which thyroid medications (specifically generic forms of Levothyroxine) are gluten-free and safe for celiacs. I am pretty confident the generic manufacturer Mylan is safe, and I have been taking this for almost two years. Recently (I think b/c of a recall), Mylan has not been available at my local pharmacies. The list I typically use for gluten-free drugs (http://glutenfreedrugs.com/newlist.htm) does not list any of the other manufacturers offered by pharmacies in my area (Accord and Macleod). When I do a search, sites tend to say these...
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