Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Holiday Blues


Serielda

Recommended Posts

Serielda Enthusiast

I hate making posts like this one but after hearing some recent news it has made me feel really down. I can't afford to be down as I have a lot of things I need to learn for work, but I can't seem to shake right now feeling woe is me. I recently learned two former acquaintances just got their first house and My husband and I are still renting an apartment. Granted it's a very nice one but it makes me feel down. Second still feeling angry I can't be a vegan. Dr.s told me due to all the grains in a vegan diet, no due to me still healing and felt it would be safer having me go grain free on top of gluten free. I have bills out the yin yang due to getting diagnosed. I know some would say improving my health is better and one thing at a time but it still doesn't take the omg why is this all happening to me go away. I would just love for once a string of awesome things of the good variety to happen for me. I know one of the best things did happen was finding out I was not a hypochondriac and that what is wrong is treatable before seriously bad and sad things happened worse than it could have been.

I guess the thanksgiving holiday and spending it around the idiots on my hubby's side of the family didn't help since I had to sound like a broken record on why I couldn't eat anything there politely also didn't help. I know I'm still new and stuff and they are too, but ''Ello ever hear of Google? My father is their age and he knows how to google crap, at least I had awesome stuffs at home that wouldn't make me sick. Was anyone else's first holiday season after diagnosis this depressing?

On a positive note I just realized I'm no longer living in that really crazy neighborhood that used to flip me out with all the bad things that went on there and my current home is much calmer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

(((Hugs)))

StephanieL Enthusiast

i am not telling you to disregard dr.'s orders outright. Do you think it would be possible to speak to a nutritionist? I haven't had a lot of luck with them myself but perhaps you can find someone who could help you manage the vegan thing and Celiac.  You can get plenty of protein with plants, nuts and soy if you wanted to and are really committed to staying vegan.  It may take some research but I know people with far more restrictions that have managed that way of eating and stayed healthy.

BlessedMommy Rising Star

Does the doctor have any evidence that cutting out grains and beans will help you to heal?

mamaw Community Regular

Holidays  in general  can  be  pretty depressing then  throw  in a new illness....  hugs  to you.....Please  don't dwell  in what  others  have, your  turn & time  will come...you don't  know  the others  money  situation  or  their   thought  process..they  may not  be  ready for a new home  & may end  up  biting  off  more than  they  have  funds to pay for.. ( that is just  an example)...sometimes when  people  rush into decisions  , big  decisions  to  fast  they  loose  big time.... so it is  better  to  do  lots  of  planning & be prepared  for  future events.....

You  will  catch up at  the right  time.....be happy  that  you are  healing  have a  great partner & are in a safe place...with  gluten-free food... I  always  prepare  gluten-free  food  to take to any  invite...

It  is  hard  for  us to  understand  this   celiac  let  alone  others  who  have  no  clue or  issues.. I find  that  if  it  isn't  effecting  them then they  don't  truly care...Just  a  normal  thing although  it  hurts at times...For  instance  do  you  care  about  MS or  a brain  tumor  if  no one  around  you  has it? yes, you may  care  but  not  enough  to  know  everything about  it...so  don't  be  to hard  on  people  who  lack knowledge  about  celiac  when  they don't  have  it...

The  good  news  is  you  found  you have  many things to be thankful for... And  may health & happiness  follow  you through  this  holiday season....

hugs

Serielda Enthusiast

To address the mentions of nutritionists yes they also agreed on the no grains period thing. I know I've shown some improvements since the changes, which I know positive improvements should trump over a lot, but I still find myself lashing out about it. I feel that helping with a cause I wanted to support strongly was stolen from me by ignorance. like I said very angry about all of this.

mamaw Community Regular

sending  more hugs!  You  are  still all good  when it  comes  to celiac....the feelings  you  have  are  normal   to celiac,  I  think most  of us  have  been  there our   first  few  months  into  recovery....sadness,  anger, denial, an  emotional  roller  coaster  for  many....some  it  takes  much longer  to  find  peace ... the good  thing it  does  happen...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

If you look at your diet, what are you eating in large amounts that you would need a replacement for to be vegan? Perhaps people here can help with suggestions that may help you return to being vegan and that may help some of the anger you are feeling?

((hugs))

BlessedMommy Rising Star

Quinoa, amaranth, wild rice, and buckwheat aren't grains. Is including them in your diet for more variety an option for you? 

Serielda Enthusiast

Blessed, trust me when I asked several sources that did give me a reasonable answer. I tend to agree with you, however they all seem in agreement . So I am trying things their way. After all they specialize in what they do. I understand my constant doubt is not cool as I have seen improvements, and my minor sarcasm about some requests would be like them trying to do my job which is helping run a medium to large IT network they know nil about but trust those who know IT to run. Once I had that analogy I was like ok, they know food and medicine so let's give a benefit of doubt they are doing things right. Since I do feel better.

Serielda Enthusiast

StephanieL, post extreme diet make over there was a freaking ton of rice and veggies and I admit to eating a lot of gluten free soy fake meat things. Cooking at night fell on hubby as I work overnights. I admit he is a trooper and serious keeper. When I was told no gluteny things he stopped eating them . He stated if I couldn't have some of my faves he wasn't gonna have them either as it isn't cool to eat in front of peeps what they can't have.

cap6 Enthusiast

Rice, quinoa are in the grain family and they may not work for you right now as they can be difficult for some people to digest.  Perhaps some time down the line as your gut heals you may be able to reintroduce them into your diet if you wish.  My niece is a vegan and know she eats tons of veggies.  Is fish an option at all for you.  That's a tough one as even beans for protein can be very difficult to digest.    

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.