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14Month Update! Repeat Biopsy Results

designerstubble

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designerstubble Enthusiast
designerstubble
Posted

Diagnosed 14 months ago Marsh 3b, scalloped duodenum, hiatus hernia.

Subsequent intolerances to MANY foods.

Severe anaemia, low vit d, major hairloss, severe adrenal fatigue, melasma, night sweats, neuropathy, depression, etc!

Repeat biopsy shows 'essentially NORMAL '

Not sure what they mean by essentially but normal sounds good to me.

I came back on to share this, for those of you out there that worry, fret, get anxious, cry, wonder when it's going to get better... It does happen. I was/am one of those that did all that worrying. I still have a way to go in regaining my former self. If indeed I ever will!! But... Healing DOES happen, it's happening for me on a diet that's severely restricted!

Keep at it! :-) x

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GottaSki Mentor
GottaSki
Posted

This is excellent news :D

nvsmom Community Regular
nvsmom
Posted

Nice!  ;) Congrats!

cyclinglady Grand Master
cyclinglady
Posted

Yes, it is great news! Congrats!

livinthelife Apprentice
livinthelife
Posted

It's super good news! You're right….it can and does get better!! Great job!

designerstubble Enthusiast
designerstubble
Posted
  • Author

Aw thanks guys. I'm still not where I need to be, but I just thought sometimes it's nice to hear some success. I know when I was diagnosed I looked for any possible success threads! We are all or have been looking for hope that things get better. I just wanted to share, to show that slowly but surely it can be done. It took a lot of green juices and food restrictions! I'm hoping in another year I might even grow some hair back!! Lol. That'd be nice! X

IrishHeart Veteran
IrishHeart
Posted

Congrats!!

 

and yes, just hang in there...I saw more results in symptom resolution (plus more hair regrowth) after 20 months.

 

Best wishes and stay the course. 

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moosemalibu Collaborator
moosemalibu
Posted

Wonderful news!!  :D

notme Experienced
notme
Posted

fabulous!!!  lolz - i was going to ask about your hair, but you included that :)  i'm at about 3 1/2 years, now, and i am happy to report i have an under layer of 'baby hairs' and it's making my hair so much thicker and more full.  it takes a long time!  but i wasn't expecting it to actually grow back, i was just glad it stopped falling out haha ;) 

BlessedMommy Rising Star
BlessedMommy
Posted

That's wonderful! Great job sticking to the restricted diet, I know that it isn't easy. I'm vegetarian, gluten free, dairy free, and mostly sugar free.

designerstubble Enthusiast
designerstubble
Posted
  • Author

That's wonderful! Great job sticking to the restricted diet, I know that it isn't easy. I'm vegetarian, gluten free, dairy free, and mostly sugar free.

Same as me!! I am also corn free (complete nightmare I must say) and have had avoid other food due to sons allergies such as nuts, legumes. All in all a complete pain the....!!!! Keep at it... 8-)
designerstubble Enthusiast
designerstubble
Posted
  • Author

fabulous!!! lolz - i was going to ask about your hair, but you included that :) i'm at about 3 1/2 years, now, and i am happy to report i have an under layer of 'baby hairs' and it's making my hair so much thicker and more full. it takes a long time! but i wasn't expecting it to actually grow back, i was just glad it stopped falling out haha ;)

Yes, mine seemed to stop when a started vit d... Coincidence?? I don't know tbh. But I still take it just in case !!! I have a few tufts at hairline but would LOVE an all over growth spurt, love my hair to be thicker again... I wait and hope! X

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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