Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Puts Things Into Perspective


Bonnie

Recommended Posts

Bonnie Explorer

Hi guys,

Probably shouldn't be posting this but I'm in need of a bit of support right now and I've had so much from this forum re my gluten problem.

I lost my 26 year old brother 3 and a half weeks ago. He had a motorbike accident, hit a tree, had brain surgery and passed away the next day.

I'm devastated. Trying to carry on and be strong for my 2 sisters, parents and my children.

I have been so self-obsessed and feeling sorry for myself because of Celiac Disease. So I can't eat gluten - so what?

This just puts everything into perspective.

Thanks for reading guys, just feeling really sad.

Yvonne


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



debbiewil Rookie

Oh honey,

I'm so sorry to hear that. You're too far away for a real hug, but a cyber hug was just sent your way.

And I know just what you mean.

Debbie

lovegrov Collaborator

I'm so sorry to hear about your brother. A sudden death like this to someone so young and so close definitely puts a lot of things in perspective.

If you all can, take turns being strong. Everybody needs to grieve and everybody needs somebody to lean on. Just when you need help the most, everybody close to you needs the same support.

Your brother will be your first and last thought every day for years. It does slowly get better with time, although I know that's hard to imagine right now.

richard

KaitiUSA Enthusiast

I am so sorry to hear that :(

If you ever need someone just to talk to you are welcome to contact me anytime...I will keep you and your family in my prayers...hang in there :)

luvs2eat Collaborator

Heartfelt prayers yours and your family's way.

skbird Contributor

I'm very sorry to hear your news, Yvonne. I have a younger brother, I can't imagine losing him.

I hope you continue to get support here, I think it's a good thing you reached out with this.

Take care and I will be thinking of you.

Stephanie

Guest nini

huge {{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}}}}}}}}}being sent your way, losing a loved one is never easy.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Yvonne,

I'm very sorry to hear of the death of your brother. This must be a hard time for you and your family. We are all thinking of you. Please keep us updated on how you are doing.

Take care,

Laura

taweavmo3 Enthusiast

I just wanted to say how sorry I am about the loss of your brother. Lean on your family, and support each other. I lost a sister 15 years ago, and I remember thinking the hurt would never go away. In time it has, but I still think about her everyday. Take care, and big hugs and prayers for you and your family.

nettiebeads Apprentice

It's very okay for you to post here asking for support.

I'm very sorry to hear of your tragic loss. You and your family will be in my prayers.

jenvan Collaborator

Yvonne-

so so sorry to hear that... i can't imagine losing my brother. i am saying a prayer for you today... it is strange...a friend of mine lost her son about 2 weeks ago from a motorcycle accident, he was probably close to your brother's age. hope you can draw hope from fond memories of him...

Noelle126 Apprentice

I'm so sorry to hear about your loss. Lots of hugs and prayers to you and your family!

Kasey'sMom Enthusiast

Yvonne,

You and your family are in my thoughts and prayers as well. Please feel free to PM or e-mail me anytime you just need to talk.

jerseyangel Proficient
Hi guys,

Probably shouldn't be posting this but I'm in need of a bit of support right now and I've had so much from this forum re my gluten problem.

I lost my 26 year old brother 3 and a half weeks ago.  He had a motorbike accident, hit a tree, had brain surgery and passed away the next day.

I'm devastated. Trying to carry on and be strong for my 2 sisters, parents and my children. 

I have been so self-obsessed and feeling sorry for myself because of Celiac Disease.  So I can't eat gluten - so what?

This just puts everything into perspective.

Thanks for reading guys, just feeling really sad.

Yvonne

<{POST_SNAPBACK}>

jerseyangel Proficient

Yvonne, Please accept my deepest sympathy and prayers for you and your family.

fisharefriendsnotfood Apprentice

I'm so sorry. I agree and hope the best for you.

-Jackie

aikiducky Apprentice

Yvonne, I wanted to add my condolences, and cyber hugs from here too. I'm so sorry to hear you lost your brother. Take care of yourself, too, not just the family!

Pauliina

elisabet Contributor

Dear Yvonne,I wish I were there and we could talk more.

HUGS !

paw Apprentice

Yvonne, I am very sorry about the loss of your brother. Take care of yourself right now and try to keep eating healthy so you don't get sick. ((hugs))

klemmen Rookie

I am so sorry that your brother has been taken away, i lost my big brother one year ago when he was 20, so i no a little bit of your pain and i really am sending you so much love. I no you said you are trying to be strong for your family but look after yourself too, if you ever need to talk feel free to email me. and yes it does put everything into perspective...

all my love and strength for you

xxxxx

bmorrow Rookie

Yvonne,

I am very sorry to hear about the loss of your brother. It is always difficult to lose a loved one and makes everything else not seem important. Please take care of yourself and remember that this group does care.

tarnalberry Community Regular

My condolences to you and your family. Losing a loved one is hard, all the more so when it's sudden and unexpected.

ILOVEOMC Enthusiast

Yvonne,

I am sorry that this happened to your brother and your family. These things are hard to understand but hopefully your friends and others will surround you with the love and support you need. You will be in my prayers as I ask God to bring you strength, comfort, and peace during this difficult time. Hang in there and take care.

Claire Collaborator

So sorry to here this. Loss is tough.

You had a brother for many years. Some of us have never had that experience. That too, in a very different way, is a loss.

Feel you sorrow but be grateful too. You had him for all those years.

Take care. There are many prayers for you coming from all of us who have written here. Claire

Bonnie Explorer

Thanks so much for all the responses. I was overwhelmed this morning at how many there were and have been sitting here in tears reading them.

In tears but they were a comfort and just what I needed.

Thanks for your prayers everyone. My faith has helped me a lot the past few weeks. I know God had a reason for taking my brother even if I don't know what it is. He was such a good boy, spoilt rotten being the only boy with 3 sisters but we adored him. He was the kind of person who never had a bad word to say about anyone.

Its true what they say - only the good die young.

Thanks again everyone - better stop crying now and get some work done!

You guys are very special and your messages are genuine.

P.S. Only good thing about all of this is that I haven't been eating much so I haven't had any bloating for a while! Ha ha.

Yvonne

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748

    Miyasato
    Newest Member
    Miyasato
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.