Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Holiday Blues


Serielda

Recommended Posts

Serielda Enthusiast

I hate making posts like this one but after hearing some recent news it has made me feel really down. I can't afford to be down as I have a lot of things I need to learn for work, but I can't seem to shake right now feeling woe is me. I recently learned two former acquaintances just got their first house and My husband and I are still renting an apartment. Granted it's a very nice one but it makes me feel down. Second still feeling angry I can't be a vegan. Dr.s told me due to all the grains in a vegan diet, no due to me still healing and felt it would be safer having me go grain free on top of gluten free. I have bills out the yin yang due to getting diagnosed. I know some would say improving my health is better and one thing at a time but it still doesn't take the omg why is this all happening to me go away. I would just love for once a string of awesome things of the good variety to happen for me. I know one of the best things did happen was finding out I was not a hypochondriac and that what is wrong is treatable before seriously bad and sad things happened worse than it could have been.

I guess the thanksgiving holiday and spending it around the idiots on my hubby's side of the family didn't help since I had to sound like a broken record on why I couldn't eat anything there politely also didn't help. I know I'm still new and stuff and they are too, but ''Ello ever hear of Google? My father is their age and he knows how to google crap, at least I had awesome stuffs at home that wouldn't make me sick. Was anyone else's first holiday season after diagnosis this depressing?

On a positive note I just realized I'm no longer living in that really crazy neighborhood that used to flip me out with all the bad things that went on there and my current home is much calmer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

(((Hugs)))

StephanieL Enthusiast

i am not telling you to disregard dr.'s orders outright. Do you think it would be possible to speak to a nutritionist? I haven't had a lot of luck with them myself but perhaps you can find someone who could help you manage the vegan thing and Celiac.  You can get plenty of protein with plants, nuts and soy if you wanted to and are really committed to staying vegan.  It may take some research but I know people with far more restrictions that have managed that way of eating and stayed healthy.

BlessedMommy Rising Star

Does the doctor have any evidence that cutting out grains and beans will help you to heal?

mamaw Community Regular

Holidays  in general  can  be  pretty depressing then  throw  in a new illness....  hugs  to you.....Please  don't dwell  in what  others  have, your  turn & time  will come...you don't  know  the others  money  situation  or  their   thought  process..they  may not  be  ready for a new home  & may end  up  biting  off  more than  they  have  funds to pay for.. ( that is just  an example)...sometimes when  people  rush into decisions  , big  decisions  to  fast  they  loose  big time.... so it is  better  to  do  lots  of  planning & be prepared  for  future events.....

You  will  catch up at  the right  time.....be happy  that  you are  healing  have a  great partner & are in a safe place...with  gluten-free food... I  always  prepare  gluten-free  food  to take to any  invite...

It  is  hard  for  us to  understand  this   celiac  let  alone  others  who  have  no  clue or  issues.. I find  that  if  it  isn't  effecting  them then they  don't  truly care...Just  a  normal  thing although  it  hurts at times...For  instance  do  you  care  about  MS or  a brain  tumor  if  no one  around  you  has it? yes, you may  care  but  not  enough  to  know  everything about  it...so  don't  be  to hard  on  people  who  lack knowledge  about  celiac  when  they don't  have  it...

The  good  news  is  you  found  you have  many things to be thankful for... And  may health & happiness  follow  you through  this  holiday season....

hugs

Serielda Enthusiast

To address the mentions of nutritionists yes they also agreed on the no grains period thing. I know I've shown some improvements since the changes, which I know positive improvements should trump over a lot, but I still find myself lashing out about it. I feel that helping with a cause I wanted to support strongly was stolen from me by ignorance. like I said very angry about all of this.

mamaw Community Regular

sending  more hugs!  You  are  still all good  when it  comes  to celiac....the feelings  you  have  are  normal   to celiac,  I  think most  of us  have  been  there our   first  few  months  into  recovery....sadness,  anger, denial, an  emotional  roller  coaster  for  many....some  it  takes  much longer  to  find  peace ... the good  thing it  does  happen...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



StephanieL Enthusiast

If you look at your diet, what are you eating in large amounts that you would need a replacement for to be vegan? Perhaps people here can help with suggestions that may help you return to being vegan and that may help some of the anger you are feeling?

((hugs))

BlessedMommy Rising Star

Quinoa, amaranth, wild rice, and buckwheat aren't grains. Is including them in your diet for more variety an option for you? 

Serielda Enthusiast

Blessed, trust me when I asked several sources that did give me a reasonable answer. I tend to agree with you, however they all seem in agreement . So I am trying things their way. After all they specialize in what they do. I understand my constant doubt is not cool as I have seen improvements, and my minor sarcasm about some requests would be like them trying to do my job which is helping run a medium to large IT network they know nil about but trust those who know IT to run. Once I had that analogy I was like ok, they know food and medicine so let's give a benefit of doubt they are doing things right. Since I do feel better.

Serielda Enthusiast

StephanieL, post extreme diet make over there was a freaking ton of rice and veggies and I admit to eating a lot of gluten free soy fake meat things. Cooking at night fell on hubby as I work overnights. I admit he is a trooper and serious keeper. When I was told no gluteny things he stopped eating them . He stated if I couldn't have some of my faves he wasn't gonna have them either as it isn't cool to eat in front of peeps what they can't have.

cap6 Enthusiast

Rice, quinoa are in the grain family and they may not work for you right now as they can be difficult for some people to digest.  Perhaps some time down the line as your gut heals you may be able to reintroduce them into your diet if you wish.  My niece is a vegan and know she eats tons of veggies.  Is fish an option at all for you.  That's a tough one as even beans for protein can be very difficult to digest.    

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,545
    • Most Online (within 30 mins)
      7,748

    PatientOne
    Newest Member
    PatientOne
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.