Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Holiday Blues


Serielda

Recommended Posts

Serielda Enthusiast

I hate making posts like this one but after hearing some recent news it has made me feel really down. I can't afford to be down as I have a lot of things I need to learn for work, but I can't seem to shake right now feeling woe is me. I recently learned two former acquaintances just got their first house and My husband and I are still renting an apartment. Granted it's a very nice one but it makes me feel down. Second still feeling angry I can't be a vegan. Dr.s told me due to all the grains in a vegan diet, no due to me still healing and felt it would be safer having me go grain free on top of gluten free. I have bills out the yin yang due to getting diagnosed. I know some would say improving my health is better and one thing at a time but it still doesn't take the omg why is this all happening to me go away. I would just love for once a string of awesome things of the good variety to happen for me. I know one of the best things did happen was finding out I was not a hypochondriac and that what is wrong is treatable before seriously bad and sad things happened worse than it could have been.

I guess the thanksgiving holiday and spending it around the idiots on my hubby's side of the family didn't help since I had to sound like a broken record on why I couldn't eat anything there politely also didn't help. I know I'm still new and stuff and they are too, but ''Ello ever hear of Google? My father is their age and he knows how to google crap, at least I had awesome stuffs at home that wouldn't make me sick. Was anyone else's first holiday season after diagnosis this depressing?

On a positive note I just realized I'm no longer living in that really crazy neighborhood that used to flip me out with all the bad things that went on there and my current home is much calmer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

(((Hugs)))

StephanieL Enthusiast

i am not telling you to disregard dr.'s orders outright. Do you think it would be possible to speak to a nutritionist? I haven't had a lot of luck with them myself but perhaps you can find someone who could help you manage the vegan thing and Celiac.  You can get plenty of protein with plants, nuts and soy if you wanted to and are really committed to staying vegan.  It may take some research but I know people with far more restrictions that have managed that way of eating and stayed healthy.

BlessedMommy Rising Star

Does the doctor have any evidence that cutting out grains and beans will help you to heal?

mamaw Community Regular

Holidays  in general  can  be  pretty depressing then  throw  in a new illness....  hugs  to you.....Please  don't dwell  in what  others  have, your  turn & time  will come...you don't  know  the others  money  situation  or  their   thought  process..they  may not  be  ready for a new home  & may end  up  biting  off  more than  they  have  funds to pay for.. ( that is just  an example)...sometimes when  people  rush into decisions  , big  decisions  to  fast  they  loose  big time.... so it is  better  to  do  lots  of  planning & be prepared  for  future events.....

You  will  catch up at  the right  time.....be happy  that  you are  healing  have a  great partner & are in a safe place...with  gluten-free food... I  always  prepare  gluten-free  food  to take to any  invite...

It  is  hard  for  us to  understand  this   celiac  let  alone  others  who  have  no  clue or  issues.. I find  that  if  it  isn't  effecting  them then they  don't  truly care...Just  a  normal  thing although  it  hurts at times...For  instance  do  you  care  about  MS or  a brain  tumor  if  no one  around  you  has it? yes, you may  care  but  not  enough  to  know  everything about  it...so  don't  be  to hard  on  people  who  lack knowledge  about  celiac  when  they don't  have  it...

The  good  news  is  you  found  you have  many things to be thankful for... And  may health & happiness  follow  you through  this  holiday season....

hugs

Serielda Enthusiast

To address the mentions of nutritionists yes they also agreed on the no grains period thing. I know I've shown some improvements since the changes, which I know positive improvements should trump over a lot, but I still find myself lashing out about it. I feel that helping with a cause I wanted to support strongly was stolen from me by ignorance. like I said very angry about all of this.

mamaw Community Regular

sending  more hugs!  You  are  still all good  when it  comes  to celiac....the feelings  you  have  are  normal   to celiac,  I  think most  of us  have  been  there our   first  few  months  into  recovery....sadness,  anger, denial, an  emotional  roller  coaster  for  many....some  it  takes  much longer  to  find  peace ... the good  thing it  does  happen...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

If you look at your diet, what are you eating in large amounts that you would need a replacement for to be vegan? Perhaps people here can help with suggestions that may help you return to being vegan and that may help some of the anger you are feeling?

((hugs))

BlessedMommy Rising Star

Quinoa, amaranth, wild rice, and buckwheat aren't grains. Is including them in your diet for more variety an option for you? 

Serielda Enthusiast

Blessed, trust me when I asked several sources that did give me a reasonable answer. I tend to agree with you, however they all seem in agreement . So I am trying things their way. After all they specialize in what they do. I understand my constant doubt is not cool as I have seen improvements, and my minor sarcasm about some requests would be like them trying to do my job which is helping run a medium to large IT network they know nil about but trust those who know IT to run. Once I had that analogy I was like ok, they know food and medicine so let's give a benefit of doubt they are doing things right. Since I do feel better.

Serielda Enthusiast

StephanieL, post extreme diet make over there was a freaking ton of rice and veggies and I admit to eating a lot of gluten free soy fake meat things. Cooking at night fell on hubby as I work overnights. I admit he is a trooper and serious keeper. When I was told no gluteny things he stopped eating them . He stated if I couldn't have some of my faves he wasn't gonna have them either as it isn't cool to eat in front of peeps what they can't have.

cap6 Enthusiast

Rice, quinoa are in the grain family and they may not work for you right now as they can be difficult for some people to digest.  Perhaps some time down the line as your gut heals you may be able to reintroduce them into your diet if you wish.  My niece is a vegan and know she eats tons of veggies.  Is fish an option at all for you.  That's a tough one as even beans for protein can be very difficult to digest.    

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,472
    • Most Online (within 30 mins)
      7,748

    kygirlsusan
    Newest Member
    kygirlsusan
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.